Myeloma Forum | Judy2 | Activity https://forum.myeloma.org.uk/members/judy2/activity/ Activity feed for Judy2. Mon, 13 Apr 2026 06:40:58 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 83ebc9a78d3fdd317b6d995222a4ae84 Judy2 replied to the topic Lambda light chain MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/lambda-light-chain-mm/#post-117430 Tue, 05 Aug 2014 09:41:46 +0100 Dear Carol

Sorry for delay in replying to you and it’s good to know I’m not the only one with light chain myeloma.  When I first told I had it (5 months ago) I was looking for pretty little lights in my urine!  Doh.

I’ve responded well so far and after my bone marrow biopsy reply will be on the list for a stem cell transplant so things are m…[Read more]

]]> d6b894e05b31f659ac4e9926ea2a49ec Judy2 replied to the topic Lambda light chain MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/lambda-light-chain-mm/#post-117429 Tue, 05 Aug 2014 09:37:38 +0100 Dear Eve

It’s taken me a while to get back on this site but just to let you know that I’m not at all possessive about my posts!  Everyone seems to be so positive about the ‘roller coaster ride’ that we’re all on.  I’m a very positive person and just biting the bullet and getting on with it all.  I’ve had good news and have responded well to the…[Read more]

]]> 5a23fdf86513b593e826bd6cadfa25a0 Judy2 replied to the topic Lambda light chain MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/lambda-light-chain-mm/#post-117047 Thu, 24 Jul 2014 21:05:32 +0100 Hello Wendy

CCRD involves IV chemo twice a week for  3 weeks in each monthly cycle with a drug called carfilzomib.  Together with Lenalidomide and steroids.  Quite a cocktail but sadly not the sort I would rather have!  After 4 cycles I have responded well and, like you, will have a stem cell transplant in due course.  Good luck with your treatment Wendy.

]]> 27a1a54a5217ab31f6bd2216a8ec40be Judy2 started the topic Lambda light chain MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/lambda-light-chain-mm/ Wed, 16 Jul 2014 13:41:46 +0100 I have recently been diagnosed with lambda light chain MM.  I am on a clinical trial CCRD – anyone else on this trial?

]]> 2da0e6c854aaacbce93ad28ca5bcdae4 judy2 posted an update: Hello. I was diagnosed with lambda light chain myeloma in […] https://forum.myeloma.org.uk/activity/p/2491/ Fri, 23 May 2014 21:13:53 +0100 Hello. I was diagnosed with lambda light chain myeloma in February and elected to go on clinical trial XI. I was randomly chosen to trial Carfilzomib, lenalidomide, cyclophosphamide and dexamethasone. I have only had two cycles both of which had to be halted as blood tests showed that my liver was not happy! Has anyone else had the same…[Read more]

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