[jmsmythParticipant]

BUMP

[jmsmythParticipant]

Ps Vikki good luck with BM assessment 🙂 hope it is great news
Jean. Xx

[jmsmythParticipant]

Thanks Vikki and Ann for your good thoughts. The forum will be third to know when frank gets a date, us, our sons and the friends on the forum. Best wishes to you all
Love Jean x:-D

[jmsmythParticipant]

Dear Ann

Great to hear from you and what fabulous news 4.6 million. Good on you Pete. Everything crossed for 18th. Frank has been waiting since December for a date and nothing. I'm a bit scared that he might relapse before he gets a date

My best wishes to you both
Take care
Love Jean xx

[jmsmythParticipant]

Hi Janet

It so so good to read of yourt journey. Well done you 😀 my husband is waiting for date for SCT so it is great reading positive things. Long may it continue

Love Jean x

[jmsmythParticipant]

Thanks for that Dai. You eased my mind as well. Franks. PP plateaued at 2 and is waiting to go in for SCT. I was so depressed that it did not reach 0. Feel a bit better. More info from you and a registrar than we have gotten from consultant in 6 years 🙂

Vanessa hope all goes well for Stewart. Keep us I formed – as Frank is waiting it is good to read of others experiences

Best wishes to you both
Jean

[jmsmythParticipant]

Hi Joe

It's very good of you to come on and let us know what you are doing. I remember you dads journey and its hard to believe that nearly a year has gone by.

From me thank you so much for what you are doing. Myeloma has to be put on the map and what you are doing will contribute greatly to that. I'm sure your dad will be with you all of the way.

Don't forget to post your just giving page (if you have one) and my very best wishes for your terrific endeavours and also for the rest of your degree

Take care
Love Jean x

[jmsmythParticipant]

Congratulations Dai and Janet

I'm sure you are both over the moon – I know the feeling. Best wishes to you both and the new parents 😀

Our wee man isn't feeding so they are force feeding (!!!) him at moment so will be in Hospital till its sorted

Take care
Love Jeanx

[jmsmythParticipant]

Hi Jo Jo

Thanks. He is so lovely but his nails are so long that he has scratched the face off himself ? they have put mitts on him,, they hope to get home tomorrow but as Angela is diabetic they may keep her in a bit longer. She won't like that as she wants home so badly

Hope you are well and truly over you chest I fiction

Keep well
Love Jean x

[jmsmythParticipant]

Hi John

My hubby had Zometa for 2 years back in 2006. He then started it again in June and on both occasions he has had no side effects at all. Hope all goes well for your wife

Love Jean

[jmsmythParticipant]

Hi Pat and Tom

Thanks for your good wishes. Just back from hospital and they had to prise him out of my arms. They have called him Benjamin Francis (Francis after Frank). Too adorable

Pat Beatrix is a wee poppet – she is so tiny, dear love her. I'm sure you can't wait to meet her. This 'face time' is brilliant. I use it all the time to see and talk to grand daughters in Kent. Hope treatment goes well Pat and it won't be long till you meet her.

Take care Tom and Pat
Love jean x

[jmsmythParticipant]

Dear Sal

So sorry that your dad has lost his battle with this horrible illness. I know it's difficult and maybe hard to hear but it is a blessing that as you say it was "short and sweet". To know that your dear dad is not suffering must be of some comfort to you. My thoughts and prayers are with you and your family

Love jean x

[jmsmythParticipant]

Hello Maureen

I am so glad to read that Ian is progressing and glad that he may walk again. Everything crossed for him. When Frank was on CTD they had to reduce the Dex as he had bad side effects. Great to hear that Ian is handling it well. My very best wishes to you both

Love Jean x

[jmsmythParticipant]

Hi Grayham

Welcome from me to. You will get great support here. My husband was diagnosed with smouldering myeloma in 2006 and only started treatment in June. Hew was on 6 months of CDT. They had to reduce the Dex as he didn't tolerate it very well. He had stem cell harvest in beginning December and they got 7 .6 million first time. He is waiting for a bed but at moment has a terrible cole so they wouldn't do it anyway. He is having second thoughts about so I will Have to wait and see

Good luck with your journey
Love Jean

[jmsmythParticipant]

Hi Vikki and Colin
A
Thank you for your thoughts for us. We saw registrar yesterday (we both think consultant is avoiding us). Bloods were ok PPs still at 2 but still no bed. Wouldn't have been able to admit him any way as he has a terrible cold. He keeps saying "IF I have SCT". As I said to John he has had too much time to think about it. I have tried to get him to talk about how he feels about it but just tells me that he will wait and see ????

Colin hope you are feeling good

Best wishes to you both
Love Jean x

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