[jmsmythParticipant]

Hi Mavis

I totally agree with your comments on Dai. He is a real inspiration and he writes so well. Regarding not being able to hear dais songs, I remember something like that happening on my IPad and I think I had to download Flash. When Frank tried to download Flash on to his iPad a message came up to say the device would not support it. Maybe some 'Tech' on the site can help

Hope you are well Mavos
Love Jean x

[jmsmythParticipant]

Hi Jacquie

Hope you are having a great time and enjoying your visit 😀 I am retired so when Frank was in having SCT I spent most of the day with him. Now in saying that if I wasn't there I would have been at home on my own as all kids have flown nest so I just sat in the hospital room with him. I have to say although I sat and did nothing I was exhausted every night !!! Also I don't even know if Frank realised that I was there half the time as if he was not sleeping he was in the bathroom:-P . He also did not want any other visitors. I think our boys visited twice and even then he they had to get his permission. I think having a job to go to is a good thing as it will help you focus on something else beside this bl**dy MM and having gone through it beside him i, in retrospect it would have been good for me to get away from the hospital for a while.

Take care Jacquie and my very best to Geoff
Love Jean x

[jmsmythParticipant]

The very best of Irish luck Tom. Hope all goes well and they get loads and loads of the little fellows 🙂
Love Jean

[jmsmythParticipant]

Congratulations from me too Maureen. Hope you have a fantastic 60th. Hope you have a brilliant day

Love Jean xx

[jmsmythParticipant]

Hi Jacquie

That's great fingers and toes crossed that he has an easy ride 😀
Good luck Geoff
Love Jean x

[jmsmythParticipant]

Hi Eve and Slim good for you. Have a terrific time. Hope weather is good for you

Love Jean xx

[jmsmythParticipant]

Hi Pauline and Marc

Welcome from me also. I know you don't want to belong to our gang but they are a great bunch of people, you will get lots of support and friendship here. My hubby was diagnosed with MM in 2006 quite by 'accident' in blood test for something else. He smouldered until July last year when he started CDT. He had SCT end of February and as the others have said its not a walk in the park but you get through it. Frank is getting on well and goes in June for 100 day assessment. Pauline I can relate to what happened with you daughter in law. We have a young friend who is 40 and we have known her for 20 years. Her dad disappeared of the scene and she always said Frank was her adopted dad. When he was diagnosed and on no treatment she was always around. Once he started treatment in July last year we have not seen or heard from her. Maybe they just can't handle it.
Anyway rabbiting on -sorry but welcome
Love Jean

[jmsmythParticipant]

Hi Wendy

I read your blogg and you have had a terrible experience. I remember feeling elated when I read that a mistake had been made in your test and cannot believe that such a terrible mistake could be bade. I hope that that your next appointment brings better positive news.

Hope your mums wrist is ok

Best wishes Jean

[jmsmythParticipant]

Thanks Tom I appreciate that. Will order paperback

Jean

[jmsmythParticipant]

Hi Tom

I had listened to an article on diet on radio 4 by a presenter who has MM and they talked about Mediterranean diets (Wendy posted link on Facebook ). So when i read your post i was very interested so I went on to Amazon to order the kindle version of it and this was the message that popped up

This book is currently unavailable because there is an issue with its description, content, or formatting. We are working with the publisher to fix this issue.

It allows me to order the paperback version. Would there be a difference in the two publications I wonder.

Jean

[jmsmythParticipant]

Hi Eve:-/

Fed up cleaning :-/ but it has to be done. I read on face book about your new motor home – good health wished on you both to enjoy (don't know if that's an English thing but we say it here when you get something new). I hope that you get good news on tomorrow and that you can get back on the road again theres a song with that title :-/

Hey Jo how are you? How's Adam! Hope things are going well
Take care
Love Jean

[jmsmythParticipant]

Hi Helen

You are having a bad time 🙁 . I hope things start to improve soon and you get back to your old self soon. Re the day clinic; we went yesterday and Frank has started Zometa again. Normally when we go in, bloods are taken, wait begins, we see consultant and then sent to wait for a chair to become available for the infusion. This as you all know can take hours. After we saw the consultant Frank went down to get his place in the queue and I went to make the appointment for four weeks time. . I went to the waiting area and couldn't find him. Wee nurse came along and asked men if if I was looking for Frank and she pointed me to what I thought was an office. When I went in there was a man getting Zometa and Frank being set up. Heather the nurse explained that they where trying something new. She explained that in the unit some treatments can take hours where Zometa takes 20 minutes. In the unit you may have to wait some time after you have beeped for a nurse to come. This room was an old discarded office. She said as Zometa is quite quick they decided to try this. Been doing it for 2 weeks and it has been a great success. As soon as patient registers the Zometa is ordered. I know I waffle but the long and short of it is we were in and out of it in 30 minutes which included talking with the nurse and filling in a questionnaire.

Helen have everything crossed for you
Love Jean
Ps the other man with Frank has had MM for 12 year and had transplant 5 years ago and is still in remission

[jmsmythParticipant]

David what a lovely photo 🙂

Love Jean x

[jmsmythParticipant]

Just want to add my best wishes Geoff take it one day at aime

Love Jean x

[jmsmythParticipant]

Hi Karen

Welcome to the forum – I know you would rather not be here but we are all a very friendly bunch. My hubby has MM and I don't know what I would have done without my 'cyber friends'. Great place to get support, share info, get advice and also if you want to rant this is the place to be :-),

Love Jean

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