[jmsmythParticipant]

Dear Min

It has all been said. Of course (we carers – hate that bl***y word) get angry. Frank and I have been living with this disease for over 4 years. We all handle it differently. I know you have been living with this longer than me. The Myeloma word is not mentioned in our house (unless Frank is feeling unwell) He lives from one appointment to another. Me – It is the first thing on my mind when I wake up and the last when I go to sleep. At the start I got so angry and I can admit it now I got angry with Frank for getting this awful disease. (does tha sound selfish?) We had real hum dinger rows and he would not speak to me for days. My help with this came from 2 under 50's patients on the forum. They savd my sanity and listened to my ranting. I can't say all is rosey in the garden as we still have rows but they are forgotten immediately. My release is I have a big board in the garage hat has been painted and when I get mad I go out a scrape the paint off like a mad women possessed.

Sorry for ranting bu I have just re-read this post and it is the first time that I have admitted that I was angry with Frank for getting this illness.

Go easy on yourself and the naughty step sounds a good idea – I have no chance of getting Frank on it.

Take care
Love Jean xx

[jmsmythParticipant]

Hi all

Thanks so much for all your kind words. Talk about sods law. Frank stopped anti biotic and runny tummy disappeared. He woke up this morning and said the tooth aches was feeling easier and he thinks the cold is breaking. He still has an awful cough. Wanted to get the doctor out but he said no – you don't get the doctor out for a cold. I think he will go to the dental hospital. He sees the consultant on Thursday and he will hold out until then. He is a law unto himslf, so I have to go along with him. We are home at last but it is so cold (our son says that our weather today is like summers day compared to last week). Just took a lemsip with honey and is about to have a hot toddy!

Thanks again for your good thoughts/.

Love Jean xx

[jmsmythParticipant]

Hi Gaye and Bridget

Things are no better. Frank now has the most horrible cough. We get into Southampton tomorrow (can't wait) dropped of at airport at about 10am but flight to Belfast is not to 4,00pm. Just want to get home. I think this has put me off holidaying for good.

Hope have better news when I get him home.
Love Jean xx

[jmsmythParticipant]

Gaye that gave me such a laugh. I just wasn't expecting the last 2 lines. Nice way to start the morning.

Love Jean

[jmsmythParticipant]

Hi David

Just want to say that I am thinking of you and wish you well. I think you are an inspiration to us all. I have followed your posts and I cannot remember reading a post that made me think that your were feeling down.

My very best wishes to you and look forward to reading more!

Love Jean xx

[jmsmythParticipant]

Yes understood. Very good. I have a cold and when I got to the end started to laugh, cough and choke!!! Thanks very much.

Love Jean

[jmsmythParticipant]

Hi Scott and welcome
My husband was diagnosed with Smouldering Myeloma on September 2006. His blood tests have been stable (or within range!!) Thank God he has not started treatment yet. This site has been a God send to me. If you have problems or any queries, someone on the site will be able to help you.

All the best
Jean

[jmsmythParticipant]

And me. Good luck and all the best.
Love Jean

[jmsmythParticipant]

You got the company you wanted!!

Jean

[jmsmythParticipant]

Must be me as well. Read it no problem.

Jean

[jmsmythParticipant]

Thanks Dai for that post. You have no idea how much it helped.

Love to you and your lovely wife
Jean

[jmsmythParticipant]

Great!! Heard something similar but that one was about passing wind!!!! I am terrible – I can never remember the punch line.

Keep them coming
Love Jean

[jmsmythParticipant]

Very good. Can't sleep so made me laugh. Any more?
Love Jean

[jmsmythParticipant]

Hi Roz

I go to see a counsellor (My mistake on my post I said consultant instead of counsellor. Couldn't rant to Frank's consultant – I think she would have me for dinner!!!).

When Frank was first diagnosed, I couldn't cope. I just went to pieces. We have a Cancer drop in center and they put me in touch with a counsellor. I went to see him for about 9 months. Felt better so stopped. Then about 2 years ago – the whole think hit me again. I don't know why but I went to pieces. Frank wont talk about his ilness so I had no outlet. I had great support from the forum expcially 2 of the youngsters (under 50's).

I got in touch with the counselling service again and I go and see Declan (the counsellor – he is great. I used to go every week and then I cut it down to once a week. I feel a lot better now. I phoned the Psychology department yesterday and told them I felt good and did not feel that I should continue. Declan phoned me this morning and said that anytime I needd him just to give a ring. I feel good knowing that I have a crutch that I can lean on.

Sorry Roz for going on but i can honestly say it is the best thing I ever did. Declan listens to me when I rant and rave – cry and get on like a lunatic. With out sounding dramatic, he saved my sanity! I think it is so good to talk to somone that does not know Frank and listens to what i say.

I really hope that soon you start to feel better, I know that horrible feeling of helplessness. Can Michael's consulant recommend someone for you?

Take care
Love Jean xx

[jmsmythParticipant]

Hi Roz

I also have been following your posts and like Mari am a carer for by husband Frank. I am always on my computer so if you want a wee yarn (talk) just post. But also like Mari I don't know about treatments. Frank has smouldering and is not on treatment. I get my info from all these lovely people on the forum. I have been in dark places in the past 4 years but I am fortunate that I see a lovely consultant (offered by the cancer unit) who allows me to rant and rave as much as I like.

My love and best wishes go to you and Michael.
Love Jean x

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