[joeParticipant]

Hi Dusk

It was just a blood test really.

I’d been feeling weak and tired for a couple of months and just thought it was probably viral so I did nothing. I got to the point where I couldn’t do anything but sleep once I got back from work and I couldn’t walk without feeling like I was going to collapse though and I finally decided I should see my GP who sent me for a blood test

Two days later he rang me at work and told me to go  to hospital right away and they told me there and then I had Myeloma although I did find it very hard to take in.

They did the bonemarrow  biopsy thing the next day but started CTD anyway as the result wouldn’t be back for a few days from Sheffield and they didn’t want to wait for it as they were sure already what it was.

I’d also suffered kidney damage and bone lesions and so as soon as the kidney function was back I started on the Zometa too.

I have decided to go with the SCT though, and both consultants think I ought to do it as soon as I can so I’m taking their advice and hoping for the best!

[joeParticipant]

Thanks Carol

I will try to keep my eye on the prize and be as positive as I can, I manage it most of the time, I think today is just being a bit of a hard one for me.

I’m encouraged by your experience and I’m definitely going to give it a go!

[joeParticipant]

Hi Michele and thank you for the welcome 🙂

I was 49 when I got the diagnosis too but I was 50 this week, which was good because every day is a bonus, but bad I guess as I am now disqualified from the under 50’s forum!

It really did feel like the end for me when I found out but I’m having more and more days when I can cope with it. To be honest going back to work has set me back psychologically but I had no real choice as I don’t get sick pay and I’m going to probably need lots of time off after the SCT.

I think being able to make plans and set goals will be a real help, at the moment I’m too uncertain of the future to be able to do that but I’m hoping that once I know how the SCT helps I’ll be able to do that too.

I’m being treated in Doncaster and Sheffield and I have to say the support from staff is amazing.

Thanks again

[joeParticipant]

Hi Ann and thank you for the welcome 🙂

It is good to hear the positive stories about the SCT because the information I got in the initial consultation made me so scared about it that I was all for having nothing done at all and just letting the MM take it’s course.

Both consultants said it was the bests thing to do but, for me, to go through all of that for what they estimated was likely to be 2 to 3 years benefit seemed not worthwhile.

As I said though I ham having counselling, got the support of my wife and I’m feeling more positive most of the time!

 

[joeParticipant]

Thanks for the tips Carol, I’m not looking forward to the SCT but it seems that I have not got much of a choice, so I’m really grateful for anything that will help me get through it!

[joeParticipant]

Hi Carol and thanks for posting.

I hope the side effects don’t last much longer for you and the gamble pays off  for both of us!

 

[joeParticipant]

Thank you Pauline

I see you posted about a month ago about your husbands progress following the SCT.

I wonder how is he doing now and how things are improving for him?

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