[jmsmythParticipant]

Hi Eve

Great news about Slim and long may it continue. Go on go book your holiday – enjoy yourselves. Might even get that game of scrabble in.

Love Jean x

[jmsmythParticipant]

Thank you all for your good wishes. Other grand children born Kent, Southampton and one here (but only involved when she was born) so to be involved is brilliant.

Congratulations Dai to you and Janet and of course your son and daughter in law. Our baby is due 10 th February, when is yours due? I just can't wait- anyone would think its my first!!!
Our son Robert and family are home from Southampton on 8 August so looking forward to seeing them especially Maddy our grand daughter.

Take care all and thanks again
Love Jean x

[jmsmythParticipant]

Hi Michelle and welcome. There are a great bunch of people here. It is great to hear your news. My husband is on his 3rd cycle of CDT and the going for SCT if all goes well. So I will be welcoming any advice when Frank gets that far.

Best wishes
Jean x

[jmsmythParticipant]

Hi Dai
We are new to the Dex. Frank is starting the 3rd cycle tomorrow. He is ok while taking the Dex (touch wood -has been first 2 cycles). His problems starts when he stops. First cycle he was off the planet for about 4 days. On the second cycle consultant suggested that he was weaned off it – that did not work as he was off the planet for much longer this time. So now he is back to cold turkey. He hasn't had any sweats. I hope things settle down for you and start to feel better.
Love Jean

[jmsmythParticipant]

All the best Paul for your SCT. Good luck and good vibes are with you. Glad you were able to get away for a dew says.
Love Jean x

[jmsmythParticipant]

Hi Jo

Sounds like you had a good time' glad you enjoyed it. When the kids are happy makes the weather ok. Did you come home to good weather? I'm thinkinng of immigrating to England!!
Take care
Jean xx

[jmsmythParticipant]

Mari really good news – well done Steve. Have a brilliant break you both deserve it. Enjoy

Love jean xx

[jmsmythParticipant]

Hi Ian

Yes there has been discussions about curcumin on the forum maybe a year or so ago and I know some did and do take it and If I remember rightly there was a blogg I think it was called Margaret's blogg and if I remember she was a great advocate of it. Somone else with a better memory will be able to tell you more. If you do a search on curcumin in the search box you will see quite a few posts will come up.

Take care
Jean

[jmsmythParticipant]

Dear Etta

I am so very sorry for the passing of your sister. Life can deal us some terrible blows but this is a brilliant place to rant as much as you like. My sympathies are with you and your family. Please take care of yourself

Love Jean x

[jmsmythParticipant]

Mari

I'm so sorry to hear that Steve is having a hard time stem cell collection. I'm still new to this treatment (frank hopes to have SCT after his cycles of CDT are over) and no nothing about plerixaforbut I will keep everything crossed for him for tomorrow and pray that all goes well. Enjoy your holiday.

Love Jean x

[jmsmythParticipant]

Congratulations Liz and Kev and what a lovely name. Grand children are a joy we have just had 2 of our grand daughters over from Kent. Hard to say goodbye to them

Enjoy them they are a blessing
Love Jean x

[jmsmythParticipant]

Hey Tom that's brilliant. They still haven't had a male quarter millionaire hope you will be the first.

Good luck
Love Jean x

[jmsmythParticipant]

Hi Ronnie

My Husband smouldered for 6 years. He had pain in his ribs and complained for 18 months to consultant. Frank did tell her that it was muscular. She sent him for a skeletal and an MRI which showed up nothing. She was not concerned as his proteins were dropping. After nagging she sent him for CT scan which showed up 2 lesions on ribs. Saw radio therapist who said that she did not think treatment was necessary. Turned out that Franks myeloma had changed from secretory to non-secretory.

As you are in pain Ronnie I would advise you to insist that your consultant sends you for a CT scan. She told us that the CT scan gives a much clearere photo of what is going on.
Hope it's sorted soon
Take care Jean

[jmsmythParticipant]

Hi Keith

Read your post abouth the Dex with interest. Frank started the first cycle of CDT last month. He was taking 20 x40 mg on the first day for 4 days. The withdrawal was not nice. He felt so peculiar. When we told consultant she decided this month to wean him off. He took 20,20, 20,20,5,4,3,2. Frank said that he is going to,tell her that he is going back to "cold turkey" as the first cycle he felt awful for about 3 days, this cycle he stopped them over a week ago and the old frank is just coming back,
Hope you get it sorted soon
Love Jean

[jmsmythParticipant]

Hi Tina

Frank is on 2nd cycle Of CDT. He is worse on Mondays when he takes the Chemo and the Dex together. The Frank we know disappears and a short tempered Frank appears. I know what you mean About the burps he is plagued with them. We are now in the 12th day of 2nd cycle and we have a tired Frank back – with burps and all that it brings. His mood has improved greatly and he's back to his nearly old self. Things are getting better for him and hope they are getting better for you. Be well
Love Jean x

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