john-b replied to the topic All too fast! in the forum Newcomers 10 years, 7 months ago
Hello Sarah,
I am 71 next week and had my SCT on the 25th June. I was told to expect to be in hospital for 3/4 weeks and was out in 2 weeks and 1 day. As Rebecca has mentioned it is difficult to prevent your mind getting the better of you and feeling low. I was fortunate apart from the incessant jog to the loo and a slight infection cleared up by…[Read more]
john-b replied to the topic MGUS and smouldering myeloma; how does it come to light? in the forum Newcomers 11 years ago
Hi Julie,
6 years ago I was having blood tests prior to having a knee replacement when it was discovered I had MGUS. I’ve been told I may have had it for years before without knowing. I was monitored every 6 weeks, then 8 weeks and then 3 months until last July I received the news that it had turned into Myeloma. Fortunately I did not have any…[Read more]
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Hi Carol,
Thanks for the info. It appears there is a little time between the end of CTD and start of SCT. I already have a house cleaner to cut down on my workload.
Both my parents were Londoners and moved to Lancashire before I was born, which is where I live. The hospital with the SCT facility is based in Blackpool.
You are now day+12 and I…[Read more]
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Hi Tony,
Thanks for the info.
I will speak to the Macmillan nurse as you suggested. My daughter has emigrated to Australia and I am keen to get down under to see her. The time away from home will be a good guide to how my wife can cope as it is doubtful she could make the trip to Perth.
John
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Hi Carol, Tony etc.
How long from finishing your initial cycles to starting the STC. My wife is disabled and unable to do little else other than make an odd snack and I need to plan ahead to enable her to cope whilst I undergo STC. The recovery time afterwards also seems to vary and I am wondering how long it will be before I am able to…[Read more]
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Thanks Tony
Enjoy your trip to the US
John
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Thanks for your reply Carol. I am leaning towards STC myself and also have family in Perth I wish to visit.
Hope your treatment progresses well .
John
john-b replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Sorry for the typos. I shall rewrite tomorrow to make it clearer.
John B
john-b started the topic Final cycle, if all goes well, what are the options? in the forum Newcomers 11 years ago
Hello all,
In 2007 as a result of a blood test for a knee joint replacement a blood condition known as Monoclonal Gammopathy of Undetermined Significance (MGUS) was found that could eventually lead to Myeloma.In June last year I was informed that the time had arrived and was offered the opportunity to go on the Myeloma XI trial which I opted to…[Read more]