Myeloma Forum | julienewcastle | Activity https://forum.myeloma.org.uk/members/julienewcastle/activity/ Activity feed for julienewcastle. Mon, 06 Apr 2026 07:25:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 85d1ce04f75642e9907bef51874c4978 julienewcastle replied to the topic dry unpleasant mouth in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dry-unpleasant-mouth/#post-118732 Sat, 11 Oct 2014 07:46:06 +0100 Hi Mavis

Many thanks for your post – it’s great to hear of other people’s experiences as I start on my Myeloma journey!

My two bugbears at the moment are being wide awake at 3am and not being able to get back off to sleep and my mouth.  For the past few days I’ve taken a sleeping tablet when I go to the loo at midnight and they worked! However,…[Read more]

]]> 7818152a4b10720a3d86c263170d4fe0 julienewcastle replied to the topic Recently diagnosed MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/recently-diagnosed-mm/#post-118608 Sun, 05 Oct 2014 19:59:51 +0100 Hi Julie

Thank you for your reply to my recent message.  I’ve been reading your posts and I’m sorry to see you’re having such a tough time.  Like you, my diagnosis in July came as an complete shock – my GP sent me to the RVI for blood tests as he was unsure what was up with me.  I’d never heard of Myeloma and I’m still finding it hard to come to…[Read more]

]]> d302b5b2feafbc78c19d311bd02cbe65 julienewcastle posted an update: Hi Julie I was diagnosed 3 months ago too - and I'm being […] https://forum.myeloma.org.uk/activity/p/28432/ Sun, 05 Oct 2014 17:44:39 +0100 Hi Julie

I was diagnosed 3 months ago too – and I’m being seen at the Freeman with Prof Jackson!! My sleep is like yours and I don’t find a sleeping tablet particularly helpful. They leave an even more horrible taste in my mouth the next day too! It’s good to hear that other people are having similar experiences – if you want to meet up for a…[Read more]

]]> 0 da5547a88fd4eeba607f66cdbd703be3 julienewcastle started the topic dry unpleasant mouth in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dry-unpleasant-mouth/ Tue, 12 Aug 2014 20:47:49 +0100 I’m a new patient, just started CTD on Saturday. I’ve noticed my mouth is dry and has an uncomfortable taste. Is this due to my drugs or the fact I’m taking an anti-nausea drug called Metoclopramide? I’m getting fed up with brushing my teeth and sucking mints!!

Julie Newcastle

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