Myeloma Forum | keithmt | Activity https://forum.myeloma.org.uk/members/keithmt/activity/ Activity feed for keithmt. Wed, 15 Apr 2026 08:41:00 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 55a630fbaefd2db82985adf488b85c2f keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/page/2/#post-121235 Wed, 11 Mar 2015 12:03:24 +0000 Great news Rosie, that’s made my day.

Keith x

]]> 277a6587471217dcdf51b90ef1d32b61 keithmt replied to the topic Travel Insurance in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance-5/#post-121095 Mon, 02 Mar 2015 15:11:08 +0000 My wife and I have found World First to be very good as they base the premium on your exact condition at the time and not just a generic “cancer” rate. My myeloma went into complete remission last August and my wife has had bowel cancer which metastasised to her lung last year. We have a joint multi-trip worldwide policy for just under £500 a…[Read more]

]]> 628ba297c21ba0641186d9ce80bb4bd8 keithmt replied to the topic my husband has been recently diagnosed with myeloma, and we are so confused in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-been-recently-diagnosed-with-myeloma-and-we-are-so-confused/#post-120604 Mon, 02 Feb 2015 09:30:28 +0000 I hope all goes well today Tracey, it’s the worst time for you both until you get some solid fact from the consultant about Tony’s condition and treatment plan. I’m sure you’ve looked around this forum and read plenty of experiences here (including mine) many of which have very positive outcomes.

My original diagnosis came from severe pins and…[Read more]

]]> 745951864a53f8e1b8da739b16b2817e keithmt replied to the topic Myeloma Specialists - London/South East in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-specialists-londonsouth-east/#post-120519 Sun, 25 Jan 2015 17:59:40 +0000 I had my HDT-SCT at the Royal Marsden and would echo that they were just wonderful. If you do end up connected to Marsden I think you’ll find that Myeloma is treated in Sutton. I was told I’d only end up in Chelsea if I had a bad infection and needed blood transfusions (as far as I can remember). Needless to say I didnt.

Good luck with what’s…[Read more]

]]> 8a357b97644f57f28eb3f649718766f9 keithmt replied to the topic Happy Anniversary...It's 4 years ago today in the forum General http://www.myeloma.org.uk/forums/topic/happy-anniversary-its-4-years-ago-today/#post-120425 Tue, 20 Jan 2015 09:14:57 +0000 That’s great news Phil, well done! It’s always great to hear about long remissions (mine’s only 6 months so far) as that’s the holy grail we’re all looking for.

Keep well,

Keith

]]> 10b6070d37d136e267f20df529db7365 keithmt replied to the topic holidays etc in the forum General http://www.myeloma.org.uk/forums/topic/holidays-etc/#post-120423 Tue, 20 Jan 2015 09:10:35 +0000 Hi Val,

I had my SCT last April and was fit enough to travel by June. That was a trip to Austria and I don’t think my consultant would have been as happy about it if I was headed for Africa or somewhere with health risks and poor medical support.

I’ve just done a detailed reply to Amanda ( see General / Stem Cell Transplant) on my transplant…[Read more]

]]> 16bb3548d57f01c903f85b814b31c743 keithmt replied to the topic holidays etc in the forum General http://www.myeloma.org.uk/forums/topic/holidays-etc/#post-120423 Tue, 20 Jan 2015 09:10:35 +0000 Hi Val,

I had my SCT last April and was fit enough to travel by June. That was a trip to Austria and I don’t think my consultant would have been as happy about it if I was headed for Africa or somewhere with health risks and poor medical support.

I’ve just done a detailed reply to Amanda on my transplant process so have a read there.

All the…[Read more]

]]> 9582cfbfd5b95cbf621381a656ccaaff keithmt replied to the topic stem cell Transplant in the forum General http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-5/#post-120420 Tue, 20 Jan 2015 09:01:27 +0000 Hi Amanda,

You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.

