Myeloma Forum | KAYNEVILL | Activity https://forum.myeloma.org.uk/members/kaychappers/activity/ Activity feed for KAYNEVILL. Sun, 05 Apr 2026 15:01:06 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 48eb81e49086faebf39bcd30eed8f415 kaychappers changed their profile picture https://forum.myeloma.org.uk/activity/p/39120/ Sun, 24 May 2015 07:39:50 +0100 0 80eb8f98d9b6e70a47c1d889cb4e8048 kaychappers changed their profile picture https://forum.myeloma.org.uk/activity/p/39119/ Sun, 24 May 2015 07:34:01 +0100 0 2480da1518978313e2c30266bb18deae KAYNEVILL started the topic Low Blood Counts after SCT in the forum Side-effects http://www.myeloma.org.uk/forums/topic/low-blood-counts-after-sct/ Sun, 24 May 2015 07:31:37 +0100 Hi everyone
I have not been on this site for a long time but keep up with what is going on. I had my second SCT in October 2014 after relapsing after 18 months. My problem is low blood counts still. My platelets now seem to be stabalising around 26 my neutrophils are at 1 so I have one injection a week and my Hb goes down to just below 9. I had…[Read more]

]]> 71a06658d7bcd560dd52cbce912306e1 KAYNEVILL replied to the topic Getting to the scary bit now!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-to-the-scary-bit-now/page/2/#post-122246 Sun, 24 May 2015 07:24:16 +0100 Hi Mandy
I’m really sorry I don’t think my post posted last week. Yes I am local in Brentwood.. Please feel free to email me. I’m not sure how privacy works. It would be nice to chat. It’s not an illness that you hear about much so at times you can feel lonely with your own thoughts.

Kay x

]]> c16b0fe380f2688a49da5b2a24fe187c KAYNEVILL replied to the topic Getting to the scary bit now!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-to-the-scary-bit-now/page/2/#post-122175 Mon, 18 May 2015 21:47:11 +0100 Hi cupcake
I have not been on this forum for a few years and I believe I was meant to come on here tonight and read your posts. I was diagnosed with smouldering myeloma in 2009 at the age of 44 at Queens. I had treatment in 2011 followed by SCT then more treatment in 2014 and my 2nd SCT in 2014 both in Barts. I was at Barts today and my PP is 11…[Read more]

]]> d7f9eaf18526fee7243c65f45b8669f3 KAYNEVILL replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/4/#post-101295 Sun, 30 Dec 2012 10:39:27 +0000 Hi Megan and Phil. I was on Bodley Scott Ward but started on A4 absolutely no difference so Phil is not missing out on anything. Infact the ward in A4 is nicer as on BS ward you are lined up in cubicles but the isolation rooms are the same. So pleased he no longer has the IV once they put the stem cells back in me they came in 11 days later and…[Read more]

]]> 803ddaac5f861589a6d304f149dc0d5d KAYNEVILL replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/4/#post-101288 Fri, 28 Dec 2012 23:29:33 +0000 Hi Megan. I have not posted on this site for a while (which I feel bad about as it is so supportive). I have been reading your daily diary regarding Phil's SCT. I had mine in Barts in sept 2011. I was put in an isolation room after a few days, only because there were so many men that they could not have men and women together on the transplant…[Read more]

]]> 679af69992d65f974149b9c5dcb577b8 KAYNEVILL replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/2/#post-106767 Sun, 18 Nov 2012 20:37:56 +0000 Hi Karen
Just got your email that came straight through to my personal email which I was pleased about or I would not have seen it. I had CDT 5 cycles then Revlimid for 4 cycles. I then had my stem cell transplant in September 2011 so I am now post one year. I am now stable although my PPs like to have little blips every now and then which…[Read more]

]]> f998aebff1c7188d8a9ba3f918c53ce9 KAYNEVILL replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think/page/2/#post-98629 Sun, 14 Oct 2012 09:18:45 +0100 Hi Dawn
Not been on site for a long time, so thank you for bringing me back. Life goes on Im pleased to say. My PP fluctuate between 18 and 22. I went back to Barts on Monday and had what I hope now is my yearly visit. I have blood tests once a month at my local hospital and hope that it will go to two months now. My consultant said she will not…[Read more]

