kaz18

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  • #122968

    kaz18
    Participant

    Hi Doug,

    Thank you for taking the time to reply and sharing your story. Sounds like our Mum’s are very positive and determined ladies which from what I gather goes a long way in fighting this battle. Since I last posted, there have been ups and downs, to be expected I suppose. My Mum (June) hasn’t had any radiotherapy, just the CDT treatment. Her symptoms were mainly pain in her hip / leg. On the days when she has been taking all the drugs she has been struggling, mainly tiredness, pain, especially in her hands and with low mood. The days without drugs are a lot better and she sounds more like herself and quite chipper! She is frail though and due to anaemia did need two blood transfusions last week, but this immediately made her feel a lot better. She has now coming to the end of the first lot of treatment and will be assessed next Monday when she sees the consultant to see how she has got on and what happens next.

    We have just been taking it a day at a time and on the days when she feels more like herself we celebrate. My Mum is a very independent lady who rarely asks for any help, which personally I have found quite hard as I want to do as much for her as possible, but she is determined that things are to be kept as “normal” as possible which I respect.

    I hope your Mum’s side effects are as minimal as possible, I think key is understanding that she may well face, tiredness etc but to understand that it is just the drugs and of course keeping as positive and as normal as possible.

    Keep me updated and I pray that all goes well.

    best

    Karen x

     

    #122684

    kaz18
    Participant

    Hi sarahj, it sounds like we may be in similar situation. My Mum has just been diagnosed as well and she’s 84 years old. She started her drug treatment a week ago. She’d taking a combination of Cyclophosphamide, Dexamethasone and Thalidmide. Although she was really positive last week (I think just glad to get a diagnosis), she is now feeling the side effects, very tired and down. It’s difficult to know what to do as it’s very early days and me and my Dad feel a bit helpless. x

     

     

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