Hello Ann

Our bed should be arriving sometime tomorrow, steve’s dad is coming up to wait for it, because we are at hospital. Whilst the downstairs bed solves the transportation issues, it does mean that ‘sponge down washes’ are the order of the day for the foreseeable, not forgetting the commode duties also! Steve may not feel as isolated if he…[Read more]

Hi Ann

Just a quick update, still a bit of a waiting game but at least we are in the system now. MRI scan on Tuesday, bone marrow biopsy on 28th June, then back for all results and hopefully a plan on 6th July, Steve is really not well at all at the moment, pain, fatigue and nausea. Ambulance crew have asked me to put a bed downstairs as it was…[Read more]

Thank you Ann for your lovely post and kind words. I will Let you know how we go on at our appointment tomorrow.  Been waiting for it for what seems an age, and now it is nearly here, I am terrified.

Hope Terry is doing well.

love and little squeezes to you both!

Julia

x

Hiya Ann,

I do look forward to writing and receiving our posts. X

Hey, who needs DIY SOS if you’ve got a Stanley knife!

Well another day over, just going through the motions, bit of cleaning, washing etc. Steves dad has been here most of the day today, which is tough on him, but he likes to come.

The macmillan lady has given Steve some…[Read more]

Hello Ann

So pleased Terry’s treatment is going well, hopefully Steve’s will be moving soon, he has been uncomfortable today with sciatica type pain.

Your days sound busy, mine are a bit strange really, not working, can’t even walk the dog unless there is someone to watch Steve, and certainly no goats to look after! But as for ‘mucking out…[Read more]

Hello Ann, I’m burning the midnight oil again. So pleased to hear that Terry has managed a walk today, things we all take for granted eh?

Yes, gout….well, our gp diagnosed Steves gout over the phone, as we couldn’t get an appointment!  He had a wicked time with pain in his feet, which they then said was tendonitis. Spent a small fortune on…[Read more]

Hi Ann, yes I find myself staying up late, or being unable to sleep just now, understandibly so, I guess.

As for your chair, I have saved a leaflet on one of those electric rise chairs, which fell out of the radio times! OMG….

Looking back I think Steve has had this for a number of years, as he had repeated attacks of gout going back at least…[Read more]

Hi Ann, hope you are both ok. how is Terry doing? We are still playing the waiting game, but trying to keep our spirits up, despite having to get Steve a commode……you can imagine his reaction to that! But needs must just now!

Take care

Julia x

Hello Ann,

yes, we have had some blustery wild weather too, bit better today though. So pleased that things are moving for you. Have they said if Terry’s mobility will improve as his treatment progresses, so that he can lie down? As you say what a weird condition it is, very personalised to the individual it seems love.

prior to diagnosis on 2nd…[Read more]

Hello Ann,  Thank you so much for replying, it really does mean so much. My husbands pain is sort of under control, but his mobility is very bad, has not been downstairs for 4 days, as he feels too wobbly to tackle our very steep narrow stairs.

He finds it almost impossible to sit down in comfort, so he either stands with a stick, perches, or…[Read more]

Hi derbyshirelass, you are in my neck of the woods (Yorkshire)…thank you for your kind positive words, we have got our first appointment on 16th June, so hopefully things will get moving after that and we won’t feel so isolated as we do now….too much thinking is not a good thing is it?

best wishes to you and your husband, please keep in touch.

hi, my husband has just been diagnosed 3 days ago, after suffering increasing back pain since January. Just in that awful period waiting for the ball to start rolling. Would welcome any support or advice please, I am so scared, can’t eat or sleep.