Myeloma Forum | katyb | Activity https://forum.myeloma.org.uk/members/katyb/activity/ Activity feed for katyb. Sat, 11 Apr 2026 12:16:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 a0e2fb0383f0278429353e10870df291 katyb replied to the topic Mum starting treatment in January. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/mum-starting-treatment-in-january/#post-125541 Thu, 24 Dec 2015 08:44:21 +0000 Thank’s Rebecca, great idea to purchase a wig and match to your own hair, I know Mum will  want to go down this route. We have already contacted a place in London and she’s going to have a telephone consultation with them first

I am a firm believer in strong mind, strong body. My husband was dealt a pretty rotten dealing when it comes to health,…[Read more]

]]> 7b671c500b1c8ce053acbb52958a8fce katyb replied to the topic Mum starting treatment in January. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-starting-treatment-in-january/#post-125533 Wed, 23 Dec 2015 11:35:08 +0000 Thank you Annlynn. Mum had read that it’s common you loose your hair during SCT. So we’ll Go shopping, drink bubbles, try wigs on and laugh..

So, any good recommendations on wig shops, prefer London or Birmingham.

]]> dfe7d54df27f2d708027bc39173a8db8 katyb replied to the topic Mum starting treatment in January. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-starting-treatment-in-january/#post-125530 Wed, 23 Dec 2015 08:09:33 +0000 Hi Rebecca,

Congratulations on your 2 years post SCT, long long may it continue.

We had heard about stopping supplements during treatment,and definitely will. Desperate to keep mum’s immune system fighting fit after treatment, due to her venerability to infection

I love your outlook, ‘don’t let MM take over your life & thoughts’

‘You cannot…[Read more]

]]> bffe0d8c6d37a96848b9c6564ca3cdd4 katyb changed their profile picture https://forum.myeloma.org.uk/activity/p/42320/ Tue, 22 Dec 2015 16:15:12 +0000 0 2ce0e958a5474f22fd24c4c28f880fe4 katyb replied to the topic Mum starting treatment in January. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-starting-treatment-in-january/#post-125522 Tue, 22 Dec 2015 16:01:16 +0000 Thank you so much for both replying.  Hearing it’s doable.. Helps.

Also that you’re both in remission, long may it continue. Great news on the Gym, a consultant that we saw in London said keeping active ( when able)  and drinking water was the best advise he could give

Mum may have more specific fears and concerns that you’re able to help w…[Read more]

]]> 0d1aaba5860de64d3b250fcbcf42c4e9 katyb started the topic Mum starting treatment in January. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-starting-treatment-in-january/ Tue, 22 Dec 2015 14:47:47 +0000 Hello all,

I posted on here some time ago, to scream HELP as my mum had just been diagnosed with MM. All your comments were comforting and reassuring during this time and i forwarded them all on to Mum.

We are now at treatment stage, Mum begins 6/1/2016.

My Mum had written ( a very long post) but in a techno phobe way, she lost it 🙄💕

So this…[Read more]

]]> c18976822005f6d7966c40f0a2fad806 katyb replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120531 Mon, 26 Jan 2015 19:34:35 +0000 Hi Mavis,

Thank you for your reply, I am so pleased to of found this site and although Mum isn’t on here yet i’m feeding back all positive stories, I will encourage her to post herself when the time is right for her.

Mum’s next appointment is 23rd March, current levels 25.7 I have everything crossed they haven’t raised to 30 and they want to…[Read more]

]]> 8d6e189ab0a5bc642240116d5cbd6a43 katyb replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120346 Sat, 17 Jan 2015 15:02:39 +0000 * love of life! not love life, sorry….

]]> 430f238fd126345e4e985b49ee46a63f katyb replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120344 Sat, 17 Jan 2015 10:34:27 +0000 Thank you Carol, great news and so so lovely to hear about all your upcoming travels. my parents are due to go to Australia & NZ for 6 weeks in April, her next blood count is 2 weeks before so keeping everything crossed that her levels haven’t increased and she can jet off..

Can I ask what your para-protein levels were at when you started…[Read more]

]]> 910cb91a7933622def1bf7ded0e45079 katyb replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120332 Fri, 16 Jan 2015 21:03:22 +0000 It really does help, thank you so much, I forwarded your replies on to my mum, dad & brother, we’re all so appreciative of the time taken to share your story, thank you.

It wasn’t the back ache that brought Mum to her diagnosis, it was detected during a celiac blood test, the were no symptoms ( again, trying to take the positives from…[Read more]

]]> e08ad1df235fa5abfc62be897e49e446 katyb replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120311 Fri, 16 Jan 2015 09:43:30 +0000 Keith,

I cannot thank you enough for your terrifically detailed positive response, thank you, it means so much.

You’re right, at this stage all i am wanting to do is make it go away for my Mum, so thinking right, transplant, royal marsden, gareth morgan ( who i found on the computer, but has since taken a post in Arkansas!)

But yes, I need to…[Read more]

]]> 43008194aba51668989a82add5ccd683 katyb started the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/ Thu, 15 Jan 2015 20:12:42 +0000 Hi There,

My mum has recently been diagnosed with Asymptomatic Meyloma. Naturally I’m worried and have loads of questions, although when I read through all your posts I don’t think I have all the information to offer, to be honest, I think we were all in shock so I’m struggling to remember all the figures quoted!

but I think ( I will confirm…[Read more]

]]> 5b9ea6c482a2e52ecd4f254c80c7d060 katyb became a registered member https://forum.myeloma.org.uk/activity/p/37105/ Thu, 15 Jan 2015 19:48:07 +0000 0