Dear Carol

Sorry for delay in replying to you and it’s good to know I’m not the only one with light chain myeloma.  When I first told I had it (5 months ago) I was looking for pretty little lights in my urine!  Doh.

I’ve responded well so far and after my bone marrow biopsy reply will be on the list for a stem cell transplant so things are m…[Read more]

Dear Eve

It’s taken me a while to get back on this site but just to let you know that I’m not at all possessive about my posts!  Everyone seems to be so positive about the ‘roller coaster ride’ that we’re all on.  I’m a very positive person and just biting the bullet and getting on with it all.  I’ve had good news and have responded well to the…[Read more]

Hello Wendy

CCRD involves IV chemo twice a week for  3 weeks in each monthly cycle with a drug called carfilzomib.  Together with Lenalidomide and steroids.  Quite a cocktail but sadly not the sort I would rather have!  After 4 cycles I have responded well and, like you, will have a stem cell transplant in due course.  Good luck with your treatment Wendy.