jollyjosh

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  • #133395

    jollyjosh
    Participant

    Hello Dawn,

    I am replying on my wife behalf. Sue was diagnosed in Sep 2016 with non secretory myeloma. The treatment was 4 cycles of VTD with weekly injections. The visual side effects were minimal with no hair loss, just hunger pains after the injection. Sue was also given Zometa on a monthly basis again no real problems.

    Sue returned home a couple of weeks ago after having having a stem cell transplant and is now recovering at home, a couple of hospital visits for high temps but nothing major.

    Sue was fortunate enough to speak to a lady through this website on treatment and the SCT process which was excellent and very helpful, not sure if you know about this help.

    The process is long but keep positive and strong, you will get through this.

    Yours Gary

     

    #132047

    jollyjosh
    Participant

    Hello, i am writing on behalf of my wife who was diagnosed in sep last year. She had four breaks in her back, pelvis and sternum breaks also.

    What i would advise is take the information in slowly or you may feel bombarded, if you are able to attend clinic appointments with your dad then do so. In our experience the whole set up of the medical team are very receptive to any questions you may have.

    Being very organised is key, add all info and appointments onto a calendar then nothing is missed. be prepared with all your questions in a book and take notes on the answers given. The specialist nurses are excellent for all your concerns/questions.

    Another good piece of advice is be careful of GOOGLE, some of the information is not that positive, use sites like this one and macmillan for clear concise information.

    On a positive note my wife is now on cycle four of her chemo and doing well, she has one injection per week of velcade with little or no side effects. The next step is stem cell treatment for her, a little worrying but a means to an end.

    The info and downloads from this site are excellent, also the macmillan booklets are really good reading.

    Hope this helps you and your family, take care and good luck.

Viewing 2 posts - 1 through 2 (of 2 total)