Thanks for the constructive replies received. I will make contact with those who have so kindly given me their numbers shortly. Things are a bit pressurised here as my husband has had shingles over Christmas and it has set him back. He also has eating problems and has been fed via a nasogastric tube for several months, which I manage. We are trying to get him back to proper eating so that the tube can be removed, using frequent tiny meals and so now i know what a mother bird feels like, stuffing food into her chick every ten minutes or so. His weight dropped to 44kg at one point but he now weighs in at a massive 57kg (just under 9st in old money). Not much for a 6ft man, but it represents a lot of progress from the low point of last summer.
your suggestions about changing consultant were very helpful. Unfortunately we live in rural North Wales, so getting to London on a regulare basis is not an option. I will speak to the GP and ask his advice. Its great to have access to this forum, it makes one feel less alone.
Kindest regards
Jonny
