Hi,

I was diagnosed in November 2013 and had SCT in June 2014.

I was fully advised that I might feel unwell and I was braced for it being quite unpleasant. Hmmm, well, it wasn’t. I certainly lost my appetite but it wasn’t awful, not at all. I was allowed home after about 2 weeks. Though I tired easily at first, as weeks went by, I felt largely…[Read more]

Hi Brian…..I had a SCT in June 2014 after treatment brought me to remission. Touch wood, all is still well and life is good. I’m on low dosage Lenalidomide maintenance under a trial. I know it varies so much but my experience with the SCT was so much better than I expected. Although I had tiredness and presumably lower resistance for some time…[Read more]

Hi Steve……I had a SCT almost exactly two years ago at the Christie, Manchester when I was 64, in other respects, reasonably healthy and, so far (touch wood), I’m still in remission.

Everyone advised me I could feel pretty unwell and I was braced for something much worse than actually  happened. I was out after 14 days. I had some nausea…[Read more]

Hi Sally, I’m certainly a ‘New kid on the block” when it comes to posting replies……I thought I’d successfully posted this yesterday….but apparently not 🙂

Your situation seems similar to my initial diagnosis. Radio therapy was considered for my plasmacytoma                                                                                    …[Read more]