https://forum.myeloma.org.uk/members/juliewelman/activity/ Activity feed for JulieWelman. Thu, 23 Apr 2026 16:56:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 0cc85a36b0bfbde8889f4f387c57ca2a http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/2/#post-84873 Tue, 13 Sep 2011 18:57:18 +0100 Dear Carol,
After a lovely break in the Isle of Wight we had our grandchildren for a week which was great fun but totally tiring. Well how did you get on with your appointment? Hope everything was good. We were planning to set off for Spain in about a week but now the husband was rushed into hospital last week.He is now home and recovering but I…[Read more]

]]> 23c5d939be3747f06c3ce9eff7d42660 http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/3/#post-84884 Sun, 21 Aug 2011 14:58:29 +0100 Hi Mavis,
I was told about PP levels during my appointments at Castle Hill Hull.This is where I attend clinic and will have treatment although the stem cell harvesting is to be done at Jimmy.s in Leeds.I find it rather confusing as I see different consultants at each appointment and I am told different things. It has taken me this 4 years to…[Read more]

]]> b3ab14f36d22af9324ac1bffdcf84b2f http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/2/#post-84871 Sun, 21 Aug 2011 14:49:18 +0100 Hi Carol,
I would like to send you good wishes for your appointment tomorrow and hope everything is going well.It was interesting to hear that were tired, breathless and had headaches in the years before you started treatment, as I have all those symptoms but I am told that I am not amaemic. I was in the months after diagnosis but I had lost a…[Read more]

]]> b0c74590013cfd8d1500708e2902d16b http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/3/#post-84882 Fri, 19 Aug 2011 13:29:36 +0100 Only joking Ted but I don't live that far from you. I am in North Lincolnshire. I am often in Leeds as our son is at university there. My husband had his kidney transplant in Jimmys and that is where I will go for stem cell harvest when the time comes.
Julie

]]> 48140a378c1ddeb97b5015657cea7f01 http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/2/#post-84876 Fri, 19 Aug 2011 13:27:35 +0100 Hi Mavis,
I was diagnosed in Nov 2007 with the spinal cord tumour and tests showed I had myeloma. I had the tumour surgically removed with a good degree of success but have been left with weakness in my legs due to nerve damage.My paraprotein levels at that time were 22. Within a year they had risen to 28 but now seem to be stable and last…[Read more]

]]> d0d7fa0208f986d71a15a6eafd367936 http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/2/#post-84880 Thu, 18 Aug 2011 22:29:58 +0100 Pity you don't live near me Ted as it would be great to have help with my computer skills.
Julie

]]> 3b97794fc5ba7d0826610151c65cf13d http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/2/#post-84869 Thu, 18 Aug 2011 12:40:51 +0100 Dear Carol,
Good to hear from you. I have had a long think about your question about whether I feel better in the sun in Spain.
It is hard to judge as our lifestyle in Spain is so different from home.Our Spanish house is all on one level and quite compact so I spend a lot of time stretched on the sunbed resting and reading whilst the husband…[Read more]

]]> 4fb99a66f116e3fc3de80e60268fabc9 http://www.myeloma.org.uk/forums/topic/new-to-the-forum#post-84866 Wed, 17 Aug 2011 13:33:20 +0100 Hi Ted,
I was diagnosed 4 years ago and so far have not needed treatment. I have been feeling increasingly tired over the last few months but my levels are remaining stable and I have been told I can now wait 6 months until next checkup.Like yourself I have read of others all undergoing treatment and I feel a bit out on a limb. Every timeI go the…[Read more]

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