I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]

]]> 9582cfbfd5b95cbf621381a656ccaaff keithmt replied to the topic stem cell Transplant in the forum General http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-5/#post-120420 Tue, 20 Jan 2015 09:01:27 +0000 Hi Amanda,

You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.

I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]

]]> b6fa01c4b96f699003c4b2084ceadcf2 keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120412 Mon, 19 Jan 2015 20:39:39 +0000 That is just fabulous news Rosie about the Bence Jones, you must be very relieved. I hope the good news keeps coming …….. let me/us know.

Big hugs

Keith

]]> 34c5e40483c09f18396aede5b37e36b2 keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120412 Mon, 19 Jan 2015 20:39:39 +0000 That us just fabulous news Rosie about the Bence Jones, you must be very relieved. I hope the good news keeps coming …….. let me/us know.

Big hugs

Keith

]]> e7293862b3b3c77b66dc88e09775b213 keithmt replied to the topic Apply Real/Fake Passports,Driver’s License,ID Cards,Visas, USA Green Card in the forum General http://www.myeloma.org.uk/forums/topic/apply-realfake-passportsdrivers-licenseid-cardsvisas-usa-green-card/#post-120363 Sun, 18 Jan 2015 12:28:22 +0000 How come you absolute low-life feel that it’s appropriate to post this crap on a cancer related website.

I pray that one day you don’t find yourself in a position to use this forum for the purpose for which it was intended. But if you do then my theory of “what goes around comes around” will be correct.

Please go away (other wording would not be…[Read more]

]]> fad6c442d1501fca3121e032244f8aa0 keithmt replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120358 Sun, 18 Jan 2015 09:52:42 +0000 Hi Katie,

Just to say that during the whole of my time with MM, I was only ever given my paraprotein count. Your mum may or may not get other counts like Carol (light chains etc) but as far as I know (not much!) it might depend on her treatment regime.

Carol, do you know why you had these readings as part of your monitoring?

Keith

]]> 38a501ab8d98a90c815ccedc297dad6e keithmt replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120342 Sat, 17 Jan 2015 09:45:13 +0000 Well Katie, that’s great and positive news from Carol isn’t it? I’m so pleased to hear that you’re coming up to your remission anniversary Carol. Are you still having tests and checkups in Oz?

Katie, the immediate period after the transplant can be a bit tough and like I said before, your mum really doesn’t need to get into the details of that…[Read more]

]]> 19356e61467844b9543a3d60e758b5df keithmt replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120321 Fri, 16 Jan 2015 14:02:01 +0000 Hi again Katie,

My transplant was part of the plan from day one. As far as I know they put a person on a set of drugs to suit their condition. In my case it was CDT (Cyclophosphamide, Dexamethasone, Thalidomide) which you take on a monthly cycle when your paraproteins are measured to track how they’re decreasing. As I said, they want to get…[Read more]

]]> 77832a1c1e331a344ed3ed2bb4d8948e keithmt replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120310 Fri, 16 Jan 2015 09:26:14 +0000 Hi Katy,

First of all I’m really sorry to hear about your mum but you’ve done a fantastic thing by finding this site and posting your questions. The Internet is a scary place to research any illness as you always get such a wide view of opinions but at least this site comes from people who really understand their condition.

The next bit of…[Read more]

]]> 8d031d028de3ee9b7adb2b8d85479f7d keithmt replied to the topic Stem cell harvest and replacement in the forum General http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/#post-120229 Thu, 08 Jan 2015 09:48:02 +0000 I know what you mean about taste, I had a similar experience. I don’t think there’s much you can do about it except find those things to eat which aren’t as bad as other things. I found sweet things best.

As for you jumping down your wife’s throat let me leave you with these thoughts as I also had my occasional “moments”. First off, it’s not…[Read more]

]]> 4ad67aefdd12198b36e5a03a690f560b keithmt replied to the topic Stem cell harvest and replacement in the forum General http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/#post-120222 Wed, 07 Jan 2015 20:10:07 +0000 Hi Alan,

I was in your position last April and whilst we’re all different, my process was much less stressful than I anticipated.

