Hi Angela

We have BUPA and my husband was diagnosed 2006. His consultant did not take private patients and although I tried to encourage Frank to go the private route, (thought he would have more individual attention) he decided to stay with NHS. Although I have had some gripes, Frank is very happy with the route he took and when he has needed…[Read more]

Hi Vicki and Colin

I don’t understand what All clear are up to. That’s who we got insured with. Frank did it all, I, thankfully was not involved. I know they were sticky on “do you take powerful painkillers”. Frank doesn’t. His consultant wrote a letter saying about SCT and about tests PET scan and said “no detectable myeloma cells”.he doesn’t…[Read more]

Hi Carol

Before Frank had SCT our travel insurance was through Columbus. They were good. After transplant we got a yearly policy with All Clear. Excellent price although it did not include USA

Jean

Hi Eve

Glad that Slimis getting treatment. Hope he gets something good out of it. I know more and more treatments are coming on line but let’s hope Nice Get their finger out soon. I play scrabble on my iPad. “Words with friends” I play with Elaine, Toms wife. To be honest it acts as a relief. I look forward to our games. I’m glad to hear that…[Read more]

Hi Eve

I don’t know how I missed your post. I’m so sorry to hear about Slim, I know you don’t like gushiness (is that a word – must look at a scrabble dictionary). Just want you to know I’m thinking of you both and hope you get second opinion soon. Slim is a lucky man to have you fighting on his side.

Love and prayers to you both
Love Jean x

David what great news. Long May it stay there

Love Jean x

Hi Carol

Sounds like you are getting there. Hope you get home soon. Re the vaccinations. Frank had his SCT March last year and only started the re vacInation about 8 weeks ago. I kept asking consultant and her reply was “the jury’s out on that one”. Then On one visit she said she had informed our doctor to start the procedure. So far he’s had 3…[Read more]

Trigger I forgot to mention after 100 days he had all tests including PET scan and is in complete remission

Jean

Hi Trigger

Sorry to hear bout your mum. Others will be along who have more experience than me but I will tell you of Frank. He had his STC in Match 2013 one month before his 70th birthday. It was no picnic but he got through it. He’s also like your mum “healthy”. With Frank it’s only now he is coming back to himself. Even though we still had…[Read more]

Hi Carol

Frank has never had radiotherapy. She mentioned thyroid and I can remember her saying “none of my patients have ever had to have it removed “. Really don’t know what that means. I have some questions for her when I see her on Wednesday.

Carol I have been following your SCT journey and as you know things will get better. There is light…[Read more]

Hi Vikki

Longg time no hear. So glad to hear that Colin is doing well. I have to say This past week is the best Frank has been since transplant last March. His form is good although consultant says there is something wrong with thyroid! she’s referring to some other consultant. His potassium is low as is vitamin D. Cannot take medication as it…[Read more]

Hi Sarah

This is a very difficult decision to make and takes a massive lot of thinking. My husband was diagnosed in 2006 with smouldering myeloma. I taught at the local university and loved my job. Frank was smouldering and although, sounds funny, was healthy. He didn’t need me around all the time. But I couldn’t concentrate at work, he was…[Read more]

Hi Dave

My husband (70 last April) renewed his licence and he said that “if you suffer from a condition that precludes you from driving …….” Myeloma does not fall into that category. He had no problem. He said thT it so Lu for 3 years

Best wishe
Jean

Hi Jo welcome back. Hope all is good with you

Love Jean x

San I’m so sorry to read of the passing of your beloved mum. My thoughts and prayers are with you and your family

Love Jean x

Hi Tom

Good luck on Monday and with such a positive attitude as yours, I hope the treatment goes well and you get a hell of a lot more than 4 years. Love to you and Elaine

Love Jean x

Carol when Frank started melphalan he also had a supply of ice lollies. After cells returned they supplied a mouth wash and he was for ever using it – he had no problems with his mouth

Good luck
Jean

Hi Chris

Sorry you had to join us, but welcome. June has given you good advice. My husband smouldered for 6 years. He went every month to consultant. Frank only thought of MM when his appointment came round. I think I worried about it more than he did. I hope you smoulder for Many many years. Ted will probably come along soon, he has been…[Read more]

Hey Tom vodka on you. No make that gin

Xx

Hi Liz

I am not advocating going to Spain WITHOUT insurance BUT we have been to Costa del Sol many times and we did not have insurance. I remember Gills husband Stephen, when they went to France, saying that he was not going to break out in a severe case of Myeloma. Kev, like Frank knows his own body. We had been looking into going to Tenerife,…[Read more]