Myeloma Forum | Karl Stock | Activity https://forum.myeloma.org.uk/members/karl66/activity/ Activity feed for Karl Stock. Sun, 05 Apr 2026 18:55:09 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 bfe3dd3380d575ce64c4d10c999a9cb9 karl66 replied to the topic Recently diagnosed with Plasmacytoma in the forum Newcomers https://www.myeloma.org.uk/forums/topic/recently-diagnosed-with-plasmacytoma/#post-137208 Thu, 22 Feb 2018 11:43:41 +0000 Hi Sam,

Thanks for contacting me. Your experience sounds very similar to mine. I appreciate the information about the IDRIS trial, I’m definitely going to look into it and also speak to my doctor about whether I would be eligible.

The Radiotherapy is going ok thanks, I get some fatigue, as I’m also doing physiotherapy to get strength and…[Read more]

]]> 673d324fd4dce861dfb3d2a5bcc0d54f karl66 replied to the topic Radiotherapy Questions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/radiotherapy-questions/#post-136975 Fri, 26 Jan 2018 16:12:56 +0000 Hi Taff

Plasmacytoma was found in collapsed L3 vertebrae bone of my spine, when I had a CT guided biopsy.

Regards

Karl

]]> 1915ea4d23503edc0f132cf5d6b0f0b2 karl66 replied to the topic Radiotherapy Questions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/radiotherapy-questions/#post-136954 Fri, 26 Jan 2018 13:17:01 +0000 Hi Paula

Thanks for sharing your Radiotherapy experience, it was very helpful.

I’ve got my first session next week on Tuesday 30th Jan.

So hopefully things will all go well.

Kind regards

Karl

]]> 31b70037fca93168158ba94d7acc1443 karl66 started the topic Radiotherapy Questions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/radiotherapy-questions/ Fri, 19 Jan 2018 15:33:58 +0000 Hi

I’ve recently been diagnosed with Plasmacytoma and I’m having 4 weeks of daily Radiotherapy soon.

My questions are:

What does Radiotherapy feel like as it’s done?

Are there any side effects that anyone has experienced?

Are there any feelings of fatigue or pain afterward?

How long after Radiotherapy does it usually take to get the res…[Read more]

]]> 55e1e9c91efcfffad3f5db8d7082c35c karl66 started the topic Recently diagnosed with Plasmacytoma in the forum Newcomers https://www.myeloma.org.uk/forums/topic/recently-diagnosed-with-plasmacytoma/ Fri, 19 Jan 2018 15:16:06 +0000 Hi,

I’ve been diagnosed with Plasmacytoma in my spine and want to connect with anyone who has this, or similar, and can offer advise and share information.

My history:

It started last August 2017, I had back pain after working on our new house, clearing heavy rubble sacks left by a plasterer, and was initially wrongly diagnosed as having musc…[Read more]

]]> 115599c4455f4fb65286d029888bf6e9 karl66 became a registered member https://forum.myeloma.org.uk/activity/p/52126/ Thu, 18 Jan 2018 22:56:52 +0000 0