Myeloma Forum | Joe | Activity https://forum.myeloma.org.uk/members/joe/activity/ Activity feed for Joe. Mon, 27 Apr 2026 02:56:55 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2d3c6e04850d18f26c0174d297e3336c Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112948 Fri, 14 Feb 2014 13:20:10 +0000 Hi Dusk

It was just a blood test really.

I’d been feeling weak and tired for a couple of months and just thought it was probably viral so I did nothing. I got to the point where I couldn’t do anything but sleep once I got back from work and I couldn’t walk without feeling like I was going to collapse though and I finally decided I should see my…[Read more]

]]> 73b6b9c193894b103256df475f35cc0c Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112947 Fri, 14 Feb 2014 13:08:58 +0000 Thanks Carol

I will try to keep my eye on the prize and be as positive as I can, I manage it most of the time, I think today is just being a bit of a hard one for me.

I’m encouraged by your experience and I’m definitely going to give it a go!

]]> 88ce89de9e8909306450dd58232346dd Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112946 Fri, 14 Feb 2014 13:05:36 +0000 Hi Michele and thank you for the welcome ๐Ÿ™‚

I was 49 when I got the diagnosis too but I was 50 this week, which was good because every day is a bonus, but bad I guess as I am now disqualified from the under 50’s forum!

It really did feel like the end for me when I found out but I’m having more and more days when I can cope with it. To be honest…[Read more]

]]> 661f6ea84e8ef8917f20f64367503c40 Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112918 Fri, 14 Feb 2014 09:16:29 +0000 Hi Ann and thank you for the welcome ๐Ÿ™‚

It is good to hear the positive stories about the SCT because the information I got in the initial consultation made me so scared about it that I was all for having nothing done at all and just letting the MM take it’s course.

Both consultants said it was the bests thing to do but, for me, to go through…[Read more]

]]> 5a2f487e1dd316d97bacd7cdc6482bea Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112911 Thu, 13 Feb 2014 19:23:36 +0000 Thanks for the tips Carol, I’m not looking forward to the SCT but it seems that I have not got much of a choice, so I’m really grateful for anything that will help me get through it!

]]> abc71a8d08b46d33b74b609d94dbbfa1 Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112910 Thu, 13 Feb 2014 19:20:43 +0000 Hi Carol and thanks for posting.

I hope the side effects don’t last much longer for you and the gamble pays offย  for both of us!

 

]]> c107450d61e4fe0ccc3a68c0db707ac4 Joe replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/#post-112881 Thu, 13 Feb 2014 15:22:24 +0000 Thank you Pauline

I see you posted about a month ago about your husbands progress following the SCT.

I wonder how is he doing now and how things are improving for him?

]]> dfcddf93bbc1c240fd36f8ed9a4dbd8a Joe started the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/ Thu, 13 Feb 2014 13:19:27 +0000 I was diagnosed with Myeloma on 21st November last year and started the CTD the following day.

I’m now about to start my 5th cycle and I’ve been for the preliminary advice to consider both the autologous and the donor transplant and, as I have no siblings, I’ve decided for the autologous.

The whole thing came as a huge shock for me but I have…[Read more]

]]> a22e12d1069bcd981b3bd164d3854fb1 joe changed their profile picture https://forum.myeloma.org.uk/activity/p/1125/ Thu, 13 Feb 2014 12:33:07 +0000 0