First off, if (like me) you’re not a big fan of the biopsy process then ask for sedation. Let them know in advance as the effort for them is slightly more, so you won’t get it on the day if you leave it until then to…[Read more]

]]> fc9a16252ee4274a5897dfc60055ad0c keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120219 Wed, 07 Jan 2015 19:12:28 +0000 That is such a pain Rosie, just what you needed eh? I know it’s going to be on your mind but don’t get bogged down with worry, the results might be much better than you expect so try and hang on until you know.

Thinking of you.

Keith

]]> 67f15dcc360a45e7f67ec4f3561f8991 keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120160 Sun, 04 Jan 2015 09:53:43 +0000 Let us know how you get on With the MRI Rosie …. all the best.

Keith x

]]> 971650d4598fa0ad5876dcfc2e1fd14d keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120158 Sun, 04 Jan 2015 09:40:08 +0000 That’s great news that your worry level has gone down; we all know what you’re going through. As Cygnet says, keep positive and remember there are lots of stories on here (like mine) with really good outcomes.

Thinking of you

Keith x

]]> 215a26f5244cabba74fda6e170dfdcbc keithmt replied to the topic Waiting and worrying about diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/waiting-and-worrying-about-diagnosis/#post-120153 Sat, 03 Jan 2015 14:48:23 +0000 Hi Rosie,

Did you see your Doctor yesterday and what was the result?

Hope it was good news.

Keith

]]> b26042a2d8b79ec9887fc6df9c7235b8 keithmt replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/#post-120041 Fri, 19 Dec 2014 09:13:39 +0000 A key part of the SCT process (in many cases) is a high dose of chemotherapy (in my case Melphalan) and its this that kills off the cancer cells in the bone marrow. Unfortunately, this chemo also has a major effect on the entire digestive and immune systems and its this that can have a major effect on a person and take quite a while to climb out…[Read more]

]]> 4b7b1ef3a796f20d184e9fdb48e05d6f keithmt replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/page/2/#post-119960 Sat, 13 Dec 2014 19:32:26 +0000 Dear Lynda,

We are all here for you and know exactly what you’re going through. This initial period is the worst because you have no facts and your mind is running wild. Once you have some more details from the consultant you’ll know what your dealing with and hopefully you’ll cope better with that knowledge.

When my wife and I heard the words…[Read more]

]]> 5156cb5c3fdcac7c5084583212f67baf keithmt replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/#post-119946 Thu, 11 Dec 2014 18:37:14 +0000 Hi Johnny

By the end of my 6th cycle my paraproteins were down from 57 at diagnosis to just 2. My consultant told me that SCT would give me a much greater chance of longer remission so for me, it was a no-brainer.

My stem cell collection went very well as other was only in for one day. I think a week or so later I had my huge dose of Melphalan…[Read more]

]]> fe653da4e590435a0ae89230af3f6b89 keithmt replied to the topic Advice welcome in the forum Newcomers http://www.myeloma.org.uk/forums/topic/advice-welcome/#post-119897 Wed, 10 Dec 2014 12:26:18 +0000 Hi Cygnet,

Your post brought back my memories of being told I had Myeloma in July 2013. You’ll find many posts on the forum that will scare you (well, they did me) but the one running theme is that everyone is different. Don’t focus on the scary stories but take heart from the positive ones.

