Joe

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Hi Dusk

    It was just a blood test really.

    I’d been feeling weak and tired for a couple of months and just thought it was probably viral so I did nothing. I got to the point where I couldn’t do anything but sleep once I got back from work and I couldn’t walk without feeling like I was going to collapse though and I finally decided I should see my…[Read more]

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Thanks Carol

    I will try to keep my eye on the prize and be as positive as I can, I manage it most of the time, I think today is just being a bit of a hard one for me.

    I’m encouraged by your experience and I’m definitely going to give it a go!

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Hi Michele and thank you for the welcome ๐Ÿ™‚

    I was 49 when I got the diagnosis too but I was 50 this week, which was good because every day is a bonus, but bad I guess as I am now disqualified from the under 50’s forum!

    It really did feel like the end for me when I found out but I’m having more and more days when I can cope with it. To be honest…[Read more]

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Hi Ann and thank you for the welcome ๐Ÿ™‚

    It is good to hear the positive stories about the SCT because the information I got in the initial consultation made me so scared about it that I was all for having nothing done at all and just letting the MM take it’s course.

    Both consultants said it was the bests thing to do but, for me, to go through…[Read more]

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Thanks for the tips Carol, I’m not looking forward to the SCT but it seems that I have not got much of a choice, so I’m really grateful for anything that will help me get through it!

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Hi Carol and thanks for posting.

    I hope the side effects don’t last much longer for you and the gamble pays offย  for both of us!

     

  • joe replied to the topic Hi there in the forum Newcomers 11 years, 2 months ago

    Thank you Pauline

    I see you posted about a month ago about your husbands progress following the SCT.

    I wonder how is he doing now and how things are improving for him?

  • joe started the topic Hi there in the forum Newcomers 11 years, 2 months ago

    I was diagnosed with Myeloma on 21st November last year and started the CTD the following day.

    I’m now about to start my 5th cycle and I’ve been for the preliminary advice to consider both the autologous and the donor transplant and, as I have no siblings, I’ve decided for the autologous.

    The whole thing came as a huge shock for me but I have…[Read more]

  • joe changed their profile picture 11 years, 2 months ago