]]> 1adf09c4bffad3f90e08dda36a6e9198 KAYNEVILL replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-monday-at-only-39/page/2/#post-86097 Tue, 29 May 2012 17:39:43 +0100 Hi Antoinette
Like the others say there is life beyond MM but there is a journey to go through. I was diagnosed in 2009 when I was 45. I was smouldering for 18 months then became anemic too, but with no other symptoms. I have gone through the chemo and stem cell transplant in Barts (who were amazing) and am now on the other side. Everyone is…[Read more]

]]> 18691fefe861fe1388690ba511bbde95 KAYNEVILL replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group#post-106764 Mon, 28 May 2012 22:38:06 +0100 Hi Karen
Your posting got mixed up in the dates. So sorry you have to join us but this is a wonderful site for help, support, understanding and encouragement. I'm on the other side of treatment now. It was not a walk in the park but it's certainly manageable. It sounds like they have caught yours early as they did with me. It is a complete…[Read more]

]]> 6ca114fca5277b42bf40f4a69d9f2721 KAYNEVILL replied to the topic Joint pain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/joint-pain#post-104426 Sat, 21 Apr 2012 20:33:38 +0100 Hi Mavis. Feeling much better after slowing down. Getting plenty of rest. My body kicks me when I'm over doing it. Good for you with your positive attitude. I need small goals to keep me going. Rushed them first of all but getting balance now. Just had monthly blood test back and all stable. Love kay x

]]> b6f552e59a8f877beb82a052e3bf46e7 KAYNEVILL replied to the topic bereavment in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bereavment#post-107569 Thu, 19 Apr 2012 09:19:14 +0100 Hi Stephen. So sorry to hear your loss. Not as articulate as the others but wanted to say my thoughts and prayers are with you and your children. Day at a time stuff. kay x

]]> f9bddc42d1716bea742966057216e198 KAYNEVILL replied to the topic coughs, colds and the like in the forum Side-effects http://www.myeloma.org.uk/forums/topic/coughs-colds-and-the-like#post-104459 Thu, 19 Apr 2012 09:12:30 +0100 Hi David. My thing is sore throats. Get them regularly but clear up after couple of days. Scared me the first time but when it went, like everyone else said, it proved my body can fight infection or viruses sooooo grateful. Glad u got your plumbing sorted 🙂 kay x

]]> 30ad88a6e1beb86f5c2f1f78fdfd5ed8 KAYNEVILL replied to the topic Joint pain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/joint-pain#post-104424 Thu, 19 Apr 2012 09:07:25 +0100 Thanks to everyone. Have slowed down a lot and feeling much better. Joints still painful but I have acceptance now. Wishing you all well kay x

]]> c06a6e2e7188e0b01cb99bd316c116e0 KAYNEVILL replied to the topic Newcomer... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newcomer1334519210/page/3/#post-85810 Thu, 19 Apr 2012 09:01:25 +0100 Hi tony lovely to meet you. I too was on trial. SCT last September and doing well. Keep in touch with the people here. They will either have been through or going through similar stuff and are supportive and knowledgeable of this illness. Good luck one day at a time kay x

]]> 67779bdc5a8555488b2f57a2760fafd7 KAYNEVILL replied to the topic Joint pain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/joint-pain#post-104418 Wed, 04 Apr 2012 17:35:35 +0100 Ha ha 🙂 thanks Dai. I feel like I have been well told off. I needed it too. Think I am still in denial that I even had myeloma and the treatment. But as they say "denial is not a river in Egypt". It's a powerful feeling. Will take note and slow down. Think I just needed reassurance that I was not imagining my tiredness. Thanks Tom for your…[Read more]

