[jmsmythParticipant]

Congratulations Ellen to you and all the team. A well deserved award

Regards Jean

[jmsmythParticipant]

Hi Maureen saw the registrar and she was happy with franks bloods. The MRI results were not back (he got it last Wednesday) she said that in most cases it’s a good thing as if there was something wrong the report would come up fast. She said she would phoe with the results as we are booked to go away next Thursday and I want the results before I even think of packing. So here’s hoping she right.

Best wishes to Ian take care
Jean x

[jmsmythParticipant]

Great news Maureen. Always boosting to read. Glad you had a nice break. We are odd to consultant tomorrow. Really hate it. Always scared of what she will say
Take care
Jean x

[jmsmythParticipant]

Great news Jean. Hope Michael goes from strength to strength. Take care
Jean x

[jmsmythParticipant]

Hi Sindy

Sorry you had to join us but welcome to the site. They are. Great bunch of people here who will be there for you to help in any way. Have you a tarted treatment yet? My husband had SCT March 2013 and is in remission. Thank God. See you along the road

Jean

[jmsmythParticipant]

Hi

I’m like David been on forum since 2006 and I have never heard do it either. If you phone or email Ellen or Maggie, the Myeloma nurses I’m sure they will be able to help you. Details on site.

Best wishes
Jean

[jmsmythParticipant]

Hi Molly

Sorry you had to join us and I’m not sure it’s relevant but Frank and I lived I. South Africa for 10 years 3 of our 4 sons where born there. We came home back to Belfast and it took some time for Frank to get a job. We got all benefits and child allowance etc. as Eve says get advice and hope things go week

Jean x

[jmsmythParticipant]

Hi helen

Thanks for that. I’m in bed and when you post came through I went down stairs and read it to him. It has been a relief to him that you and Jane have had experience of this drug. He is sitting down stairs playing a game. Not the same man as yesterday when I posted he is more relaxed and prepared to go go on with the mds and not phone the hospital to give them a b******ing. I even nagged him into take the phosphates. Thanks again it’s the first time he asked me to ask a question on the forum so we are making headway. Helen hope you have a great relaxing time and us to if we are not arrested at the airport

[jmsmythParticipant]

Hi Tom and Jane

Thanks I talked Frank into taking another one today he was reluctant but it’s great what a bit of nagging can do. He took it this morning and he’s has been as high as a kite. I asked him if it eased the pain and he said no but he couldn’t give a ****. Should be fun when we go on to 2 a day. But he’s been good this afternoon and in good form. Supposed to go to Lanzarote next Sunday. Don’t want to be arrested at the airport for over indulgence

[jmsmythParticipant]

Hi Carol

Frank had SCT March 2013. After 100 days all was good and they started him on Zometa. Had it for a couple of months and then his phosphate level dropped and Zommeta was stopped. Have him on meds to improve phosphates but they are not working yet so they are still with holding the Zometa till they start to rise

Hope all goes well for you
Jean

[jmsmythParticipant]

Hi Jeff

Myeloma UK supply a diary (free) which gives lots of segments. Eg blood results. Theses are pre printed for you to fill in and at start of section gives you the normal range. You can see at a glance what the bloods are doing. There are different sections – questions to asker, appointment etc. I have been using these diaries for nearly 8 years and would be lost without it. (Frank smouldered for 7 years and diary was invaluable to watch what was happening

Jean

[jmsmythParticipant]

Hi all
Andy sorry to hear that you had another stay in Hotel NHS but just look and how they looked after you. Don’t worry about the brewers, Frank will keep your end up. Enjoy Greece. Great to get away

Maureen I too thought I was seeing things on your post but it gave me a laugh. Hope you have a fantastic time.

This is the third time I’ve tried to post and it keeps disappearing. Though it was all sorted

Vikki have you room in your case for a wee one. Have a great time

Ali glad to hear your mum is good. Hope she goes from strength to strength

Helen great news about your bloods and holiday. Madeira is beautiful. Enjoy. There are benefits having four boys – we sat back and relaxed. Franks bloods were good except for phosphates (can’t give him Zometa) and vitamin D still to low. She suggested getting it naturally so we left hospital and booked. Never been before so looking forward to it. I’m looking after our 1 year old grand son and he’s all over the place

Sorry Andy your post was hi jacked. But to all going away for a break have a brilliant time – cheers. If this doesn’t post this time I give up

Love Jean x

• This reply was modified 10 years, 8 months ago by  jmsmyth.

[jmsmythParticipant]

Great news Carol. Franks new cells where 1 year old yesterday. He’s also,in remission. Thank God. Just loved your photo

Hope it’s loooooooooong

Love Jean

[jmsmythParticipant]

Hi Vicki and Colin

Bloods where good except for phosphates and vitamin D. Said shingles were drying up nicely and that he was lucky. Said he needed natural vitamin D so we left hospital and booked 11 days in Lanzorato. Never been so looking forward to it. Going 16 March. Mauritius how fantastic. We lived in South Africa for 10 years (much younger then) and it was quite close and one of my biggest regrets is that we never went. Friends have been, and all said it was fantastic and very romantic

We also take first defence with us and we use Synergy on a hanky on the plane to stop any airborne nastys and sniff during flight

Have a fantastic time, relax and enjoy
Love Jean x

Think this post may repeat itself x

• This reply was modified 10 years, 9 months ago by  jmsmyth.
• This reply was modified 10 years, 9 months ago by  jmsmyth.

[jmsmythParticipant]

June it must have been terrible to get a late diagnoses. When the rash appeared Frank phoned our hospital day unit and described the symptoms. Registrar rang him back and said it sounded like shingles but to see his dr who said right away that it was shingles. He has been lucky in a way as the spots have all scabbed over. He has awful back pain which he says is from the shingles. We have an appointment to see consultant tomorrow but he has to phone to tell them how he is so they cab tell him whether to come up.

Thanks for the post
Jean

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