[jmsmythParticipant]

Thanks Debs

I have been following your blog and hope that things are going well for you.

Love Jean

[jmsmythParticipant]

Thank you all. I hope to get to meet Madelyn the week after next. My other grand daughters are arriving from Kent on Thursday. So we will have a full house.

Min I hope your poor wee grand daughter gets better soon and that Peter is protected.

My best o you all. Love Jean xx

[jmsmythParticipant]

Yhank you all for your good wishes. I can't wait till I get over to see her. Nettie enjoy your first. They are precious.

Regards Jean xx

[jmsmythParticipant]

Thanks I am so excited anyone would think it was my first!!

Jean

[jmsmythParticipant]

Hi Ron

i really appreciate your quick reply. I was imagining all sorts of things – hacking into my bank account etc.

My mind is easy thanks again.

Regards Jean

[jmsmythParticipant]

Hi All

I gpt this email but I have been stupid – I replied to it, asking Andy what it was all about. Does anyone know or have an idea what happens -or is there anything I should do seeing that I answered. I am in the process of running a scan

Ta
Jean

[jmsmythParticipant]

Hi Hils

Never ever feel guilty. Everyone of this forum knows what your are going through. The only other thing that I can say – whicy was said to me when I joined the forum – Don' search the internet as a lot of the information is outdated and would scare the life out anyone. I get my info here and on the Myeloma Beacon. Your brother will find his own way – you just have to support him. I know this can be difficult as there are times that I want to scream at Frank, but he has a strong character and he deals with this illness his way. The same goes for your mum – she has to find a way to cope herself. We have 4 sons and they all deal with it differently.

I hope you are over the 'flu. As I carer I as well as Frank got the flu vacination.

Take care love Jean xx

[jmsmythParticipant]

Hi I am sorry to hear about your brother. But as has been said this is a fantastic site with lots of advice support. I think it is important to realize that every one deals with this awfull disease in their own way. When my hubby was diagnosed all the family were brought together and told that no one was to do any research . He said that if he needed any information he would get it off his consultant. This was not my way and for about two years I would research, find something – which I though important, tell Frank and then all h*ll would break loose. It was not a very happy time. I went to see a counsellor (organised by Macmillan) and this really helped me. I finally realised that this was his illness and he had to deal with it in his own way. (Even if I did not agree) It took some time (has not stopped me from asking questions on the forum and other places)but now I support what ever he wants to do. This works for us. We do not mention "Myeloma". We just go from apointment to appointment.

Do use this site as there is a mountain of advice, experience and support.

My best wishes too you and your brother.
Jean

[jmsmythParticipant]

Don't know about finding "Will" but your posts certainly made my "Giggle bag" come back. You lot are definatley raving lunatics!! But keep it up – I needed a good laugh and you all gave it to me.
Thanks
Jean x

[jmsmythParticipant]

Go for it Min!!

I took early retirement 2 years ago (2 years afer Frank was diagnosed) and I am loveing it. I thought in the beginning that we would get on each others nerves – but after a rocky start(nothing to do with me being at home – Franks attituded to this bl***y illness and mine were very different)but once we got that sorted it has been really good. We do a lot of things together that we did not have the time for before. We sit up late at night watching DVD's knowing that we can get up when we want. Good luck to you and Peter. I am sure you will have a ball.

Regards Jean

[jmsmythParticipant]

My thoughts are also with you Roz and your girls, especially on Friday.

God Bless
Love Jean xxxxx

[jmsmythParticipant]

Hi John

I am sorry that you have joined the site but You are in the right place. Welcome. As David says the people on this site are excellent. My husband was dignosed 4 years ago – (attended doctor for one thing and they found this bl**dy disease.) He was lucky it was found so early – he visits consultant every 2 months and they keep an eye on him. So far his bloods are within "range" – (not allowed to ask questions I get my answers here).

I hope all goes well with you
Best wishes Jean

[jmsmythParticipant]

Happy new year to you David and all my friends on the forum, We went out with two of our sons and wifes to clebrate 2011 coming in and had a really good time although Frank fund it a bit of a strain. I hope the new year brings us lots of hope and my thoughts are with all my forum friends who are going through treatment. Happy healthy new year to all.

Love Jean xx

[jmsmythParticipant]

Dear Jayne

I hope that by the time you read this you will have got through to the hospital and got an earlier appointment.

I know how you are feeling I went through all that you are going through (and I am sure that other carers did). At first I could not let Frank out of sight. For about 2 years I would not leave him to go out with friends (he still went out with his). I used to watch the soaps on TV in the other room but when he was diagnosed I lost interest in all of them and not watched one since. I even took up football (which I hated – now am avid Man U supporter). When I needed answers and needed to rant – I posted on the site and ALWAYS got help.

I agree that you have to take your cue from your hubby – I so wanted Frank to do what I thought was best for him – took me a long time to realise that this is his illness and he has to deal with it the way he needs to. Sometimes it is hard but I have to do what he wants.

Frank is not on treatment but he gets what he calls "Power failures" He would be talking to me – go quiet and when I look round he is sleeping!!

Sorry for going on but Jayne this is a brilliant site and there is always someone that can help. As I have said often this forum saved me from going loopy. I hope your get your earlier appointmen and it is ok to be scared but if you need to talk just post here.

My very best to you and your hubby.
Love Jean xx

[jmsmythParticipant]

Dear Amelie

As has been said this horrible disease is so individual. 4 years ago my husband was not feeling well. Run down – no back pain but doc thought might have infection in kidneys. After battery of blood tests Frank was sent to haematologist and after a marrow biopsy myeloma was diagnosed. A bolt out of he**. He has smouldering myeloma and after 2 years got terible back pain. We thought it was to do with the myeloma but after MRI scan consultant said there was something like a crushed vertbrae at the bottom of spine but she said that it was an old injury.

I wish you well with your speech.

Take care
Jean

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