Myeloma Forum | Julie H | Activity https://forum.myeloma.org.uk/members/julieh/activity/ Activity feed for Julie H. Wed, 08 Apr 2026 13:49:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 395890aa07614d71852eef43135741e7 Julie H replied to the topic Update on Mum which might be of interest in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-on-mum-which-might-be-of-interest/#post-117318 Wed, 30 Jul 2014 10:26:29 +0100 Dear Jill and all,

So sorry to bring bad news to the forum but I wanted to let you all know that my 77 year old Mum passed away last week, after a brave 6.5 year battle with myeloma.  I think, for her it was too late for the pomolidamide as she was deteriorating fast. I cannot say enough praise about the care my Mum received on the NHS, both in…[Read more]

]]> d19e1ddea51f6bbb2a4b9083d3496c83 Julie H replied to the topic Update on Mum which might be of interest in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-on-mum-which-might-be-of-interest/#post-116137 Sun, 22 Jun 2014 21:02:06 +0100 Hi Jill

Thanks for the update and I am really pleased to hear your Mum is doing well on CDT again.

We have had a very challenging few weeks with my Mum (aged 77 now and going into her 7th year with the disease). The Velcade was not working and giving her nasty side-effects. She’s in hospital again at the moment and they have very recently put he…[Read more]

]]> 38fdbc9784b9a8d67977dfd41336dece Julie H replied to the topic MGUS and smouldering myeloma; how does it come to light? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mgus-and-smouldering-myeloma-how-does-it-come-to-light/#post-113392 Sat, 01 Mar 2014 23:17:06 +0000 Hello Graham and Laura

Thank you for your responses.

Graham – sorry to hear about your kidney cancer, wonderful that you managed to beat that. I hope you also will not need treatment for the myeloma any time soon.

I know what you mean about screening tests that may blight people’s lives but an alternative philosophy may be that knowledge is…[Read more]

]]> 85c5bbc36425b5c5c4753216dc04a32d Julie H replied to the topic MGUS and smouldering myeloma; how does it come to light? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mgus-and-smouldering-myeloma-how-does-it-come-to-light/#post-113260 Sun, 23 Feb 2014 20:34:52 +0000 Hello again and thank you so much for all your most helpful responses. It would seem then that some sort of crisis precedes testing for myeloma/smouldering myeloma/MGUS in the majority of cases; and I also note other people in the forum who say they were diagnosed from “routine” blood tests – although I was not aware that the NHS carries these…[Read more]

]]> 13f44ac68c752661c67903f2fe7753a8 Julie H replied to the topic Fourth line treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/fourth-line-treatment/#post-113258 Sun, 23 Feb 2014 20:12:05 +0000 Hello again

Eve – I know what you mean about enjoying every day but my Mum has been too ill to enjoy life at all over the last few weeks. I wish your hubby well with his CDV and I hope he is doing well on the treatment.

Jill -thanks for sharing about your Mum’s journey which sounds similar to my Mums. It’s ironic isn’t it that without the…[Read more]

]]> 150dd59ad87164986fc79447743d5777 Julie H replied to the topic Fourth line treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/fourth-line-treatment/#post-112978 Sat, 15 Feb 2014 16:20:33 +0000 Thank you again Tom and San for your replies. It’s very good to talk with people who have first hand experience of the disease, either as patients or carers; I think the majority of people do not really understand what myeloma is all about and the need for repeat treatments, which I think does single it out from many other cancers that are still…[Read more]

]]> 6aa46eb474991d5f72cf8cf69f880980 Julie H started the topic MGUS and smouldering myeloma; how does it come to light? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mgus-and-smouldering-myeloma-how-does-it-come-to-light/ Sat, 15 Feb 2014 16:04:19 +0000 Hello

I recently posted elsewhere on this forum about my elderly mother who is currently undergoing fourth line treatment for myeloma.Whilst she has had the disease (last 6 years) I have kept well informed about the illness, reading a lot of Myeloma UK materials and attending info days which I’ve always found very helpful in regards to my M…[Read more]

]]> 27ce8be1c05e653e0ed99682962a576b julieh changed their profile picture https://forum.myeloma.org.uk/activity/p/1087/ Mon, 10 Feb 2014 22:12:53 +0000 0 6d0f0c130bd577964ddaf51ad9135d77 Julie H replied to the topic Fourth line treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/fourth-line-treatment/#post-112770 Mon, 10 Feb 2014 21:45:35 +0000 Hi Tom

How kind of you to reply….I’ve read some of your other posts and you always seem so positive.  Good luck with the Velcade and the SCT.

I can’t help but wonder if they had offered my Mum an SCT 6 years ago whether she would have fared better but that is something we will never know I’m afraid. I did question it at the time but her…[Read more]

]]> e850cdc056c59d695d714b7dc7f15f04 Julie H replied to the topic Fourth line treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/fourth-line-treatment/#post-112654 Sun, 09 Feb 2014 23:58:12 +0000 Hi San

Thanks for your reply.  I’m not sure why my first post has lots of redundant text in it, so thanks for persevering with it.  Yes, it’s been a tough time with Mum, particularly over the last year or so. You’re right, quality of life is so important and she does not have that at the moment.  I read your other posts regarding your Mum and I…[Read more]

]]> bbfc11539230d7cdf665269fa82c426c Julie H started the topic Fourth line treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/fourth-line-treatment/ Sun, 09 Feb 2014 14:24:56 +0000 Hello everyone
I was wondering if anyone on here has any experience of fourth line treatment for myeloma?

My Mum (who is now 76) was initially diagnosed in 2008 aged 70, and has now relapsed for the third time.

She was initially given CTD and had nearly three years remission, but had awful side effects during that treatment including a…[Read more]

]]> 79db51ae53b12beda556f565bac2f046 julieh became a registered member https://forum.myeloma.org.uk/activity/p/1060/ Sun, 09 Feb 2014 13:53:46 +0000 0