When diagnosed, my only symptoms were pins and…[Read more]

]]> 037464cd650edc37db0e0bb04744bea0 keithmt replied to the topic bone marrow biopsy in the forum General http://www.myeloma.org.uk/forums/topic/bone-marrow-biopsy-2/#post-119894 Wed, 10 Dec 2014 11:57:36 +0000 Just to throw in my tuppence worth. My first BMB at the Royal Surrey was during my diagnosis stage and was quite uncomfortable (6/10). When I needed a second one there I asked about sedation and was told they “wouldn’t recommend it” which, to be honest sounded more as a convenience to them than a help to me. They suggested I get a tablet from…[Read more]

]]> d63ac3f7d110dbdfd7ee10cf0a5a7051 keithmt replied to the topic scared newcomer in the forum Newcomers http://www.myeloma.org.uk/forums/topic/scared-newcomer/#post-116378 Wed, 02 Jul 2014 18:14:26 +0100 Hi Nikki,

So sorry you’ve found yourself in need of this website but this is the best place for information. Just remember that everyone is different and your journey will be unique to you but as you progress you will find the people on here who can help you most.

You say that your Myeloma is in your spine but it’s actually in your bone marrow,…[Read more]

]]> 22fb8b668174854f8f1e9b1b38275cce keithmt replied to the topic Relative newly diagnosed and we dont have a clue! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/relative-newly-diagnosed-and-we-dont-have-a-clue/#post-116359 Tue, 01 Jul 2014 20:19:57 +0100 Just to say that last August I was diagnosed with stage 2 MM and 2 weeks ago, after CDT drugs and a stem cell transplant, was told I am in complete remission. I soon stopped reading all the scary stuff on the Internet and just focused on getting through the treatment. Yes, I had the occasional tough day but looking back now I feel I have just…[Read more]

]]> fa2c3ccf4a858d1e4ad741ad7477dfd9 keithmt started the topic First trip abroad, post SCT in the forum General http://www.myeloma.org.uk/forums/topic/first-trip-abroad-post-sct/ Wed, 25 Jun 2014 10:00:51 +0100 I’ve just come back from 5 days in Austria at the Grand Prix there. Obviously I was a bit anxious about how I’d cope but everything went very well. No issues with stuffing down Schnitzel, Wurst or Streusel, Austrian beer or wine and my system behaved itself with the help of some Imodium just as a psychological backup.

There was a fair amount of…[Read more]

]]> c460c162e9094521b871f15a47d05ce3 keithmt replied to the topic In Remission ! in the forum Treatment http://www.myeloma.org.uk/forums/topic/in-remission/#post-116242 Wed, 25 Jun 2014 09:45:48 +0100 Good luck with your next blood test David, let us know how you get on. My next test is July 23rd.

All the best,

Keith

]]> cda981cbde4b88008acba0752389ca35 keithmt replied to the topic Friendly reminder in the forum Newcomers http://www.myeloma.org.uk/forums/topic/friendly-reminder/page/2/#post-115996 Sat, 14 Jun 2014 08:59:14 +0100 I am quite a newbie to the forum relatively speaking but I have to say that I have found the information invaluable and the responses to my posts supportive, helpful and very friendly. I think in all forums you need to expect some direct/sharp replies but that’s partly why you post I think.

Love you all.

Keith

]]> f9f6578debd4e5fca473a79457345be2 keithmt started the topic In Remission ! in the forum Treatment http://www.myeloma.org.uk/forums/topic/in-remission/ Thu, 12 Jun 2014 21:06:45 +0100 I saw my original haematology consultant today for the first time since I started my SCT process at the end of March and he told me that I’m in full remission. Wow, that came out of the blue as I hadn’t expected to be told about my cancer state until my biopsy next month. However, my last blood test showed zero trace of paraproteins so job…[Read more]

]]> 7fec6bf95fb92182f34616c56e466373 keithmt replied to the topic It's finally Day Zero! in the forum Treatment http://www.myeloma.org.uk/forums/topic/its-finally-day-zero/#post-115836 Sat, 07 Jun 2014 18:25:43 +0100 Like Julie, I had no infections or sepsis Nicki. They did find an infection marker in one blood test whilst I was in hospital but they instantly put me on antibiotics which god rid of it before it developed into anything.

