Dear Ed
I am so sorry that you have had to join our exclusive club but you are very welcome. You will meet terrific people here who are a mind of information. My hubby has MM he was diagnosed Sept 2006 and like your wife they are monitoring him. the only treatment that he has had is Someta. he has good days and bad days – and I will be honest I worry about him all the time. I went to a counsellor (recommended my Macmillan) and they were terrific – I could rant, cry and there was no judgement just support. In the nearly 6 years I have been to two sessions. It may not be for everyone but I helped me greatly. our children are grown up and that was difficult to tell them. We have grand children and Frank took th decision – as he was not on treatment – not to tell them until treatment starts. Ed we try to live life to the full. Dai is so right -dont surf the net – I did before I found this site and what I read scared the living c**p out of me. I cannot help with your other points but you will get some of your new cyber friends who have been where you are and be able to help you both.
My very best wishes to your wife and take care.
I hope you and your family have a great happy new year
Love Jean x
Hi Min
You are so right about the grand kids. I love them to bits but they are hard work. We have only Robert wife and wee Maddy here. They have gone out and it is soooo quiet – lovely!!
I hope the new year brings you nothing but good things
Love Jean xx
Thanks Bridget and Jo. The first of the boys are leaving in about 30 minutes. Robert and family go home tomorrow and then back to peace and silence. Will miss them
Hope you both and your families have the best of new years
Love Jean xx
Hi Lynda
I too wold like to welcome you to the site that you would rather not be a member. I am a carer (hate that word) for my hubby and I have received tremendous support, advice and comfort from the wonderful people on the forum.
My very best to you and Pete
Love Jean xx
A brilliant Christmas and a healthy happy new year to all my cyber friends. And a big thank you for all the support.
Love Jean. Xx
Dear Mari
Thanks for your good wishes. He still has the pain but it has eased a little. We are going to see consultant on Thursday. You are right about the constipation. When we went to the hospital the consultant gave him a script. Although still has pain he is much better form. Yes Mari the first son arrives tomorrow. We are both so looking forward to having all the boys home at same time and of course the wedding. I hope you and Steve have a wonderful Christmas and a healthier new year.
Love Jean xx
GLISTEN like the snow at Christmas
TEN next
Jean x
Dear Mavis and Dai
Thanks for your replies. It is reassuring reading your experience of this type of pain. It gives me hope. Frank still has the pain but he said it is a lot easier than Wednesday. It really scared me – I have never seen him in so much pain – and such a terrible colour. Dai as you say – sitting the wrong way. Frank has been like a man possessed getting house in order for Christmas and the wedding. I kept telling to stop and that me and the boys would do it – but you know what Men are like!!!!
Thanks for support and good wishes
Love Jean x
Hi Eve
Thanks for your good wishes. When frank was first diagnosed 5 years ago she did an MRI and she told us the about the crushed vertabrae. She said that she could tell from the scan that it was an old injury and could Frank remember any incident. He did and when she told him I also remember. It was on a cruise and he had a silly accident and spent the whole time in bed in agony with pain injections. But we will see what the new MRI shows (that is when the emergency MRI scan comes through!!!)
Love jean. x
First son and family arrive on Tuesday. Hope frank is feeling better by then
Hi Bridget and Sarah
I just love The Killing. Although I'm enjoying this series I think the first one was better. I record it so I can watch it in peace. I tried to watch it "live" and frank would talki and I would miss the sub titles and rewind – so in the end – just record and watch at my pace
Love Jean xx
Thank you all for your replies and good wishes. We are just in from hospital. Left here at 9am!! He got bloods taken a thorough examination by a doctor who looked about 14. He was thorough asked lots of questions (some Frank could not answer and I had to take over). He sent him for an X ray which took forever and the we went back and waited. Ages passed and someone put their head in and said computer link was down so hadn't got results. We waited for such a long time – if someone walked to X ray department for results it would have taken all of three minutes. Consultant came in and said X ray did not show anything but she was going to organise an emergency MRI on his spine as she suspected that pain is coming from a crushed vertebrae (which she said when frank was diagnosed has nothing to do with Myeloma). His original appointment with her was next Thursday and she still wants to see him.
So once again it is a waiting game.
Thanks again for your comfort and support it is so much appreciated.
Love Jean xxo
Dear Tom and Min
Thank you both for your replies
Tom thanks but I can't show Frank your reply – this hubby of mi e is a one off – he is such a private person – he doesn't discuss his illness with anyone. He's always FINE. when anyone asks him. Not even his sons and as far as I'm concerned it's like trying to get blood out of a stone getting info out of him. He knows about the forum but if he thought I was discussing him he would go ballistic. I think sometimes that I'm disloyal to him but I would go round the bend if I could not talk to my cyber friends. Maybe sometime I will show it to him. Thanks so much.
Min
Thank you for your good wishes. Two of my sons with their partners were up and I had a couple of G & T's but I might as well have drunk water. To be honest not sure I want to go to bed, just popped in and he's fast asleep – don't want to disturb him. He should know me by now – if I don't know what is wrong my imigination run riots. I think I'd rather face the truth than my thoughts. Thanks again for good wishes and I do appreciate the prayers. Will let you know the outcome. Thank you all again.
Love jean xx
Dear Jo and Bridget
Thanks for your replies. Frank is in bed and that is not like him. We were supposed to go out tonight for our sons birthday but that was cancelled. The boys are coming here but Frank has told me that he is not getting out of bed he feels so bad. I think this bloody disease has reared it's ugly head!! Thanks again it is such a comfort to be able to come on here to rant and get support.
Love Jean x
Hi Eve
We got in touch with Franks consultant when he was having the tooth problem and she pushed the whole thing through for him. Hope Slim hears soon.
Best to you
Love jean x
ALWAYS
Leaving AYS
Jean x