Myeloma Forum | keen | Activity

keen replied to the topic Treatment Free :-) in the forum Treatment

Fri, 24 Feb 2012 15:37:18 +0000

Hi Tom, like everyone else I am absolutely delighted by your news. Yes we all want to hear things like that. Wish I had heard of the treatment you had, especially as I have just started a clinical trial and cannot believe the number of tablets I am taking and this will go on for months. The good news is it seems to be working as my PP has gone…[Read more]

keen replied to the topic Starting stem cell harvest next Monday. in the forum General

Fri, 24 Feb 2012 15:30:30 +0000

Bridget, You were kind enough to send a reply and I can't find it on the site. In fact I am having a lot of trouble finding anything! Bad day? Senior Moment or is the site playing up. Sylvia

keen replied to the topic Travel insurance in the forum General

Fri, 24 Feb 2012 15:11:25 +0000

Try manor Insurance. They insured me last year and reasonable. Sylvia

keen replied to the topic Same old same old (ish)... in the forum Treatment

Wed, 22 Feb 2012 16:49:45 +0000

Hi Dai, it is such a long time since I visited the site I am sure you will not remember me but I came on today in search of some support from all our lovely friends out there and had to respond to your post as I have just started a trial called Eloquent which only opened last week. I got the arm that contains the new drug and have had one infusion…[Read more]

keen replied to the topic Halfway point in the forum Newcomers

Mon, 12 Sep 2011 12:48:01 +0100

Hi Keith, I am so pleased to hear from you and know that all is progressing well, apart from the tiredness. I think you are very brave to have SCT and it seems lots of people have it more than once. I am waiting for an appointment at Barts and dreading them suggesting SCT or a trial! I am such a coward but I guess if my MM is aggressive I might…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sun, 11 Sep 2011 18:37:59 +0100

Thanks Tom,yes, mentally feeling a bit better today, helped no doubt by a surprise visit from our little grandson, Henry. Always sure to raise the spirits. Then sadly I came online to read the sad news from Gill that Gaye had died. I don't know how long ago that was but I am very sorry,she was such an inspiration to us all. Hope you had a good…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 11 Sep 2011 18:29:34 +0100

Dear Gill, thank you for letting me know the sad news that Gaye had died. When was that? I am so sad, she was such an inspiration to us all. Thank you again. Sylvia

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 11 Sep 2011 01:35:42 +0100

Hi Gaye, have just come back to the site, you may have seen my posts. I don't see anything recent from you so am hoping you are well. It would be good to hear from you. Sylvia

keen replied to the topic Halfway point in the forum Newcomers

Sun, 11 Sep 2011 01:19:40 +0100

Hi Keith,I have just come back to the site and was looking for something from you to know how you were getting on. You were one of the first I read about on Velcade.Don't know if you have seen my recent post but I have just finished 6 cycles and have plateaued at 11 so no point in having any more Velcade. Would like to know how you are getting on,…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sun, 11 Sep 2011 00:51:54 +0100

Hi Bridget,thank you for your support too, I am so glad I came online because those 3 replies have made me feel so much better, hopefully putting things more in perspective. As you say they are always looking at new things and furthermore I do believe a cure is just around the corner.I'm pretty sure that when I go to Barts they are going to…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sat, 10 Sep 2011 19:05:06 +0100

Hi Mavis, thank you so much for your encouraging reply. As I just said to Tom I feel better already!.Yes it is possible they might give me a break.It's 3 weeks since my last injection but I can't say I feel fighting fit! Of course most of that is due to my back. ( I had screws put into my collapsed vertebrae a year ago.)I am due to see the surgeon…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sat, 10 Sep 2011 18:43:08 +0100

Hi Tom, thank you for your speedy reply. I know of old you are always one of the first in there with support, and hugs and it is much appreciated by us all I am sure.I feel better after receiving your post, and Mavis's and probably after a few more days I shall be back to my 'glass half full' state.Love and hugs to you and I'll let you all know…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sat, 10 Sep 2011 13:34:55 +0100

Hello Dai, again several weeks have passed since I came on site but have been prompted today for several reasons mainly cos I saw my consultant on Thurs and was quite depressed. I have completed 6 cycles on Velcade and have plateaued at around 11 ( started at 37) so has been decided no point in continuing. Have been referred back to Barts to see…[Read more]

keen replied to the topic Velcade and me and possibly how... in the forum General

Sun, 03 Jul 2011 13:29:58 +0100

Hi, sorry this is a late reply I have not visited the site for months for a variety of reasons. I am currently on my second course of treatment, Velcade after relapsing after only 6 months which was very disappointing as I had responded so well to the first treatment, only needing 4 cycles to get rid of PP completely. So returning so quickly was…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 20 Feb 2011 12:21:04 +0000

Hi Tom, I think 15th April seems a bit optimistic but then we are aren't we? feel more like May so I will go for 1st May.Of things positive I have a 2 day break in Wokingham to come ( Chrissie pres to my fantastic hubby) so some sunshine would be nice then. Also 4 night mini-cruise to Cork in Ireland end of April so let's hope Gaye is right about…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 20 Feb 2011 12:11:09 +0000