I have to say, my whole SCT experience was very uneventful, I didn’t event feel much nausea. I counted myself very fortunate…[Read more]

]]> ef20a67746df682341636d63a77e1d8b keithmt replied to the topic Increase in remission with SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/increase-in-remission-with-sct/#post-115832 Sat, 07 Jun 2014 17:25:28 +0100 My consultant wouldn’t put a number on the benefits of SCT other than to say that evidence showed a definite increase in remission time. That was good enough for me, I’m not sure that specific numbers have any real meaning as it’s all a bit of a guessing game being that we’re all different.

As for Melphalan dosage, if I remember correctly, I had…[Read more]

]]> 4f45ab117effd378944e57c11aae2378 keithmt replied to the topic It's finally Day Zero! in the forum Treatment http://www.myeloma.org.uk/forums/topic/its-finally-day-zero/#post-115831 Sat, 07 Jun 2014 17:12:03 +0100 Hi Nicki,

After my SCT in April I had 2 days of feeling absolutely fabulous. Then the Melphalan kicked in and over the next 3 days I started to feel fairly grotty and was ready to be admitted to hospital. I continued to feel a bit worse day by day for the next 3-4 days but then started the big climb out.

I would say I finally started to feel…[Read more]

]]> f3aab8d912a0193a278e5d44392e35aa keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/4/#post-115248 Thu, 22 May 2014 10:46:51 +0100 Oops. Just realised my post yesterday said “day 40” when it should have said 50. I’ve changed it now. Obviously my brain isn’t firing on all cylinders yet :))

]]> 42cfc01c9a7359632053350b25c1f188 keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/4/#post-115238 Wed, 21 May 2014 12:45:09 +0100 So, on day 50 after STC I realise that the past week I have finally climbed out of most side effects. Appetite is back, taste is back, finger/toe nails are growing with a vengeance, some facial hair is starting to grow back. Physically I can do more but still have big limitations of strength and stamina but I’m sure this will improve with time…[Read more]

]]> d4664e0e66a17129b1c5b3f14a6a7cf8 keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/4/#post-115220 Mon, 19 May 2014 21:27:07 +0100 Well, that’s kind of you to say. To be honest, I bought the Stag in December 2013 as I knew I needed a focus to get to the other side of my treatment and it seems to have done the trick.

I wasn’t aware that Ace Cafe did car events but I’ve just seen that they have a Triumph event in June. It’s a bit of a hike from Hampshire but I might just…[Read more]

]]> 061cb28e80b152680057d73a121decea keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/3/#post-115212 Mon, 19 May 2014 16:34:36 +0100 No “S” on my chest Mike I’m afraid, at times I felt like a complete wimp. I feel very fortunate that I’ve climbed out of SCT so relatively quickly and perfect timing to take the Stag out in this perfect weather. She’s just been through a lot as well ….. full re spray, new engine and various bits, I love her !

Keith

]]> 41ccebf03edd72c935f88f99c53c7cfc keithmt replied to the topic Date for SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/date-for-sct-2/#post-115134 Thu, 15 May 2014 10:42:35 +0100 Hi Izzy,

I’m now 44 days post SCT and feeling much more like my old self. As Rebecca said, Melphalan kicked in 5 days after having it and probably got slightly worse for a further 4 days. Then the climb out starts although it’s taken a few weeks. I remember well that the 2 days post SCT I felt like a new person, it was amazing, hope you get the…[Read more]

]]> d2c4a92c039b7ae349c88e8f2cc52ca9 keithmt replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/#post-115087 Mon, 12 May 2014 20:09:10 +0100 Hi Karen,

Like you, I was astounded at how much medical detail people on this forum had about their situation. Light chains and all sorts of other things I’d never heard of or been connected to. The only number I was connected with from the start was my paraprotein level which my consultant told me about at the end of each monthly drug cycle and…[Read more]

]]> af677ae45431aba9c69abba9082f3025 keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/3/#post-115048 Sun, 11 May 2014 15:17:41 +0100 Just an update at day 40 after transplant. My appetite still hasn’t put in an appearance but I am eating more and enjoying it more, even if I don’t feel hungry. My bloods seem to be recovering (as far as I can tell) with my white blood cells up to 11.2, platelets up to 235 and neutrophils up to 4.77. I have no idea how these numbers relate to…[Read more]

