Eve

I phoned Ellen and the packs are on their way. I will distribute them to all the local gp surgeries.

Hope Slim is keeping well and gett appropriate treatment.

Maureen x

Hi Eve and everyone,
I agree, the failings are definitely in the GPs. I was having treatment for some months at a private osteopath based in my surgery. He said something was amiss with my back and went to see my GP to recommend he send me for a scan. My GP refused and just kept plying me with painkillers. All this happened approx a year…[Read more]

I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)

On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen

Hi Jean,

Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D

Very nice to meet you, hope to share stories and rants in the years to come.

I have been on here all night, well a long time for me anyway>:-) .

See you soon
Regards
Karen

ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen

Hi TonyF,
I had my SCT on 11th Jan 2013, i was admitted on the 9th Jan> . I was discharched on the 28th Jan, we missed each other by a day. I know Drs Chapman and Barton, but my main consultant is Dr Garg, I seen her a lot when i went for my vertebroplasty to the Spire hospital (husbands cover through work), Dr Rennie did op, it went very…[Read more]

Hi TonyF,
Thanks for the welcome. Nice to meet you.:-) (bit of a smiley monster)
I hope there may be times when I can somehow help or support.
Regards
Karen

Thanks Etta,

I can tell already that people are friendly.

I put my story on my profile but will copy to here.

Thanks again Etta, nice to meet you. Karen 🙂

I am a 51 year old married mother of 2 teenage girls. Diagnosed aged 50 in July 2012, with Multiple Myeloma. Changed all our lives forever. We live in Rutland, but our nearest…[Read more]

David

Can you email me the article for gp's to look out for myeloma.

email address maureen_cerdan@yahoo.co.uk

Thanks

Maureen

Hi all

We all have to complain about poor gp's and doctors. Ian's surgeon said he would back us up if we need him. He also said that Ian had classic signs of myeloma and the gp and a good physio should have pciked this up.

No SCT planned for Ian. Got blood results today and light chains now 130 but consultant said all other bloods etc…[Read more]

Hi Eve, Tom & Tom

Ian first went to his gp in April suffering from back pain and tingling down both arms with weak hands. Sent away with pain killers. Went back several times to gp as back pain increased in the cervical thorasic area and he had a lump in his back. He was sent to see a specialist at our local hospital. Specialist advised he…[Read more]

Peter

My email address is maureen_cerdan@yahoo.co.uk.

Going to ask consultant why Ian will get no maintenance so I would appreciate if you could email me the article.

Hope you are still keeping well.

Thanks

Maureen

Peter

Can you email me the report on maintenance?

Maureen

Hi Eve

Might take a leaf out of your book as am running around trying to fit everything in. Every time I feel like baking or not using the dishwasher, I can hear you say make it easy on yourself. Still working 2 half days and one full day, running to the hospital and taking in meals for Ian. His bed sore is healing and he is now allowed up…[Read more]

Hi David

Hope you are feeling better and the pain has subsided. Enjpy your trip to London.

Consultant advised that Ian wouldn't be going to my daughter's wedding in London on 6 July. I haven't told him yet as I am still hopefull. He is still stuck in bed with this bed sore.

Maureen

Hi Helen

Sorry you have had a relapse but try to stay positive. I will put up a prayer for you.

Love Maureen x

Hi Dai

Ian's treatment stopped to allow his bed sore to heal as it is quite deep and could have gone into his bones. It is looking a bit better but still have a few weeks before it has healed. He is not allowed out of bed and is on a 30% tilt to take the pressure of the wound, so we cannot go forward until the bed sore is healed.

No SCT at…[Read more]

Hi Jan

Ian's light chains were initially 4000 and now 52 after 3.50 cycles od CDT so he has had a superb response. No SCT at present as he is still bedridden but who knows whaT will happen in the future. One day at a time.

Only hope this bed sore will heal soon and he will get more intensive physio so we can see how mobile he can…[Read more]