[kellymcParticipant]

I am in exactly the same situation, only it’s my dad that has been diagnosed. He is 70 and was diagnosed in March with very early stage 1 MM. No treatment just being monitored, he is due to go back at the end of the month for his first check, so obviously we are all pretty anxious. I feel I know very little about this and no one in my family seems to want find out anything about it, I have no idea what any of his results were as my dad never seems to want to discuss it. Most of what I do know has come from this site , which although a little scary at times, has also been a godsend to help me try and understand what is going on.

So I know exactly how you feel right now!!!

 

[kellymcParticipant]

Thanks for your replies but diffuse plane xanthoma is definitely linked to multiple myeloma, although it is very rare!!! I have no real update regarding my dad but still find this whole situation very worrying and frightening. I worry about what will happen to him in the future. He is due to go back to the hospital next month to get his blood checked, so we are all hoping that there hasn’t been much change. It is hard to know what is going on as my dad does not like to talk about it. I have not seen the test results he received at the time of diagnosis so do not know what his levels are aside from the paraproteins I have already mentioned and that his bone marrow biopsy was 14%. I know this is very much an individual disease but if he were to start treatment, what would it entail? As this is such a rare cancer, are local hospitals able to treat it as well? I just worry that he may not receive the best care!!!

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