]]> 53c3eb0af0a0bd2dbef779c249ef15fb KAYNEVILL started the topic Joint pain. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/joint-pain Wed, 04 Apr 2012 07:33:33 +0100 Hi everyone. Has anyone suffered joint pain following SCT. First they thought it was peripheral neuropathy and put me on amyolotryptilin (can't spell it) then gabapentin then cocodamol but nothing stopped the pain. I was sent to rheumatologist had pet scan nothing (which I'm grateful for). Consultant then put me on 30mg peredisone steroids which…[Read more]

]]> f35e7190b6332f35717719d073b56431 KAYNEVILL replied to the topic SCT completed in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-completed#post-99104 Wed, 04 Apr 2012 07:21:33 +0100 Hi Sarah so pleased Henry is home. Patience is the key. Rest when his body tells him too. Eat when he wants. I found little and often was better. Wish you and Henry best wishes. Love kay x

]]> 988a9bb7b8157b620b0457dca1427ed8 KAYNEVILL replied to the topic Another 3 months in the forum General http://www.myeloma.org.uk/forums/topic/another-3-months1333128671#post-92409 Mon, 02 Apr 2012 21:11:05 +0100 What fantastic news David. Keep up the good work. Best wishes kay

]]> fae97314a3e11b4f7a4ef323ccae39af KAYNEVILL replied to the topic Will anything work? in the forum Treatment http://www.myeloma.org.uk/forums/topic/will-anything-work/page/2/#post-99085 Mon, 02 Apr 2012 21:09:21 +0100 Hi Andy. Can't help out on the alcohol as I don't drink. But on the pp level I went down from 38 to 20 on CDT then plateaued. I went in for harvest After first day of harvest consultant came round to say pp had gone back to 34 in 3 weeks and sent me home to be put on velcade. Plateaued again at 18 but they put stem cells they had collected at 34…[Read more]

]]> 9fca57733ccdef17ae189a69267dd9d4 KAYNEVILL replied to the topic Another newcomer in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-newcomer1333394144#post-85732 Mon, 02 Apr 2012 20:49:39 +0100 Hi suzie sorry u have to join the happy bunch here but that is what they are and very supportive. I went to my doctor with tiredness and was sent to a haematologist soon after as my para proteins were 37. But I had no calcium or anaemia. My bone marrow was 13% I was told anything above 10% without other symptoms was called asymptomatic or…[Read more]

]]> 4e2f6d0ce14a50c513e11f487b980420 KAYNEVILL replied to the topic HERE WE GO AGAIN !! in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/4/#post-98804 Tue, 06 Mar 2012 08:55:30 +0000 Hi Bridget just been reading all your posts. Like everyone I can't find the words but wanted to let u know I am thinking of you and will be praying that they find something that will help you. You are so positive and an inspiration to us all. You are always their with a kind word for others. Keep that positive attitude. Day at a time Love kay x

]]> 36470a679e194f7d21fc044f57144a52 KAYNEVILL replied to the topic Starting CDT in the forum Treatment http://www.myeloma.org.uk/forums/topic/starting-cdt#post-98923 Tue, 06 Mar 2012 08:44:04 +0000 Hi Mavis I was on CDT and thalidomide gave me lovely night sleeps. Dex kept me awake and made me irritable when I came off them each time. But all in all I still continued to work 4days a week. I injected myself each day and I found it was ok but I agree with others don't do it if u don't feel comfortable with it. All the best kay x

]]> 0e16a5179d9c058f48a0b3d1b04366b2 KAYNEVILL replied to the topic What is stem cell transplant really like? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/what-is-stem-cell-transplant-really-like#post-106960 Tue, 06 Mar 2012 08:32:54 +0000 Everyone is different. It will be up to your consultant. But whatever they say they know what they are doing and it will be for the best. Have another chat with them and ask the question. I just wrote down questions as they popped into my head. There is light at the end of the tunnel now. Best wishes kay x

]]> 487529c2bd089ff199e728fa9c6e190c KAYNEVILL replied to the topic What is stem cell transplant really like? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/what-is-stem-cell-transplant-really-like#post-106958 Wed, 29 Feb 2012 08:28:38 +0000 Hi penny how did it go yesterday. Any date for SCT. I was also a lucky one. They kept telling me I was boring 🙂 no infection, one bout of diarrhoea, one bout of sickness and home in two weeks. I was also quite fit when I went in and 46 years old. I think it helps. Good luck and keep in touch kay x

