julienewcastle

  • Hi Mavis

    Many thanks for your post – it’s great to hear of other people’s experiences as I start on my Myeloma journey!

    My two bugbears at the moment are being wide awake at 3am and not being able to get back off to sleep and my mouth.  For the past few days I’ve taken a sleeping tablet when I go to the loo at midnight and they worked! However,…[Read more]

  • Hi Julie

    Thank you for your reply to my recent message.  I’ve been reading your posts and I’m sorry to see you’re having such a tough time.  Like you, my diagnosis in July came as an complete shock – my GP sent me to the RVI for blood tests as he was unsure what was up with me.  I’d never heard of Myeloma and I’m still finding it hard to come to…[Read more]

  • Hi Julie

    I was diagnosed 3 months ago too – and I’m being seen at the Freeman with Prof Jackson!! My sleep is like yours and I don’t find a sleeping tablet particularly helpful. They leave an even more horrible taste in my mouth the next day too! It’s good to hear that other people are having similar experiences – if you want to meet up for a…[Read more]

  • I’m a new patient, just started CTD on Saturday. I’ve noticed my mouth is dry and has an uncomfortable taste. Is this due to my drugs or the fact I’m taking an anti-nausea drug called Metoclopramide? I’m getting fed up with brushing my teeth and sucking mints!!

    Julie Newcastle