Myeloma Forum | John-B | Activity https://forum.myeloma.org.uk/members/john-b/activity/ Activity feed for John-B. Mon, 20 Apr 2026 03:25:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 ed9768a0d26070a5872f4abc46170e92 John-B replied to the topic All too fast! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/all-too-fast/#post-117043 Thu, 24 Jul 2014 17:51:18 +0100 Hello Sarah,

I am 71 next week and had my SCT on the 25th June. I was told to expect to be in hospital for 3/4 weeks and was out in 2 weeks and 1 day. As Rebecca has mentioned it is difficult to prevent your mind getting the better of you and feeling low. I was fortunate apart from the incessant jog to the loo and a slight infection cleared up by…[Read more]

]]> d0425e324edb7a1268235117e21217c2 John-B replied to the topic MGUS and smouldering myeloma; how does it come to light? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mgus-and-smouldering-myeloma-how-does-it-come-to-light/#post-112989 Sun, 16 Feb 2014 20:42:30 +0000 Hi Julie,

6 years ago I was having blood tests prior to having a knee replacement when it was discovered I had MGUS. I’ve been told I may have had it for years before without knowing. I was monitored every 6 weeks, then 8 weeks and then 3 months until last July I received the news that it had turned into Myeloma. Fortunately I did not have any…[Read more]

]]> 782bc505c149f0ccd7aefc757330b649 John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112456 Mon, 03 Feb 2014 12:26:20 +0000 Hi Carol,

Thanks for the info. It appears there is a little time between the end of CTD and start of SCT. I already have a house cleaner to cut down on my workload.

Both my parents were Londoners and moved to Lancashire before I was born, which is where I live. The hospital with the SCT facility is based in Blackpool.

You are now day+12 and I…[Read more]

]]> 2f07145614d68ca551f394e4625a912c John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112455 Mon, 03 Feb 2014 12:18:14 +0000 Hi Tony,

Thanks for the info.

I will speak to the Macmillan nurse as you suggested. My daughter has emigrated to Australia and I am keen to get down under to see her. The time away from home will be a good guide to how my wife can cope as it is doubtful she could make the trip to Perth.

John

]]> 033e6ec59ab11a6af44e088ec5747911 John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112430 Sun, 02 Feb 2014 14:17:01 +0000 Hi Carol, Tony etc.

How long from finishing your initial cycles to starting the STC. My wife is disabled and unable to do little else other than make an odd snack and I need to plan ahead to enable her to cope whilst I undergo STC. The recovery time afterwards also seems to vary and I am wondering how long it will be before I am able to…[Read more]

]]> 09d2019893b32042e88f94dc04d46760 John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112418 Sun, 02 Feb 2014 11:16:31 +0000 Thanks Tony

Enjoy your trip to the US

John

]]> a0ab3fd82f07fdb06b7f2651bc5a9aa6 John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112359 Sat, 01 Feb 2014 08:17:56 +0000 Thanks for your reply Carol. I am leaning towards STC myself and also have family in Perth I wish to visit.

Hope your treatment progresses well .

John

]]> 47281c5bd0f79db9a2ba7ce7b4098cef John-B replied to the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/#post-112354 Fri, 31 Jan 2014 21:02:59 +0000 Sorry for the typos. I shall rewrite tomorrow to make it clearer.

John B

]]> e9a7be5299a829e28a1977c5291e6914 John-B started the topic Final cycle, if all goes well, what are the options? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/final-cycle-if-all-goes-well-what-are-the-options/ Fri, 31 Jan 2014 20:57:11 +0000  

Hello all,
In 2007 as a result of a blood test for a knee joint replacement a blood condition known as Monoclonal Gammopathy of Undetermined Significance (MGUS) was found that could eventually lead to Myeloma.In June last year I was informed that the time had arrived and was offered the opportunity to go on the Myeloma XI trial which I opted to…[Read more]

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