]]> d37d979e935758dce8b973d01bb8360e keithmt replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/#post-115047 Sun, 11 May 2014 15:02:44 +0100 Great advice as always from Rebecca. When I was diagnosed I as also asymptomatic but my paraprotein levels were at a level (57) where my Myeloma was active and I was put on treatment (CDT) straight away. So it doesn’t feel like they wait until damage starts to appear until they start treatment, at least, not in my case.

Thoughts are with you as…[Read more]

]]> ed562d6761e3ee7a9c7358ffad00bf3a keithmt replied to the topic Antibiotics etc after SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/antibiotics-etc-after-sct/#post-114758 Wed, 30 Apr 2014 12:09:07 +0100 Hi Carol,

I’m 29 days post SCT and am taking antibiotics 3 times a week, antiviral daily and antifungal daily. I’ve been told to wean myself off the antisickness so am just taking one tablet a day now until next week when I’ll stop altogether.

I understand that at some point I’ll go back to monthly Zometa.

Cheers

Keith

]]> 81d2cb36b8e1f7be2dc37f6a3b8079d4 keithmt started the topic Post SCT : Sleep Issues? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/post-sct-sleep-issues/ Tue, 29 Apr 2014 07:32:49 +0100 I’m day 28 after SCT and until recently, I could sleep for England, generally getting around 10 hours solid sleep a night. For the past week though I’ve been struggling to get to sleep and inevitably wake in the early hours when it’ll take 2-3 hours to fall asleep again.

I am still having pins, needles and aches in my lowers legs and feet and I…[Read more]

]]> f7d4d43fd4e12993f0b25599be803447 keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/3/#post-114708 Sun, 27 Apr 2014 16:32:46 +0100 Hi Stanley,

I’ve lost 4kg since my transplant and 13kg since diagnosis last August. I suppose I’m lucky that I had that weight to lose so it’s brought me back down to my “normal” weight. Having said that, I’m sure I’ve lost quite a bit of muscle as well as fat so as I get fitter I assume a couple of kilos will creep back on.

Hi Rebecca,

Yes,…[Read more]

]]> 6d97d1af07b2298218a070118fb31550 keithmt started the topic Travel Insurance in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance-3/ Sun, 27 Apr 2014 12:17:28 +0100 Just wanted to say that after looking at loads of options for insurance, I finally went with World First. They promote themselves that they don’t just badge you as a high risk just because you have cancer but understand what your individual condition and stage of treatment is. I filled out an initial online quote (once I’d worked out their…[Read more]

]]> 371f0c9fb4b2725e3431d3aecaa0faf9 keithmt replied to the topic My Stem Cell Transplant Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-stem-cell-transplant-journey/page/3/#post-114703 Sun, 27 Apr 2014 12:01:55 +0100 So, here I am, 26 days post transplant, swollen mouth gone, sore throat gone, and diarrhoea gone. However, still little appetite but I am trying to eat some protein in an effort to stop myself wasting away. Seem to be dropping weight still. I’m also getting out for some walks around the village to try and build some strength.

Otherwise all good…[Read more]

]]> 92ea2d0bf96282a8d90b044936ae8d32 keithmt replied to the topic Start of a long journey in the forum Newcomers http://www.myeloma.org.uk/forums/topic/start-of-a-long-journey/#post-114702 Sun, 27 Apr 2014 11:55:10 +0100 Sorry you find yourself here Graeme but it is a great source of info and kindness. I’m 63, diagnosed Aug 2013 and put on CDT. Like you, I had hiccups, in fact very bad hiccups, so they halved my steroids for the remaining 5 cycles. I still got hiccups but much more manageable.

The best of luck on your journey. Just remember, one day at a…[Read more]

]]>