Well Karen, you’ve had some day – seems like everyone’s after your blood! It is awful finding that the hospital appointments take over your life. I felt like that at the start of this journey, but hopefully after the 22nd it’ll just be 2 monthly. Thank you for the info about the bloods – I’m not surprised they need an armful going by the number of…[Read more]

Thanks Ted,

I’ll know what to ask for when I’m there.   I realise the doc doesn’t know much about the Myeloma, she just goes by the letter from the Consultant. I only go to my GP for other stuff, like two chest infections in 6 weeks!!

i hope everyone is doing as well as they can be, I’m enjoying this glorious weather we’re having at the moment…[Read more]

Great news Susie, I hope they can sort out the compressions and help your arthritis. It’s sad isn’t it, I don’t think there’s one of us with just Myeloma, we’ve each other problems that don’t help very much! I was surprised you went in your MRI feet first , never heard of that before!

Enjoy your time before your next appointment, and I hope it…[Read more]

Thanks Karen, I might have a word at the Surgery to see if I too can have mine done 2 weeks before. It seems a bit pointless going to see the Consultant without having had them done. You’re so right, the NHS is most definitely one of the best things this country has. I wonder why you have such a long wait though, I’ll have to wait till my…[Read more]

Hi Karen,  that’s great – another two months eh?  I hope you’re feeling well, making the most of this good weather that we’re having. Did you say that you might be going away after this appointment? If so I hope you have a lovely time.

I hope you don’t mind my asking – did you have your blood tests done before you saw the Consultant? I haven’t b…[Read more]

It is great Ted that you’ve been smouldering for 7 years and very unfortunate Nick that you only had 2 months before treatment. I’m newly diagnosed, I was okay at the end of May and I have my next appointment in July. It is scary, I also have Coeliac disease and osteoporosis, when I had mt Dexa scan to measure density I had a lot of bone thinning.…[Read more]

Hi Karen, thank you for your reply of 10th. I have had a lot of time to read the Myeloma UK site, it really is full of information.

There are an awful lot of people in a worse state than I am.

Two monthly monitoring to see how the Myeloma is progressing sounds good, now why didn’t I think of that? You have a wealth of advice for which I’m…[Read more]

Thank you Karen for your reply, I was in Oz for 4months with my 2 boys and their families (my only family) when my back pain got so bad I went to their GP, within 2weeks I was diagnosed with MM. Had I stayed over there I would have started treatment the following week (March 31st) but I came home, had all the tests again and still the same…[Read more]

I’ll go by Karrieanne  ( there’s another Karen ). I to have been diagnosed with Asymptomatic Myeloma, having had all the scans, blood tests and the bone marrow biopsy I’m. Now on two monthly appointments. I don’t know any of the figures, that is the para proteins  and light chains etc., I didn’t think to ask for them. I’m wondering if it’s b…[Read more]