]]> a7d938a241620af5336611b00baee3a0 KAYNEVILL replied to the topic Joined the forum @ 1:00am. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/joined-the-forum-100am#post-85591 Wed, 29 Feb 2012 08:03:01 +0000 Hi Andy good luck with your journey. It is an emotional roller coaster. But as It was said to me "it's not a walk in the park but you will get through it" and like others I did with the help and support of this site. People here have either been through it, are going through it or will be going to go through it. So stay close x

]]> 502027311cf794d9dbceb340f7f1d23a KAYNEVILL replied to the topic Treatment Free :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-free-/page/2/#post-98896 Tue, 28 Feb 2012 16:54:49 +0000 Such great news Tom. It will keep me going, positive and strong. Kay x

]]> c1f3b66db4c167ad0c0a6d7aa6c65560 KAYNEVILL replied to the topic Starting stem cell harvest next Monday. in the forum General http://www.myeloma.org.uk/forums/topic/starting-stem-cell-harvest-next-monday/page/2/#post-92192 Wed, 22 Feb 2012 08:57:47 +0000 Hi terry. It is a shame they did not tell u about two day stint. Me and my friend stayed in the hostel over the road free of charge and it was really nice. They wanted 8 million from me for two transplants but got 4 which was enough for one transplant. I am at barts for last time on 19th march. Would be happy to pop in and say hello if u wish.…[Read more]

]]> bedaf214d5c5b4a3eaaeb210ce60509c KAYNEVILL replied to the topic Starting stem cell harvest next Monday. in the forum General http://www.myeloma.org.uk/forums/topic/starting-stem-cell-harvest-next-monday#post-92190 Tue, 21 Feb 2012 11:52:58 +0000 Hi terry I'm assuming u had your harvest yesterday. Hope all went well. I was in barts too and they are fantastic. I was one of the lucky ones who breezed thru it. One bout of diarrhoea, one bout of sickness and no infection. They kept telling me I was boring:-) but even if you do have any side affects they are constantly monitoring you and give…[Read more]

]]> b695d159851a0fddb0c87cd610824946 KAYNEVILL replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-was-diagnosed-with-mm-in-december-2011#post-85491 Sun, 22 Jan 2012 20:02:43 +0000 Hi Mandy so sorry to hear about your mums pain and also that she has this horrible illness. Treatment affects people differently, but I can understand her frustration with the PN. I was extremely active before treatment and now I have finished the only thing that is still with me is PN. Gabepentin is what I am on. It takes time to build up in the…[Read more]

]]> 9d52eaf2df66be260e9c619cf18db6b2 KAYNEVILL replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think/page/2/#post-98624 Sat, 14 Jan 2012 15:19:54 +0000 Oh well saw Rheumatologist. He does not think it is arthritis. Did loads of blood tests. Maybe gout!!!!! oh great on top of MM I have pain in every joint of my body now. Prescribed co codomol for pain until blood tests back. Dont want me to have anti inflamatories because may cause kidney problems. Saw that Bonefos can cause joint pain. Maybe…[Read more]

]]> 35c06cc53672f988d0fb578e59f53431 KAYNEVILL replied to the topic Newly diagnosed and unable to swallow Thalidamide Capsules in the forum Treatment http://www.myeloma.org.uk/forums/topic/newly-diagnosed-and-unable-to-swallow-thalidamide-capsules#post-98695 Sat, 14 Jan 2012 15:03:24 +0000 Hi Mandy. Your poor friend. Firstly to find out she has Myeloma and then having difficulty in swallowing the medication which is ment to help her. I think Anne's suggestion of contacting Ellen on the Myeloma infoline is a way forward. Your friend's problem must have come up before. Wishing you both all the best. Kay x

