[jmsmythParticipant]

Hi Tina
Hope you have a lovely break. And good luck for your next step. Kep well
Love Jean

[jmsmythParticipant]

Dear David

I'm so sorry to hear your news but if anyone can kick it into touch, you can. Hope treatment does the trick. VASBYTE

Much love
jean xx

[jmsmythParticipant]

Dear Gill

I am so sorry to read your post. You both have been in my thoughts and prayers. Stephen is having a terrible time and it must be so difficult for to watch him in so much pain. I hope that the Wizards magic kicks in soon and Stephen gets relieved of his pain soon. I am not good with words Gill, but please know that you both are in my thoughts. Your lunches sound good. I hope that you have many more. We are off to see consultant.
Take care of yoursel Gill
Love Jean xx

[jmsmythParticipant]

Hi Ali

We are just coming to the end of the third month and don't get me wrong it is tough but as others say (I hope) it will be worth it. Frank takes the Chemo tablets every Monday. He was told to take the in the morning but they made him feel anxious and 'funny' for about 18 hours. So on Monday week ago he decided to take them late on Monday night so he could sleep through the worst of it. It seemed to work. This Monday he did the same and he felt so much better, we spent yesterday shopping together. That was a first for 3months. I did check that it was ok and they said with that drug he could take it when it suited him. We only have 3 months to go so fingers crossed. If only Dex withdrawal could be sorted, but as Michele says it will be 'worth toughening it out'

Regards to Kevin and look after yourself
Love Jean

[jmsmythParticipant]

Hi Ali

Sorry you have had to join us but this is the best place for support, to rant and for friendship. My husband is just starting his 4th cycle of CDT and the withdrawal of the Dex is by far the worse. His consultant tried to wean him off it, but for Frank, it just prolonged the withdrawal, so back to cold turkey. His first month was the worse. He said it was like someone else had taken control of his body. I think maybe his body has got a little used to it, as now, although not pleasant, seems to handle it a bit better. He had hic coughs which nearly drove him crazy, but natural yoghurt seemed to help him.

I hope all goes well with your hubby (his name??). It take some time to get your head around this illness but as I say you are in the right place.

Take care
JeaN

[jmsmythParticipant]

Dear Dai

Sorry that you are no better, you really have been in the wars. I hope the Day Care can get it sorted quickly and permanently and you are soon back to your old self

Love Jean x

[jmsmythParticipant]

Hey John couldn't get link to work!!!
Jean

[jmsmythParticipant]

Hi Pete

Thanks for your post. I appreciate everything that you have said about Support Groups and I am looking forward to going in October. I suppose, as Frank was not on treatment, I was like the ostrich – head buried in the sand – but if I'm honest I was scared to go to a group, as I did not want to hear or see what the future held. I'm not very good at expressing what is going on in my head, but I hope you understand what I'm trying to say. I discussed this years ago with Frank and he was adamant that he did not want to go, and I went along with him. I'm in a place now that I need as much information about this disease as I can get.
My best wishes to you
Jean

[jmsmythParticipant]

I agree Michele. My husband had SMM for 6 years and has just started treatment. I never felt inclined to go to a support group and Frank would not even talk about it, but now that treatment has started I feel the need to go. I will be going to my first one in Belfast in October.

As you say cope with Mm in your own way

Love Jean

[jmsmythParticipant]

Hi Louise

We have used quite a few travel insurance companies in the past. We had to find a new one when Frank turned 65. The one we have used for our past holidays has been Columbus direct. 02082569045. We found them very helpful – but be prepared to answer lots of questions. We used them for a cruise in the Caribbean. Lots of people on the forum have used different companies so I'm sure you will get plenty to choose from. Hope you are successful.

Love jean

[jmsmythParticipant]

Thanks for posting this John. As you say looks hopeful. Be interesting to read more on it.

Good luck for your fund raising. You are doing a terrific job.
Best wishes
Jean

[jmsmythParticipant]

Hi Jill

Thanks for posting this I love reading positive posts like this. I'm glad your mum came through treatment with such good results. My hubby is on CDT and the Dex is as you say "hard work". My best wishes to your mum and long may it continue.
Take care
Love Jean

[jmsmythParticipant]

Great news Wendy and Helen party, party
Love Jean x

[jmsmythParticipant]

Have a wee vodka or maybe 2. Think I'm on 3rd glass of wine. Sons were up and thats my excuse. The main thing is that you an Elaine have a ball and enjoy every minute. Will be thinking oh you tomorrow. Go get them Tom !!
Love Jean x

[jmsmythParticipant]

Tom looking forward to hearing how you got on or is it "if I tell you I will have to kill you" :-S
Love Jean x

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