Myeloma Forum | john | Activity https://forum.myeloma.org.uk/members/johnandjunediamond/activity/ Activity feed for john. Thu, 23 Apr 2026 23:17:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 91f5046b62466cc0a705086855bedbce john replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117883 Mon, 01 Sep 2014 20:24:51 +0100 oh eve,i am so sorry my thoughts are with you, it’s so hard to understand this existance and it’s ceasless attacks on our sanity,the coming mths will be testing as each emotion is trialed to extreme, but i know you are strong and slim wouldnt wish you sadness. take your time love ok!

]]> d7a13275a36e0ff2c9ba27e8bbf45c99 john replied to the topic Life in all its fulness in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/life-in-all-its-fulness/#post-116946 Tue, 22 Jul 2014 09:30:17 +0100 sorry to here your sad news sarah,
my thought’s and wishe’s for the day’s ahead, the strength will come.
best regard’s,john.

]]> cbc7a58529968bcc89707d737bb45fb3 john replied to the topic OK so this is a bit scary now in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/ok-so-this-is-a-bit-scary-now/#post-116498 Wed, 09 Jul 2014 06:50:51 +0100 dont worry pat, all will work itself out you concentrate on yourself and stay well!
you could also write down the basics in plain english…..like washing machine settings,
oven setting’s/ basic cooking instructions like potato’s and veg instructions and time’s.
we men all claim to know nothing ( but that’s idolitas )it’s amazing what we pick up…[Read more]

]]> 603a80ce8dffa5c85e7a71f30bc3cb7e john replied to the topic ALAmyloidosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/alamyloidosis/#post-114012 Wed, 26 Mar 2014 08:42:33 +0000 hello anita,
amyloidosis is a very rare desease,and you may feel a little isolated in regard’s to
reply’s to your question’s.
there is a ( amyloidosis support group uk ) you could search but it is not as up to date
as it should be, but again down to the rarety of this desease.
however if you scroll part way down the page you will find a short…[Read more]

]]> 75b9723d545279819565663141a8a7eb john replied to the topic Hi there in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hi-there/page/2/#post-112956 Fri, 14 Feb 2014 17:12:05 +0000 hi joe.
must be a donny lad by the sound’s of thing’s,
let the doctors worry about the bone stuff joe,meanwhile do all you can to protect and care for your kidney’s,plenty of water……doncaster are not that good at giving out info,but press them for regular printed info such as blood result’s,and do try to write down any verbal info you get,a…[Read more]

]]> dcd3f8eddc7612e76d18cec07a7bc2f6 johnandjunediamond changed their profile picture https://forum.myeloma.org.uk/activity/p/1072/ Mon, 10 Feb 2014 12:11:58 +0000 0 f7b0862b695678de8254c7b24b2e4569 john replied to the topic waiting in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-2/#post-112715 Mon, 10 Feb 2014 11:44:59 +0000 welcome wendy,
as richard rightly said,it’s not the time to panic,you need to consider what question’s you might need an answer to when you meet your consultant,
ask about your liver & kidney function and anything else on your mind
write them clearly in order and dont allow yourself to forget to ask them all…most can be answered by thier…[Read more]

]]> 550d20810d3c694f31b6bfa8a1c95b00 john replied to the topic Anyone else with IgM Myeloma? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/anyone-else-with-igm-myeloma/#post-112577 Thu, 06 Feb 2014 16:22:05 +0000 welcome nikki & kev,
sorry but im cluless ref:- IGM myeloma so cant help you there,you will find that you will get less reply’s when you have a rare & or complicated form of the desease or related condition,please dont be offended it’s just that people tend not to reply if they feel they cannot directly contribute in a positive way.
but you will…[Read more]

]]> 1353b2087ff95a52e1a60e663a1fa79d june replied to the topic Mums struggle in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/mums-struggle/#post-112089 Sat, 18 Jan 2014 11:42:07 +0000 my thought’s are with you san,……sorry for your loss.

]]> 61e914759318bafa2d9a7e3e3366057d june replied to the topic new one in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-one/#post-112018 Thu, 16 Jan 2014 11:12:03 +0000 hi,chris.
basicly what that mean’s is that you carry the desease,if you are very lucky it
may never evolve into mm.
if not then you at least have the advantage of being in the best possible position to gain quick control,for the time being try not to get too obsessed with it….but do please read thru the forum ( including the tv/video section…[Read more]

]]>