Hi Eva, I am in London and attend the Medical Day Centre at Whipps Cross Hospital in Leytonstone, East London. I have to say the care I get there is terrific. The injection goes into my tummy in seconds, painless, but I have to have a one hour saline drip to hydrate me beforehand and that goes in via a cannula.It can hurt but I always get a huge…[Read more]

keen replied to the topic Denial - My thought for the day. in the forum General

Fri, 18 Feb 2011 17:51:15 +0000

So your post is finally here! I got onto my Pc today and clicked the link so that was what was needed. now I know what I am doing! I printed off the email so I could reply but I expect you have seen my earlier posting now.Did you get a good response when you relapsed the second time?I know you are having pain treatment but are you in remission…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Fri, 18 Feb 2011 13:21:27 +0000

Hi Gaye, I have still not been able to find the post you made. I don't know if it will be on your thread or mine. I may get more joy when I get to the PC upstairs rather than my laptop as that is where I first read the email notifying me as to your posting. We shall see. Meanwhile I am happy to bring you, and all our friends out there, upto speed…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Wed, 16 Feb 2011 18:01:19 +0000

Gaye I know you have posted something for me but I can't find it. How stupid am I? I thought the thread would just continue. I've checked my name and yours. Any ideas? Sylvia

keen replied to the topic Denial - My thought for the day. in the forum General

Tue, 08 Feb 2011 13:24:55 +0000

Hi Gaye, like the others I was moved by your 'thought'and have been encouraged by your posts. We all hold you in very high esteem. When I was first diagnosed last January I did not name my disease to anyone except my immediate family and one couple, our dearest friends. I did not want to face the perception the word cancer engenders in people.I…[Read more]

keen replied to the topic A Salty Problem in the forum General

Tue, 08 Feb 2011 13:02:49 +0000

Hi Keith, so glad yor salty problem is resolved. How are you after your Velcade? I have just had the first of my 8 injections, so far, so good. Am hoping you have gone straight into remission. Love Sylvia

keen replied to the topic surgery resulting from MM in the forum Newcomers

Tue, 01 Feb 2011 11:53:29 +0000

Thanks Bridget, as we speak we are getting ready for another little treat, combining an overnight stay with a visit to my husband's sister.I am embarrassed to admit I have yet to try including photos but I will give it a go.Keep well. Sylvia x

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 30 Jan 2011 16:37:03 +0000

Thanks Bridget I may well ask. I remember the surgeon talking about pain relief patches.Your saying 'going to do the Sunday roast' cheered me up. A couple of weeks ago I did good old Spag Bol, the first meal I had cooked for a year. My poor long-suffering husband has had to do everything, cooking, shopping, cleaning,washing and ironing and has…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 30 Jan 2011 13:32:33 +0000

Thanks Tom, isn't it nice that Spring is just around the corner? It makes so much difference when the ole sun is shining, as it is here today, especially when you are stuck in a chair for hours on end. The pleasure then comes from a sunny day looking out over the garden and the thought of better days to come. Love Sylvia

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sun, 30 Jan 2011 13:23:38 +0000

Hi Bridget, thanks again for your reply. Yes it seems our cases are different. I do still get pain around my back, waist but it is hard to know how much is from the op and how much from MM so you just don't know what, if any will go, or what you are stuck with. I take 2 Cocodomol 4 times a day and anything upto 6x5ml of Oramorph depending on how I…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sat, 29 Jan 2011 12:20:42 +0000

Hi Bridget, thank you so much for your reply and from a fellow 'operation' patient. Yours sounds even worse than mine I am so pleased you have made agood recovery from that. Your info was very useful, I suppose my big question is were you bent over before you op and if so are you upright now?You say it was four years ago. How long would you say…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sat, 29 Jan 2011 12:09:51 +0000

Hi Tom, thanks for the intro to this newby! If you read my reply to Gaye you will see how amused I was by her description too. She and I would be like 2 peas in a pod as I am a young 70 year old but bent!The Dex I had last year does not seem to have affected me as others have experienced so now I feel I missed out I could do with a surge of…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sat, 29 Jan 2011 12:02:30 +0000

Gaye what a delight you are! I almost wish I was returning to Barts just so I could run into you, two bent up old crones with sticks, what a picture!However on a serious note, as MM has returned I won't be considering SCT for the time being which was why I was there,nor have I agreed to Clinical Trials as I feel I need to concentrate on my…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Sat, 29 Jan 2011 11:54:14 +0000

Hi Keith, thank you so much for your response. As with Gaye I had read several of your posts so knew you had started Velcade.I am so glad for you it has started well. How good is it when pain subsides! Long may it continue.With regard to my surgery I had no choice, I would have become more and more bent over apparently so it had to be done. So now…[Read more]

keen replied to the topic surgery resulting from MM in the forum Newcomers

Fri, 28 Jan 2011 19:31:03 +0000

Gaye, thank you for responding and so quickly. I have read many of your posts today ( first time for me on the Forum) and feel very privileged to hear from you. Yes I was to have had the Kyphoplasty but unfortunately my condition deteriorated whilst I was having my first course or treatment so I had to have a more serious procedure involving…[Read more]

keen started the topic surgery resulting from MM. in the forum Newcomers

Fri, 28 Jan 2011 17:56:03 +0000

Just want to know if anyone out there has had spinal surgery as a result of collapsed vertebrae. I am new to this site so maybe if I keep looking I might find something anyway. I was diagnosed last January and responded well to treatment, in recession after 3 months. My surgery delayed my referral for SCT so when I finally saw the specialist at…[Read more]