Myeloma Forum | jollyroger | Activity https://forum.myeloma.org.uk/members/jollyroger/activity/ Activity feed for jollyroger. Tue, 21 Apr 2026 17:01:09 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 0230d7b794fc097d3dccc9d1e9c703da jollyroger replied to the topic Myeloma 11 trial (Revlimid) in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-11-trial-revlimid/page/2/#post-97890 Sat, 06 Aug 2011 06:09:47 +0100 Hi Carol and everyone

My mum is on revlimid. She's just started her 3rd cycle. Doctors are please with her progress and are estimating 6 cycles.
Reading your posts have made me feel so encouraged.
Everytime she has a consultant visit I feel sick to my stomach with worry but reading about your progress has taken that away.

Thank you x

]]> 1a44d1581d7c97d1bedf7a384bac40bf jollyroger replied to the topic mum diagnosed yesterday! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-diagnosed-yesterday#post-84712 Fri, 10 Jun 2011 19:44:03 +0100 Hi

My mum, Ada, is 65. They haven't said what type she has but the first blood test showed high protein so it might be heavy chain. She just had her first dose of meds. 34 in one go!
She has been put on the myeloma XI trial and her meds are lenalidomide(revlimid) , cyclophoshmide and dexamenthasome (RCD).
Readiing chrissies post I'm scared…[Read more]

]]> d978d9a4933bc0046af20f2e7dcdcf44 jollyroger replied to the topic mum diagnosed yesterday! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-diagnosed-yesterday#post-84704 Fri, 10 Jun 2011 12:21:40 +0100 Thank you guys. At night I feel worse. Can't sleep. I have a brother and sister but we all live at different corners of the country so none of us are close to mum.
I will stay on this site, read people stories and share.
This morning, the calcium count has lowered so already a step forward.

]]> 4358c3ccede34cff2b61181f3b89b125 jollyroger started the topic mum diagnosed yesterday!. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-diagnosed-yesterday Fri, 10 Jun 2011 03:08:04 +0100 Well as its 3am so technically a new day, I guess she was diagnosed wednesday and was admited yesterday. I drove 200 miles to be with her. She's in shock I think.
I keep thinking what am I supposed to do. Like manage everything. Then the other side of me thinks this is silly. Mum can't have cancer. Its ridiculous. She's fine.
I feel like I'm on…[Read more]

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