[jmsmythParticipant]

Hi Vikki and Colin

Day 11 and the keep changing antibiotic. Diarrhoea and still not eating. Neutrophils today 0.26. Suppose it's better than 0. He woke up to watch rugby – Vikki he loves rugby and soooooo sorry but he's with Dai 🙂 Hoping for some improvement within the next few days. Thanks for asking. Hope all is still good with Colin

Love Jean x

[jmsmythParticipant]

Debs

I was devastated to hear about Pamela. Everything you say about her is true and more. She was a truly inspirational lady who helped so many people – and as you know I was one of those she helped. She and others brought me through a very bad time. She gave so much of her time and love to others my sympanyth goes to Trevor, Sam and Beth. She will be sorely missed

How are you Debs? Hope things are good
Love Jean xx

[jmsmythParticipant]

Dai

I think that is a brilliant idea. When Frank started SCT I trolled through the site for others experiences which helped a lot. It took me sometime to gather the info but at least I was prepared to see Frank so poorly

Thanks Dai for the post on your experience of SCT it was very detailed and I forwarded it to our 4 sons as they don't let me see but I know they are very worried about their dad. Your post showed that although it is very hard to go through – there is light at the end of the tunnel and I think it will help them

Thanks and hope things are good
Love Jean x

[jmsmythParticipant]

Hi Tom, Helen and Louise

Thanks for posts. I have asked Frank to ask about bloods but as usual the doctor will tell him annoying he wants to know. To,or row befor I go Iin I will see if I can speak to a doctor. Tom my life would not be worth living if I let him sleep through a United match – mind you the way they played 2nd half, I wish I was asleep.

Helen when Frank is sleeping I watch a movie on the iPad. Today it was the 3 stooges and it was the biggest load of rubbish I have ever seem. I should have watched paint dry it would have Ben more interesting.

Louise I have been following your dads SCT and he is having a rought time. So far Frank has managed with tablets for cramps, sickness and diarrhoea. He refuses to eat – he rekons that if nothing goes in then Nothing can come out but that has been proven wrong. The doctor did say he was having it good in comparasion to others In the unit but he did tell him that it will get worse. He said he was feeling terrible today and it must have been bad as it was the first time he has not showerdmor shaved. I read you mums post about the cat. I asked the transplant co-ordinator about our sons dog. She's old me that ani,ALS are not to be anywhere near the place that food is being prepared or eaten.

I hope tomorrow bring improvement to your dad
Best wishes
Jean x

[jmsmythParticipant]

Hi All

Frank feeling sick and terrible runs. Have given him tablets for cramps and sickness. Drips down. He had a power failure when doctor was talking to him 😛 . He slept for four hours and said that he has never experienced such a deep sleep. Doctor did not say anything about bloods but told him that "he was ahead of the pack" but not to get complacent as it will get worse. Thanks for all your good wishes

Best to all
Love Jean xx

Ps woke just in time for United match – think he's got built in radar? :-S

[jmsmythParticipant]

Hi Ann and Pete

Great to hear that things are menging a little. As Vikki says eating will return (I have been Re reading all SCT posts) and that seems to be the norm. Frank hasnt eaten for three days they threatened to bring him some vitamin drink and he told them he would eat a digestive biscuit today. He just feels sick and the dreaded tummy

Hope Pete goes from strength to strength

Take are Ann
Love Jean xx

[jmsmythParticipant]

Hi Laura

You are in the right place. Sorry you had to join us but welcome. You will get lots of Info and support from the people on the site. My husband is in Hospital at the moment going through STC. There are lots of people on the forum who have had experience of this. Everyone's journey is different but come on and ask any questions. You can do a search on SCT or look for previous posts under the heading Treatment. MeganJane (Megan and Phil), Vikki and Colin and Ann (foxy555 Ann and Pete) are some of the people have posted recently on SCT that I found very helpful. Forgot – also PeterJames

As I say come I. Ask, rant and rave, we have all done it

My best to your dad
Love Jea x

[jmsmythParticipant]

Hi Dai

I also read this on the Beacon and you are right found it very upsetting. I admire anyone who can accept it

Best wishes Jean x

[jmsmythParticipant]

Day 4 Frank up, showered, shaved and dressed. No pain or discomfort. Feels sick but medication takes care of that. He is not eating. Had a bit of runny tummy but has cleared up. Consultant told him bloods have not dropped. Does anyone know is this a good or bad thing? I don't want him to be ill but is this normal or is it too early? Would appreciate any info

Regards Jean x

Ps he has a very angry itchy rash on his back

[jmsmythParticipant]

Hi Megan

I have just finished reading again Phil's journey. These posts are really great as you can follow a journey and see that there is light at the end of the tunnel. 🙂 frank is still on a drip. When I ask him what is happening he shrugs – he's not like me I want to know everything. They put the 7.6 million back and I asked Frank to ask consultant why. She said that more the better. But when I spoke to transplant co ordinator weeks ago and was told thy would only put 2.5 million back at the body would just expel them. He slept for about two hours today and has been feeling quite sick. I was expecting him to phone but as you say he might be asleep

Hope Phil is going from strength to strength.
Take care
Love Jean xx

[jmsmythParticipant]

Hi Ann

I know how you feel watching Pete in pain and not been able to help him. I do hope he starts to feel better soon. It is good that his levels are up. Ann exactly what type of isolation was Pete in ? Thank you for thinking of Frank with all that is on your mind. Frank in a room of his own – has been since he went in. You go into a little hallway type thing and when both doors are closed I have to put on a apron, disinfectant my hands and put gloves on before I open the other door. Every time I leave and renter I have to go through it again. Frank has not eaten anything as he is feeling sick but yet he has put on weight he says its all the water they are making him drink!!

Frank does not want any visitors only me. Our one son is coming home from Kent tomorrow and Frank is just not up for visitors. Ann take care of yourself and I hope that tomorrow brings Pete relief and that it is the beginning of him starting to feel better

Love Jean xx

[jmsmythParticipant]

Hi Jackie

Sorry that your mum has MM but welcome to the forum. They are a great bunch on here for Info, advice and friendship. My husband is in hospital at moment as he had a SCT yesterday. Sorry I can't give you any info on kidney failure bit I know there are quite a few people here that have had kidney problems. I sure someone will be along soon

My best to your mum
Jean

[jmsmythParticipant]

Hi Helen he said he would phone first thing. Nothing yet. Will give him half an hour and then will ring. NO WE DIDN'T WIN. WE WERE ROBBED 😛 Didn't hear from him after the match. I got home in time for the second half. Wish he would phone getting a bit anxious.

Jean x

[jmsmythParticipant]

Tom cells went back at 1pm. He said they put the 7.6 Million back. He was shaking from top to toe he was so cold but he settled and has been snoring for the past 2 hours. If I don't wake him for the United match he will kill me 😛 I did tell him about the mouth wash but I will remind him when he wakes

Love Jean x

[jmsmythParticipant]

Franks has just phoned Helen with a shopping list as long as your arm 🙂 including soft toilet rolls, so runny tummy has started. He also said that transplant is at 1pm so I have not to cone till 2. I said I wanted to be there and he said that they won't let me in the room. Not sure if that is him talking or doctors. He is really taking on board about infection and has told family that I will let them know when to visit. He is so determined to set a new record in recovery!!! Hope he achieves it. Will let you know how it goes
Take care
Love Jean x

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