Dear Carol,
After a lovely break in the Isle of Wight we had our grandchildren for a week which was great fun but totally tiring. Well how did you get on with your appointment? Hope everything was good. We were planning to set off for Spain in about a week but now the husband was rushed into hospital last week.He is now home and recovering but I…[Read more]

Hi Mavis,
I was told about PP levels during my appointments at Castle Hill Hull.This is where I attend clinic and will have treatment although the stem cell harvesting is to be done at Jimmy.s in Leeds.I find it rather confusing as I see different consultants at each appointment and I am told different things. It has taken me this 4 years to…[Read more]

Hi Carol,
I would like to send you good wishes for your appointment tomorrow and hope everything is going well.It was interesting to hear that were tired, breathless and had headaches in the years before you started treatment, as I have all those symptoms but I am told that I am not amaemic. I was in the months after diagnosis but I had lost a…[Read more]

Only joking Ted but I don't live that far from you. I am in North Lincolnshire. I am often in Leeds as our son is at university there. My husband had his kidney transplant in Jimmys and that is where I will go for stem cell harvest when the time comes.
Julie

Hi Mavis,
I was diagnosed in Nov 2007 with the spinal cord tumour and tests showed I had myeloma. I had the tumour surgically removed with a good degree of success but have been left with weakness in my legs due to nerve damage.My paraprotein levels at that time were 22. Within a year they had risen to 28 but now seem to be stable and last…[Read more]

Pity you don't live near me Ted as it would be great to have help with my computer skills.
Julie

Dear Carol,
Good to hear from you. I have had a long think about your question about whether I feel better in the sun in Spain.
It is hard to judge as our lifestyle in Spain is so different from home.Our Spanish house is all on one level and quite compact so I spend a lot of time stretched on the sunbed resting and reading whilst the husband…[Read more]

Hi Ted,
I was diagnosed 4 years ago and so far have not needed treatment. I have been feeling increasingly tired over the last few months but my levels are remaining stable and I have been told I can now wait 6 months until next checkup.Like yourself I have read of others all undergoing treatment and I feel a bit out on a limb. Every timeI go the…[Read more]