[jmsmythParticipant]

Hi Sandie

So sorry to hear of your mums news. Life can be so unfair and some get dealt really bad hands i don't really understand about "grades" but your post indicates that it's not the worse kind, but any sort is bad news. My thoughts and prayers are with your mum and your family. Take care and God bless
Love Jean xx

[jmsmythParticipant]

Hi Megan

It's good to read that other people have the same problem that was rectified. (Boy that sounds weird but hope you know what I mean 🙂 . They were supposed to take the Hickman out yesterday – didn't happen and then they said today. Frank just phoned to day that it would not be happening. The dr told us yesterday that the longer the line in the more chance of infection. His platelets were 8 they gave him transfusion, went up to 16 then came down to 8 again. Gave him more and they are back at 16 but that is too low. Said if they did it there would be blood everywhere !!! Has to have more platelets but they have run out and are getting some from somewhere else. Don't understand it as the hospital has a massive transfusion unit, the biggest in N Ireland. His electrolytes (not sure what they are) are right down so have to get them up. He says he feels ok

Good that Phil is doing well reading things like that helps lift the depression

Take care best to you both
Jean x

Ps at hospital now and have been told there is something not right with kidneys. Head man in this hospital on holiday so dr trying to get. in touch with kidney man in the Royal to see if they can continue with medication. where the h*ll is that light at the end of the tunnel :-S

[jmsmythParticipant]

Hi Helen

How was the holiday? Hope you had a ball! 🙂 Lovely hot weather. We were snowed in for days. Fortunately one of the boys has a 4×4 so he could get in to take me to hospital. Then they all came and dug my car out and made a path for me to drive.

On sunday night Frank was feeling weird and they put him on the ECG. They asked if he felt like he was wearing socks and gloves and he said that was exactly how he felt. They said they actually called it "socks and gloves". It was the calcium level was too low. Franks bloods were good yesterday. Neutrophils were 5.2. and consultant said if they could get the calcium levels up he could home. Then the dreaded diarrhoea came back. He has got a bit of an appetite but they weigh him every day and his weight had not varied that much until yesterday when he lost 4 kilos overnight !!!! I'm running round the house like a mad thing – I should take shares out in Detttol 🙂

Hope you had a real good rest Helen and that you benefited by your holiday

Take care
Love Jean x

[jmsmythParticipant]

Val very good news. Well done long may it continue 😀
Love Jean x

[jmsmythParticipant]

Hi Vicki and Colin

Thanks for thinking of us. Things were going good – neutrofills went up to 1.8 so he came out of isolation. Next day dropped to .2 so back to isolation. Today he is feeling better even got a bit of appetite back. I brought him in melon an ice cream and he wolved it down. Antibiotics finished and so have all IV's. he reckons he will be home this weekend. His hair has gone but he has only lost 2kgs – he hasn't eaten for 2 weeks. He had to get more platelets. Bloods will be taken tomorrow so will have a better idea

How's Colin hope he's doing well
Love Jean xx

[jmsmythParticipant]

Hi Eve

I'm so sorry that Slim has had a short remission and has relapsed. My best wishes to Slim and hope they find a treatment that will help

Best wishes to you both
Love Jean x

[jmsmythParticipant]

Hi Nikki

My husband had cells harvested on 11 December and had had the transplant on 5 March. It depends on the hospital, I think. We are in Belfast and Belfast City Hospital only has 6 sterile units to service the whole on Northern Ireland and we were told that leukaemia and lymphoma patients get priority. Frank is on day 16. He has had terrible diarrhoea and sickness and sleeps quite a bit. If you do a search under the topic Treatment for SCT you will find a lot of useful information. Before Frank was admitted I read and re read posts and found them very helpful. It is good to know what you can expect. My best wishes to ou dad
Love jean x

[jmsmythParticipant]

Not me Eve. I have a son in Kent who is a sergeant in the Met.
Jean x

[jmsmythParticipant]

Frank phoned and says he is feeling a little better. Doctor told him this morning that he is doing well. He said that they were keeping him on antibiotic as his kidneys are leaking something. Frank can't remember what it was. Anyone know? Get over one thing and another raises its blo**y head. Damn this illness

Thak you all for your support
Love Jean xx

[jmsmythParticipant]

:-S Tom a hedge backwards 😛

[jmsmythParticipant]

Peter congratulations. That's brilliant news

Love jean x

[jmsmythParticipant]

What a day. Day 13. Frank has been feeling terrible all day. Neutrofills – with the help of an injection – are 1.2. Platelets are 8. Decided to give him another platelet transfusion. No sooner in when he came out in the most horrendous itch rash all over his body. The worse is in his groin. Gave him – I think peredon which did nothing and now the are going to give him steroids – cortisone. This has scared the life out of me – is this normal – has anyone any experience of this? He has been pumped with so many drugs. I wish I could see this light at the end of the tunnel. He has at last fallen asleep.

Jean

[jmsmythParticipant]

Tom you old charmer 😛

Love Jean x

[jmsmythParticipant]

Pat that is great news. I'm sure you are over the moon and of course the proud parents 🙂 Face time is brilliant we do it all the time with grand children in Kent. Only thing is – they face time me at times when I have just finished the house work and look like I have been dragged through a hedge 😀

Cyber hugs and kisses to wee Beatrix. Roll on the rest of the Velcade and you can make plans to visit your wee bundle of joy

Love Jean xx

[jmsmythParticipant]

Hi Ann and Pete

Great news that Pete is home and having lager no less 🙂 well done you. Am sure you are both over the moon to escape. Frank is forming an escape committee of one 🙁 he can't find anyone else to,join!!! He said earlier that he would give anything for an ice cold Miller. He tells me he will be out of here next week but I dont t think so.

Take it easy Pete and go from strength to strength. Ann look after yourself
Love Jean xx

[Author]

Posts