We’ll done Andy you have come a long way and manage to stay positive. Ian was diagnosed 2 years on 25 October.

Keep it up x

Hi Tom, sorry to hear this, I hope this next round of treatment achieves a longer remission and few side effects.

Good luck and very best wishes.

Take care

Karen
xx

Aye, it is a tricky bugger and no 2 cases are the same, which makes it even more difficult.
Wishing you well.

Karen

Done! Good luck! x

Hi Tom, just read this, I get pains in the same part of my spine, ribs and sternum, I am still on Zomorph, I was told I will always have some pain as there was a lot of bone damage (late diagnosis), so I just have to control it. I had my sct in January 2013, so if my appetite goes or I am more tired, or pain is worse, I worry that it’s coming…[Read more]

Hi Peter

Hope the new treatment works for you will

Maureen

Dear Eve,
So sorry to hear that Slim has passed away.
Thoughts are with you at this very sad time.
Karen x

Hi all land thanks for best wishes, and thanks too Peter for chin up 😉

I have still not had my protien results, I have had my copy off the doctors letter from the consultant, has my blood results, but says progressing paraproteins (sorry if spelling wrong), I am sure they would contact me if a problem.

Update on sore on my back, I seen a…[Read more]

Please phone the myeloma nurses on this site who can advise you on treatment. You could also ask for a second opinion.

Good luck

Maureen

Hi TontF, I have just seen Dr Barton ( for the first time), I said hello from you, she said hello back to you! 🙂 She mentioned there may be a myeloma group starting back up.
My blood count is all within range, kidney function okay, calcium back up( it was borderline), just waiting for my paraprotien. I am in day ward waiting for zometta (45…[Read more]

Hope all goes well with the operation David and you get home soon.

Maureen

Many thanks David

Regards

karen
xx

Thanks Tony,

I will say hi if I see her, never seem to get the same consultant twice in a row nowadays. Although I heard from Dr Garg recently, (emails) regarding holidays. She gave thumbs up as I am in remission! ;-).

Regards
Karen H
x

We don’t have the cancer drug fund in Scotland either and pomalidomide has been refused here. Hoping it will be passed as it will be Ian’s next treatment if revlimid fails.

Maureen

All signed Richard

Maureen

Worrying Richard, perhaps Scotland should go it alone and have access to nhs.

Maureen

Hi Helen

We stopped in Padstow on the way home and had lunch in Paul Ainsworth , superb. I also loved a little village called Marizion near St Michael’s Mount and Mousehole . Bought the Mousehole book for the grand children.

We are off to London on the22nd to spend a few days with my daughter.

Consultant thinks Ian’s FLC will show no sign of…[Read more]