jollyroger

  • Hi Carol and everyone

    My mum is on revlimid. She's just started her 3rd cycle. Doctors are please with her progress and are estimating 6 cycles.
    Reading your posts have made me feel so encouraged.
    Everytime she has a consultant visit I feel sick to my stomach with worry but reading about your progress has taken that away.

    Thank you x

  • Hi

    My mum, Ada, is 65. They haven't said what type she has but the first blood test showed high protein so it might be heavy chain. She just had her first dose of meds. 34 in one go!
    She has been put on the myeloma XI trial and her meds are lenalidomide(revlimid) , cyclophoshmide and dexamenthasome (RCD).
    Readiing chrissies post I'm scared…[Read more]

  • Thank you guys. At night I feel worse. Can't sleep. I have a brother and sister but we all live at different corners of the country so none of us are close to mum.
    I will stay on this site, read people stories and share.
    This morning, the calcium count has lowered so already a step forward.

  • Well as its 3am so technically a new day, I guess she was diagnosed wednesday and was admited yesterday. I drove 200 miles to be with her. She's in shock I think.
    I keep thinking what am I supposed to do. Like manage everything. Then the other side of me thinks this is silly. Mum can't have cancer. Its ridiculous. She's fine.
    I feel like I'm on…[Read more]