Hi Dan, I was diagnosed with extreamly aggressive high risk Myeloma last year aged 41.
When diagnosed my kidneys were working at less than 15%, my bone marrow biopsy showed 90% cancer cells.
I had 6 rounds of VDT chemo regime and had my stem cell transplant in January.
I was told at my last consultation that upon diagnosis my numbers were at 390,its now at 1.1 normal range is 1!
So for now i am in “remission”.
I am well aware that my cancer is aggressive and it will return.
My team wanted me to have a donor transplant “for a better chance”, i refused.
They then wanted me to undergo a tandem transplant, i refused that also.
I decided that I wanted to give my own stem cell transplant a chance to work.
So far so good.
I wish you all the very best in your Myeloma Journey. Please don’t Google your prognosis, stick to Myeloma uk for the real facts.
Kind wishes, Judith x
