[jmsmythParticipant]

Hi Eve

I don’t know how I missed your post. I’m so sorry to hear about Slim, I know you don’t like gushiness (is that a word – must look at a scrabble dictionary). Just want you to know I’m thinking of you both and hope you get second opinion soon. Slim is a lucky man to have you fighting on his side.

Love and prayers to you both
Love Jean x

[jmsmythParticipant]

David what great news. Long May it stay there

Love Jean x

[jmsmythParticipant]

Hi Carol

Sounds like you are getting there. Hope you get home soon. Re the vaccinations. Frank had his SCT March last year and only started the re vacInation about 8 weeks ago. I kept asking consultant and her reply was “the jury’s out on that one”. Then On one visit she said she had informed our doctor to start the procedure. So far he’s had 3 sessions. Given leaflets on side affects that your child might have!!!! He’s has had no problems or reactions. Hope you get it sorted.
Best wishes
Jean

[jmsmythParticipant]

Trigger I forgot to mention after 100 days he had all tests including PET scan and is in complete remission

Jean

[jmsmythParticipant]

Hi Trigger

Sorry to hear bout your mum. Others will be along who have more experience than me but I will tell you of Frank. He had his STC in Match 2013 one month before his 70th birthday. It was no picnic but he got through it. He’s also like your mum “healthy”. With Frank it’s only now he is coming back to himself. Even though we still had holidays last year and he had real good days and some not so. Everyone is different, I think Tony bounced back quite soon. As for the length Tom had four years drug free remission. He has just relapsed and is going for another STC. Frank won’t be able to have another SCT. We are in Belfast and his consultant told him that cut off was 70. But she told him when he relapsed there are more and more drugs coming on line. There are quite a few on the forum who sis not opt for STC for one reason or another and are controlled by drugs. It is a big decision to make and others will be along who will be able to give you more info

My best wishes to your mum
Jean

[jmsmythParticipant]

Hi Carol

Frank has never had radiotherapy. She mentioned thyroid and I can remember her saying “none of my patients have ever had to have it removed “. Really don’t know what that means. I have some questions for her when I see her on Wednesday.

Carol I have been following your SCT journey and as you know things will get better. There is light at the end of the tunnel

I hope you are over the worse and you soon start to improve

Jean

[jmsmythParticipant]

Hi Vikki

Longg time no hear. So glad to hear that Colin is doing well. I have to say This past week is the best Frank has been since transplant last March. His form is good although consultant says there is something wrong with thyroid! she’s referring to some other consultant. His potassium is low as is vitamin D. Cannot take medication as it makes him ill. He has even taken an interest in looking for a holiday.

Hope you are well and tha Colin goes from strength to strength

Love Jean x

[jmsmythParticipant]

Hi Sarah

This is a very difficult decision to make and takes a massive lot of thinking. My husband was diagnosed in 2006 with smouldering myeloma. I taught at the local university and loved my job. Frank was smouldering and although, sounds funny, was healthy. He didn’t need me around all the time. But I couldn’t concentrate at work, he was always on my mind, I even found it difficult to go shopping without him. I thought for ages about leaving but then our funding dried up and our Unit was closing. We were all offered other positions but I decided this was an omen and I took early retirement. I don’t regret it, as Frank was uppermost in my mind. I stopped seeing friends, going out and my life revolved round Frank. I was offered a position teaching young adults with problems I T skills. I turned it down. Now I regret not keeping on some of my teaching. Frank had SCT in March 2013 and is slowly getting there. Speaking for myself, I need something that is mine and nothing to do with Myeloma and I’m thinking of taking on voluntry work. It is a difficult and personal decision to make but after 8 years I realise that I was too quick to make the decision

I hope your husband improves and my best wishes to you
Jean

[jmsmythParticipant]

Hi Dave

My husband (70 last April) renewed his licence and he said that “if you suffer from a condition that precludes you from driving …….” Myeloma does not fall into that category. He had no problem. He said thT it so Lu for 3 years

Best wishe
Jean

[jmsmythParticipant]

Hi Jo welcome back. Hope all is good with you

Love Jean x

[jmsmythParticipant]

San I’m so sorry to read of the passing of your beloved mum. My thoughts and prayers are with you and your family

Love Jean x

[jmsmythParticipant]

Hi Tom

Good luck on Monday and with such a positive attitude as yours, I hope the treatment goes well and you get a hell of a lot more than 4 years. Love to you and Elaine

Love Jean x

[jmsmythParticipant]

Carol when Frank started melphalan he also had a supply of ice lollies. After cells returned they supplied a mouth wash and he was for ever using it – he had no problems with his mouth

Good luck
Jean

[jmsmythParticipant]

Hi Chris

Sorry you had to join us, but welcome. June has given you good advice. My husband smouldered for 6 years. He went every month to consultant. Frank only thought of MM when his appointment came round. I think I worried about it more than he did. I hope you smoulder for Many many years. Ted will probably come along soon, he has been smouldering for a long time. Take caer
Jean a

[jmsmythParticipant]

Hey Tom vodka on you. No make that gin

Xx

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