thank you for taking the time to share your experiences it’s really useful to have your honest opinions & personal experiences. The info in the fact sheets doesn’t really cover the carer at all & yet there is an expectation that you will be there to do it :- my real concerns as to what if you can’t not won’t but can’t…[Read more]

thank you for the pointers unfortunately we do not yet qualify for help (Marks pay has to drop). In our area we have a Force centre with a CAB adviser in situ 2 days a week who has been a great help & has looked at the small print as they say. We have used savings to purchase a wheel chair, an adjustable bed & create level access to our…[Read more]

i have a similar conundrum with 3 children to add into the mix. My husband Mark diagnoses came after 3 months of debilitating back pain . It took a further 6 weeks post diagnoses to get the pain under control. We are rapidly approaching the end of induction chemo and the Dr is suggesting SCT despite poor cytogenetic results. Our problem is…[Read more]