Hi Mandy
I’m really sorry I don’t think my post posted last week. Yes I am local in Brentwood.. Please feel free to email me. I’m not sure how privacy works. It would be nice to chat. It’s not an illness that you hear about much so at times you can feel lonely with your own thoughts.

Kay x

Hi cupcake
I have not been on this forum for a few years and I believe I was meant to come on here tonight and read your posts. I was diagnosed with smouldering myeloma in 2009 at the age of 44 at Queens. I had treatment in 2011 followed by SCT then more treatment in 2014 and my 2nd SCT in 2014 both in Barts. I was at Barts today and my PP is 11…[Read more]

Hi Megan and Phil. I was on Bodley Scott Ward but started on A4 absolutely no difference so Phil is not missing out on anything. Infact the ward in A4 is nicer as on BS ward you are lined up in cubicles but the isolation rooms are the same. So pleased he no longer has the IV once they put the stem cells back in me they came in 11 days later and…[Read more]

Hi Megan. I have not posted on this site for a while (which I feel bad about as it is so supportive). I have been reading your daily diary regarding Phil's SCT. I had mine in Barts in sept 2011. I was put in an isolation room after a few days, only because there were so many men that they could not have men and women together on the transplant…[Read more]

Hi Karen
Just got your email that came straight through to my personal email which I was pleased about or I would not have seen it. I had CDT 5 cycles then Revlimid for 4 cycles. I then had my stem cell transplant in September 2011 so I am now post one year. I am now stable although my PPs like to have little blips every now and then which…[Read more]

Hi Dawn
Not been on site for a long time, so thank you for bringing me back. Life goes on Im pleased to say. My PP fluctuate between 18 and 22. I went back to Barts on Monday and had what I hope now is my yearly visit. I have blood tests once a month at my local hospital and hope that it will go to two months now. My consultant said she will not…[Read more]

Hi Antoinette
Like the others say there is life beyond MM but there is a journey to go through. I was diagnosed in 2009 when I was 45. I was smouldering for 18 months then became anemic too, but with no other symptoms. I have gone through the chemo and stem cell transplant in Barts (who were amazing) and am now on the other side. Everyone is…[Read more]

Hi Karen
Your posting got mixed up in the dates. So sorry you have to join us but this is a wonderful site for help, support, understanding and encouragement. I'm on the other side of treatment now. It was not a walk in the park but it's certainly manageable. It sounds like they have caught yours early as they did with me. It is a complete…[Read more]

Hi Mavis. Feeling much better after slowing down. Getting plenty of rest. My body kicks me when I'm over doing it. Good for you with your positive attitude. I need small goals to keep me going. Rushed them first of all but getting balance now. Just had monthly blood test back and all stable. Love kay x

Hi Stephen. So sorry to hear your loss. Not as articulate as the others but wanted to say my thoughts and prayers are with you and your children. Day at a time stuff. kay x

Hi David. My thing is sore throats. Get them regularly but clear up after couple of days. Scared me the first time but when it went, like everyone else said, it proved my body can fight infection or viruses sooooo grateful. Glad u got your plumbing sorted 🙂 kay x

Thanks to everyone. Have slowed down a lot and feeling much better. Joints still painful but I have acceptance now. Wishing you all well kay x

Hi tony lovely to meet you. I too was on trial. SCT last September and doing well. Keep in touch with the people here. They will either have been through or going through similar stuff and are supportive and knowledgeable of this illness. Good luck one day at a time kay x

Ha ha 🙂 thanks Dai. I feel like I have been well told off. I needed it too. Think I am still in denial that I even had myeloma and the treatment. But as they say "denial is not a river in Egypt". It's a powerful feeling. Will take note and slow down. Think I just needed reassurance that I was not imagining my tiredness. Thanks Tom for your…[Read more]

Hi Sarah so pleased Henry is home. Patience is the key. Rest when his body tells him too. Eat when he wants. I found little and often was better. Wish you and Henry best wishes. Love kay x

What fantastic news David. Keep up the good work. Best wishes kay