Thank’s Rebecca, great idea to purchase a wig and match to your own hair, I know Mum will  want to go down this route. We have already contacted a place in London and she’s going to have a telephone consultation with them first

I am a firm believer in strong mind, strong body. My husband was dealt a pretty rotten dealing when it comes to health,…[Read more]

Thank you Annlynn. Mum had read that it’s common you loose your hair during SCT. So we’ll Go shopping, drink bubbles, try wigs on and laugh..

So, any good recommendations on wig shops, prefer London or Birmingham.

Hi Rebecca,

Congratulations on your 2 years post SCT, long long may it continue.

We had heard about stopping supplements during treatment,and definitely will. Desperate to keep mum’s immune system fighting fit after treatment, due to her venerability to infection

I love your outlook, ‘don’t let MM take over your life & thoughts’

‘You cannot…[Read more]

Thank you so much for both replying.  Hearing it’s doable.. Helps.

Also that you’re both in remission, long may it continue. Great news on the Gym, a consultant that we saw in London said keeping active ( when able)  and drinking water was the best advise he could give

Mum may have more specific fears and concerns that you’re able to help w…[Read more]

Hi Mavis,

Thank you for your reply, I am so pleased to of found this site and although Mum isn’t on here yet i’m feeding back all positive stories, I will encourage her to post herself when the time is right for her.

Mum’s next appointment is 23rd March, current levels 25.7 I have everything crossed they haven’t raised to 30 and they want to…[Read more]

* love of life! not love life, sorry….

Thank you Carol, great news and so so lovely to hear about all your upcoming travels. my parents are due to go to Australia & NZ for 6 weeks in April, her next blood count is 2 weeks before so keeping everything crossed that her levels haven’t increased and she can jet off..

Can I ask what your para-protein levels were at when you started…[Read more]

It really does help, thank you so much, I forwarded your replies on to my mum, dad & brother, we’re all so appreciative of the time taken to share your story, thank you.

It wasn’t the back ache that brought Mum to her diagnosis, it was detected during a celiac blood test, the were no symptoms ( again, trying to take the positives from…[Read more]

Keith,

I cannot thank you enough for your terrifically detailed positive response, thank you, it means so much.

You’re right, at this stage all i am wanting to do is make it go away for my Mum, so thinking right, transplant, royal marsden, gareth morgan ( who i found on the computer, but has since taken a post in Arkansas!)

But yes, I need to…[Read more]