Myeloma Forum | kazza909 | Activity https://forum.myeloma.org.uk/members/kazza909/activity/ Activity feed for kazza909. Sat, 11 Apr 2026 18:06:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 459c5de773618bd0a2a5f82885fbf5e1 kazza909 replied to the topic Post stem cell transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant-2/#post-136927 Tue, 23 Jan 2018 21:42:59 +0000 Excellent news all the best for the future

]]> 0c7f3a00e0ad0af778f311b9701516dd kazza909 replied to the topic Post stem cell transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant-2/#post-136914 Mon, 22 Jan 2018 21:22:39 +0000 Sounds awful Susan, just horrible to watch, hopefully picks up soon, how long have you been in remission?

]]> 12a74e88f6a3cf42b91f4c26ce962430 kazza909 replied to the topic Post stem cell transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant-2/#post-136892 Sun, 21 Jan 2018 21:35:38 +0000 Thank you Greg

]]> 6d0a578a603618ef893f2ed686fb33ca kazza909 replied to the topic Post stem cell transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant-2/#post-136890 Sun, 21 Jan 2018 20:25:24 +0000 Thank you , she is the same with the nausea got a line in yesterday, but she’s not interested in anything, doesn’t want to watch tv or really chat when we visit

]]> 0f99e0ae8b42c1726b215c912288dfad kazza909 started the topic Post stem cell transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant-2/ Sun, 21 Jan 2018 18:44:40 +0000 Hi , my Mum is currently in the beatson after having her stem cell transplant she is 5 days post transplant, she is really sick and nauseous, also tired, is this normal? How long will she feel sick for?

Thanks

]]> 590d51b02fb88b65bc80626af17dae2f kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-135014 Sat, 16 Sep 2017 15:12:35 +0100 Thank you susie that is very helpful I will show my mum hopefully she will speak with the doctor and not put it off

]]> 8828639320bf39d4de683f9c31b25db0 kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134982 Fri, 15 Sep 2017 07:40:33 +0100 Yes that’s what she gets, see how it goes on the 28th thanks

]]> 80016cf2c562c1578cd85a3e3cd2713f kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134947 Wed, 13 Sep 2017 21:04:21 +0100 <p style=”text-align: left;”>Hi taff that’s great news, sorry I’m not really clued up with all the details it’s been so overwhelming, would the CTD be what my mum is getting just now?</p>

]]> bd686a73586612ba1dac71d620128167 kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134945 Wed, 13 Sep 2017 20:41:19 +0100 Thank you so much pips I appreciate that. Good luck to you too

]]> 4ff49e6118ca737514f012117084bc17 kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134943 Wed, 13 Sep 2017 20:09:02 +0100 Thank you pips, her pp has went down from 2000 to 30 in the last three cycles which seems to be good, does this mean she will be in remission when they get it low enough?  The stem cell transplant seems to work really good for a lot of people but she feels she could not handle it just now 🙁

]]> 03c3682f356104227b9ccd19236d35ea kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134941 Wed, 13 Sep 2017 19:25:02 +0100 <p style=”text-align: center;”>Thank you, I hope your partner gets on ok with the transplant, we meet with the dr on the 28th so maybe they will give mum some more information to the maintenance side as I don’t think she will cope with the stem cell transplant</p>

]]> 61cefbc57278551fd961b8e04a464702 kazza909 replied to the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/#post-134937 Wed, 13 Sep 2017 18:04:45 +0100 Don’t know if this hasn’t worked can someone let me know?

]]> dc35ee5c990654b85243e02fae11ac94 kazza909 started the topic Diagnosed in June 2017 in the forum Newcomers https://www.myeloma.org.uk/forums/topic/diagnosed-in-june-2017/ Wed, 13 Sep 2017 10:32:35 +0100 Hi everyone, my mum who is 64, was recently diagnosed with myeloma in June 2017, she has just finished her 3 cycle of velcade, due her 4th on the end of September. The doctor has mentioned she is fit enough for stem cell transplant, she is very scared and worried about the side effects, what is the alternative if she doesn’t go ahead with the…[Read more]

]]> 557a332859e9f24b2fafb7d1e7908874 kazza909 became a registered member https://forum.myeloma.org.uk/activity/p/51017/ Wed, 13 Sep 2017 10:23:02 +0100 0