Myeloma Forum | jono | Activity https://forum.myeloma.org.uk/members/jono/activity/ Activity feed for jono. Tue, 21 Apr 2026 07:33:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 394701ceb58445e374b2c420cf37a2f1 jono replied to the topic Mum starts SCT..... your thoughts please in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-starts-sct-your-thoughts-please/#post-124522 Tue, 06 Oct 2015 04:10:30 +0100 I was able to take my own quilt and pillow that made a difference

]]> 2dacff3c8c727170e8828649a12684c8 jono replied to the topic Myeloma X1 maintenance in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance-2/#post-121893 Thu, 23 Apr 2015 11:59:48 +0100 Hi it is after day 100 that I started maintenance I am only on cycle one. I have picked up an infection of some sort. I ended up in hospital for four days. At first I put it down to the drug but now I am not so sure.

]]> 19a609c60c6d6f85b5f4983154250bae jono replied to the topic Myeloma X1 maintenance in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance-2/#post-121548 Sun, 05 Apr 2015 06:53:44 +0100 Hi susie

I have just started maintenance therapy the thing that swayed me is that on the trial you are more closely monitored whether I was selected to have lenolidamide or no drugs. Also you can opt out anytime you want.

I was selected to be on the treatment it is a lower dose than I was on before with no problems so far also I hope my…[Read more]

]]> 23e7764d3400383664d9800f55553741 jono replied to the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/#post-121155 Fri, 06 Mar 2015 08:59:52 +0000 WD keep up the good work you will be home before you know it I am around day 100 now

All the best jono…

]]> f7d2051b3e6815e69ae6d269c624c60a jono replied to the topic Travel Insurance in the forum Under 50s http://www.myeloma.org.uk/forums/topic/travel-insurance-4/#post-119586 Thu, 20 Nov 2014 14:19:33 +0000 Hi matt I am 47 having my SCT at the moment . I am sure there is an insurance company connected with this site. If not McMillan will be able to point you in the right direction.

Jono

]]> 367e4d114a9a0ee20d3d31a21f1c010f jono replied to the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/#post-119100 Sat, 25 Oct 2014 20:43:05 +0100 Hi Nick

I had one weeks worth of radiotherapy on my collapsed l3 pain has reduced greatly I am on the x1 trial at the end of the low dose chemo part just before SCT stage. One peace of advice is at the moment stick to this web site and forum. As info on the internet is outdated and sometimes completely wrong

Jono

]]> af913521434df984c16cdd51f07bf298 jono changed their profile picture https://forum.myeloma.org.uk/activity/p/28273/ Thu, 25 Sep 2014 19:28:49 +0100 0 d73ce15ff104723004aa6316b8a02c1a jono replied to the topic Help needed! in the forum General http://www.myeloma.org.uk/forums/topic/help-needed-2/#post-118347 Thu, 25 Sep 2014 19:26:20 +0100 Done

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