[katerinelopez0403hotmail-comParticipant]

Hi kinge,

Zometa has been going well so far but I am actually doing two more infusions, one in June and one in Sep, and then suspending it until I need to start any treatment. This is the result of a second opinion and the new consultant sent me more scans and decided to stop as the recommendation for SMM is watch and wait. He said that starting treatment too early could perhaps increase the SMM time but could cause side effects in the long term. There are some trial doing small doses of chemo but again not sure on the side effects in the long term.
I am okay, but started to feel new pains in my upper back and neck so not sure is the zometa did anything at all. I was told it is suppose to remodel the bone structure but I haven’t noticed any improvement on my lower back pain but instead started to feel other pains in different areas.

I think we are all different and some drugs work different on us. Still Smouldering and hoping to stay like this for a while

[katerinelopez0403hotmail-comParticipant]

Hi Mulberry,

Has my second Zometa and didn’t feel anything this time, followed your advice about drinking plenty of water and took painkillers before and after the treatment.
I am booking an appointment Monday with my GP because I have been feeling a mild pain on the right side of my tummy below the last rib, so want to make sure it is nothing, will let you know.

Back pain still bad but manageable, I just came back from a 2 weeks holidays in Spain and Portugal, lots of walks, some days had to stop but I think i managed to do around 15.000 steps in a few of the days. No bad 🙂

Talk soon

[katerinelopez0403hotmail-comParticipant]

Hi Elsie,
I understand that there are some guidelines that doctors use to determine what is the best treatment for you. In my case, I didn’t want to start a treatment but watch and monitor since I am 36 but because I have quite severe back pain, my haematologist recommended to start Zometa to help strengthen the bones.

I am sure your consultant is considering a lot of the side effects that come from the treatments and because you are asymptomatic, they may be considering monitoring for now. I don’t have a lot of experience but that’s what I think.

A second opinion is always good if you want to be reassured.

All the best!!

[katerinelopez0403hotmail-comParticipant]

Thank you very much Mulberry. This is very useful info.
The zometa went well, I had horrible body aches and headaches the day after the infusion. I never felt that way with a flu, but only lasted a day. Thanks god.
I have quite a lot of pain in my back but that is not new, that’s actually the reason why I started all these investigations and found out about myeloma.
I started to feel quite a lot of pain in my neck as well but I work on a desk all day, so I am thinking that could be related to that.
I feel that every strange thing I feel in my body could be related to this.
I am very positive and I am hoping I stay smouldering and better everyday.

[katerinelopez0403hotmail-comParticipant]

Hi all,
Nice to meet you.

I am 36, diagnosed with smouldering and I am about to start Zometa next week. What is the reason for this when SMM is supposed to only be watched and no treated? Any advice?

[katerinelopez0403hotmail-comParticipant]

Hi, I was diagnosed last month. The diagnosis was SMM but the doctor is starting a treatment with Zometa (zoledronic acid). Do anyone has had that type of treatment?
I read that SMM should not be watched and no treated but I am confused why the treatment? Is it because I am high risk? Any help!!
Many thanks

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