]]> 72dc9373198c7285b5cb762de382ee72 KAYNEVILL replied to the topic Is it back? in the forum General http://www.myeloma.org.uk/forums/topic/is-it-back#post-92009 Fri, 13 Jan 2012 17:42:23 +0000 It will be a tough few days, but for me the waiting is the worst. Once you know what is happening at least you can start to deal with it. HB is haemoglobin which makes the red blood cells which carry oxygen around the body. It fell and I was exhausted. My consultant said 'it proves to me you cannot make healthy blood and we have to start…[Read more]

]]> a83df02000799d8e73e4088a1196cc55 KAYNEVILL replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think/page/2/#post-98622 Thu, 12 Jan 2012 10:06:12 +0000 Hi everyone. Just wanted to let you know I saw my consultant Monday and it all looked grim. She said my SCT was a disappointment. My last 3 PP results were 16, 18 and 22. Good news was she believed my bone/joint pain was rheumatoid arthritis and she wanted to get that under control as I am in so much pain, but she did not have the results of the…[Read more]

]]> cccc8d5589f26636fa9bb390746b59bc KAYNEVILL replied to the topic Remission? What remission? in the forum Treatment http://www.myeloma.org.uk/forums/topic/remission-what-remission#post-98682 Thu, 12 Jan 2012 09:53:13 +0000 Hi Dai I do wish you all the very best. When I was speaking to my consultant on Monday she was telling me about a new trial (did not take in the name) and she was so excited about it. It gave me hope that if I did need it I was more than happy to try it. Do let us know what you are randomised too. Kay x

]]> f5f32de7810255930370f922ba761982 KAYNEVILL replied to the topic Is it back? in the forum General http://www.myeloma.org.uk/forums/topic/is-it-back#post-92007 Thu, 12 Jan 2012 09:44:55 +0000 Hi Amelie I had my SCT in September and my PP has risen for the last 3 blood tests, but my consultant said she is not worried due to my HB rising consistently. When I had to have treatment it was because I became anaemic and that is what they will look for rather than rising PP. Myeloma is so so different for everybody. I do wish you both all the…[Read more]

]]> 9029bd52fd0eb1e7b9875c81dba8bd35 KAYNEVILL replied to the topic REMISSION. in the forum General http://www.myeloma.org.uk/forums/topic/remission#post-91971 Sat, 07 Jan 2012 15:03:04 +0000 What fantastic news for you both. Enjoy hearing the positive side of this illness. I had SCT in September and came through it really well. Out in two weeks and now I am back to work. Love Kay x

]]> 019a3b4a467551378caf7a88ef2ea0ff KAYNEVILL replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think#post-98619 Fri, 06 Jan 2012 17:08:08 +0000 Thank you all so much for your replies. Lorraine you have given me a lot of hope. Scan went ok. I believe they are thinking about putting me on revlimid but we shall see on Monday love Kay x

]]> 1481706f257844aea58981e57d9caf1c KAYNEVILL replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think#post-98611 Wed, 04 Jan 2012 16:13:33 +0000 Thank you all for your lovely replies and thoughts. What a pain Myeloma is. So great to have the support to share with. Kay x

]]> d77757833942ce76eb474c45d3ffaf3b KAYNEVILL replied to the topic How do you start to say good bye?? in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/how-do-you-start-to-say-good-bye#post-107381 Tue, 03 Jan 2012 16:51:47 +0000 Hi Michelle I am so sorry that you and your husband are at the stage that you are especially the young age that he is as well (although whatever age this terrible disease does not care and is hard and awful for all concerned). I agree with the others, always make sure you say how much you love the person and try to keep positive. There are other…[Read more]

]]> bdc4d95072b6925511242c9b13f53214 KAYNEVILL started the topic FAILED SCT I THINK!!!!. in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think Tue, 03 Jan 2012 14:59:33 +0000 Hi Everyone
I hope you had a good Christmas and a Happy and healthy new year. I had my stem cell transplant in September. Unfortunately, my para proteins have gone from 16, 18 and 22. I go back to hospital Friday for CT pet scan to see if there is any bone disease and then consultant on Monday to see where we go from here. My bones ache and…[Read more]

