Hello Stewart (& all!), hope you're having a good day.
My father is going down a very similar road to you, despite me being 21 & having a 19 yr old bother. He was diagnosed in April after recovering from double pneumonia & having severe back pain for months, at this point he was in kidney failure and it was big shock. Things were not looking good but he responded well to initial thalimide treatment, this was then complicatied by nerve damage and he was given Revlimid. This is working well, his pps have dropped to 20. Unfortunately they seem to have plateaued but his oncologist is still eager to go ahead with the SCT in Jan, following another cycle & a bone marrow biopsy the day after Boxing Day.
I hope I can somehow be of help along your journey. Remember as a 'young one' you will be stronger than expected, as long as you look after yourself! 😀 I met an older women the other day who had to been living with myeloma for 12 years, and treatment is constantly improving.
You can never be sure what is round the corner so be positive, and remember what is important.
Take care, Katie.
