Myeloma Forum | Karen. | Activity https://forum.myeloma.org.uk/members/karrieanne/activity/ Activity feed for Karen.. Sat, 11 Apr 2026 23:27:57 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 553f6d359483f0a76ccc9866ff0dd566 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/5/#post-116527 Wed, 09 Jul 2014 22:17:37 +0100 Well Karen, you’ve had some day – seems like everyone’s after your blood! It is awful finding that the hospital appointments take over your life. I felt like that at the start of this journey, but hopefully after the 22nd it’ll just be 2 monthly. Thank you for the info about the bloods – I’m not surprised they need an armful going by the number of…[Read more]

]]> ac6af84500a02cfa008f5b456f7c2621 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/5/#post-116501 Wed, 09 Jul 2014 08:39:00 +0100 Thanks Ted,

I’ll know what to ask for when I’m there.   I realise the doc doesn’t know much about the Myeloma, she just goes by the letter from the Consultant. I only go to my GP for other stuff, like two chest infections in 6 weeks!!

i hope everyone is doing as well as they can be, I’m enjoying this glorious weather we’re having at the moment…[Read more]

]]> 1a37232b2edb3f353e9b1151dd2a9a70 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/5/#post-116490 Tue, 08 Jul 2014 22:41:50 +0100 Great news Susie, I hope they can sort out the compressions and help your arthritis. It’s sad isn’t it, I don’t think there’s one of us with just Myeloma, we’ve each other problems that don’t help very much! I was surprised you went in your MRI feet first , never heard of that before!

Enjoy your time before your next appointment, and I hope it…[Read more]

]]> 4043e9bd14b836f84263571f682c9939 karrieanne changed their profile picture https://forum.myeloma.org.uk/activity/p/25728/ Sat, 28 Jun 2014 19:40:13 +0100 0 669de31c071a6ccd8478c0ea8f44cb84 karrieanne changed their profile picture https://forum.myeloma.org.uk/activity/p/25727/ Sat, 28 Jun 2014 19:38:48 +0100 0 a7c360acec8a87bb70a420c9efb413aa karrieanne changed their profile picture https://forum.myeloma.org.uk/activity/p/25726/ Sat, 28 Jun 2014 19:35:58 +0100 0 cf66696ccd432ac9289fae3a24affc36 karrieanne changed their profile picture https://forum.myeloma.org.uk/activity/p/25725/ Sat, 28 Jun 2014 19:34:05 +0100 0 c1a719aa861bed6794fac4fd162abfc4 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/4/#post-116266 Wed, 25 Jun 2014 22:55:47 +0100 Thanks Karen, I might have a word at the Surgery to see if I too can have mine done 2 weeks before. It seems a bit pointless going to see the Consultant without having had them done. You’re so right, the NHS is most definitely one of the best things this country has. I wonder why you have such a long wait though, I’ll have to wait till my…[Read more]

]]> 155db427b44a327c138b29348cd6cb6f Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/4/#post-116200 Tue, 24 Jun 2014 16:51:32 +0100 Hi Karen,  that’s great – another two months eh?  I hope you’re feeling well, making the most of this good weather that we’re having. Did you say that you might be going away after this appointment? If so I hope you have a lovely time.

I hope you don’t mind my asking – did you have your blood tests done before you saw the Consultant? I haven’t b…[Read more]

]]> 6b4f26d62c8c27ffcfe8a0e5f911ca94 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-116094 Thu, 19 Jun 2014 22:38:04 +0100 It is great Ted that you’ve been smouldering for 7 years and very unfortunate Nick that you only had 2 months before treatment. I’m newly diagnosed, I was okay at the end of May and I have my next appointment in July. It is scary, I also have Coeliac disease and osteoporosis, when I had mt Dexa scan to measure density I had a lot of bone thinning.…[Read more]

]]> f5f05d03facaa9fe57269d3f6d67f638 Karen. replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-116049 Tue, 17 Jun 2014 20:28:33 +0100 Hi Karen, thank you for your reply of 10th. I have had a lot of time to read the Myeloma UK site, it really is full of information.

There are an awful lot of people in a worse state than I am.

Two monthly monitoring to see how the Myeloma is progressing sounds good, now why didn’t I think of that? You have a wealth of advice for which I’m…[Read more]

]]> 28c583d8ce52dbf2fdfdbbaa0a033aa1 karrieanne posted an update: A lovely lady KP was very interesting, she too is new to all […] https://forum.myeloma.org.uk/activity/p/2702/ Mon, 09 Jun 2014 21:44:50 +0100 A lovely lady KP was very interesting, she too is new to all this and it was nice to be able to share, although at present I’ve not much to share. One dose of Radiotherapy has actually given me my life back though so I’m thrilled about that. Other than that there’s no treatment, just watch and wait – and what ? Worry or put it to the back of my…[Read more]

]]> 0 2c03fea9eb7fcd2d59442022bf9fc61d Karrieanne replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-115852 Sun, 08 Jun 2014 21:04:26 +0100 Thank you Karen for your reply, I was in Oz for 4months with my 2 boys and their families (my only family) when my back pain got so bad I went to their GP, within 2weeks I was diagnosed with MM. Had I stayed over there I would have started treatment the following week (March 31st) but I came home, had all the tests again and still the same…[Read more]

]]> c57d04adb0a08490a43dc1cb61b7826c Karrieanne replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/2/#post-115838 Sat, 07 Jun 2014 22:57:19 +0100 I’ll go by Karrieanne  ( there’s another Karen ). I to have been diagnosed with Asymptomatic Myeloma, having had all the scans, blood tests and the bone marrow biopsy I’m. Now on two monthly appointments. I don’t know any of the figures, that is the para proteins  and light chains etc., I didn’t think to ask for them. I’m wondering if it’s b…[Read more]

]]> 0d1c2354cba09a11cf4d8fc243022286 karrieanne posted an update: I've had radiotherapy treatment on my back two weeks ago so […] https://forum.myeloma.org.uk/activity/p/2493/ Fri, 23 May 2014 22:27:52 +0100 I’ve had radiotherapy treatment on my back two weeks ago so I’m hoping that’s going to help the pain.

]]> 0 da44be58af739ef3f7d9f8b7f45fefe2 karrieanne posted an update: @susie I was initially diagnosed while abroad, treatment to […] https://forum.myeloma.org.uk/activity/p/2492/ Fri, 23 May 2014 22:23:36 +0100 @susie I was initially diagnosed while abroad, treatment to start the next week! However I came home instead and since all the tests and another bone marrow biopsy I’ve been told I’m smouldering myeloma and I’ve to have blood tests every two months. It’s so confusing and yes, I do feel like I’m sitting on a time bomb. I don’t know whether to be…[Read more]

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