]]> 016568667c59d66e1e868f472fff43c6 KAYNEVILL replied to the topic Painful Bones in the forum Side-effects http://www.myeloma.org.uk/forums/topic/painful-bones#post-104280 Tue, 25 Oct 2011 19:19:15 +0100 Thank you all so much for your replies. I think the answer is BE PATIENT and just do as much as my body will allow.
Best wishes Kay

]]> a678e14df6b21eadbb2f0dd53c3b1ca8 KAYNEVILL replied to the topic Painful Bones in the forum Side-effects http://www.myeloma.org.uk/forums/topic/painful-bones#post-104277 Mon, 24 Oct 2011 20:11:36 +0100 Thanks Min and Wendy. Paracetemol seem to help. I also have been told my feet hurt due to the velcade, I only hope it does wear off. I think I just want to feel better yesterday, even though the consultant told me it will be 3-6 months. Patience has never been my strong point. Sorry to hear you are going through the same Wendy, but nice to know it…[Read more]

]]> 08fd287cb92c799046218555d7ec33d3 KAYNEVILL replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi#post-85222 Mon, 24 Oct 2011 20:02:14 +0100 Hi Jim sorry you have to come here, but the people here offer lots of support. I was 44 and extremely fit too. I was completely shocked, but I think we are going to here more and more younger people being diagnosed as they can pick it up earlier and that I am so pleased about. I was on the XI trial. There are lots of pills to take, but you soon…[Read more]

]]> a6b0990ee85eca3a848df7218f16aa1c KAYNEVILL started the topic Painful Bones. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/painful-bones Sun, 23 Oct 2011 14:36:17 +0100 Hi everyone not been on the site for soooooo long, but been reading a lot on here and found it so useful as always. Been in hospital having SCT. Was very lucky with side effects. One bout of sickness, one bout of diarrhea and in and out of hospital in two weeks. I identify with the hot flushes and PN which has been posted. I have just been put…[Read more]

]]> 6d3756bffe91f8556d103202ea48cd31 KAYNEVILL replied to the topic Allopurinol allergy in the forum Side-effects http://www.myeloma.org.uk/forums/topic/allopurinol-allergy#post-104271 Sun, 23 Oct 2011 14:21:29 +0100 Hi Peggy so sorry to hear about what has happened and I sincerely hope that you are on the mend. I also had an allergy to allopurinol and ended up in hospital with the rash from neck to toes and shivery. They pumped antibiotics into me and sent me home with lots of antibiotics which thankfully cleared it up. My best wishes to you.
Kay x

]]> c66eafc148fb4a508bf675a00e637fdd KAYNEVILL replied to the topic I Told You I Was Ill... in the forum Treatment http://www.myeloma.org.uk/forums/topic/i-told-you-i-was-ill#post-97797 Sat, 16 Jul 2011 12:37:23 +0100 Hi Dai
In a positive way its good there was a reason for you being so down, but it must have been pretty rough for you with the needles. So glad they got you sorted. Everything crossed for good news on Monday.
Kay x

]]> 930d7dc674f1b5d0c1ea6049d76d4b02 KAYNEVILL replied to the topic Weight Gain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/weight-gain#post-104035 Sat, 16 Jul 2011 12:31:46 +0100 Hi Gill
I have put on 2 and half stone in weight and gone from a size 8 to a size 14-16 (closer to the 16 :-)) I was on CDT now on Velcade. I found it hard putting on the weight in the beginning, now I am going with the flow. Its going to be the only time I can eat what I want so I am going to enjoy it. I know it will come off once I have my SCT…[Read more]

]]> b040853c2023422dbe6b17e7fdeaf2e4 KAYNEVILL replied to the topic Confused in the forum Newcomers http://www.myeloma.org.uk/forums/topic/confused#post-84727 Sun, 10 Jul 2011 17:41:10 +0100 Hi Claire
I was diagnosed in 2009 and only started treatment this year. It was a watch and wait for me too. I was monitored with blood checks and my consultant said that the treatment would make me more poorly than the disease at that stage. They can tell so much from blood tests and intervene before you get, as the others have said, the bone…[Read more]

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